The rare disease network has been formed to engage patients, families and patient organisation representatives in the work that Rare Disease UK is undertaking in Wales, in particular to support the implementation of the Welsh Rare Disease Plan that was published earlier this year.
Topics for the day will include an introduction to clinical trials, new sequencing technologies and what they mean for patients with rare conditions. We will also be hearing from patients and carers about their experiences of living with rare conditions.
The keynote speaker will be Professor Chris Oliver from Birmingham University.
Refreshments will be provided throughout the day.
For further details please follow this link.
Merseyside Cheshire & N Wales VSG Meeting
Congratulations to John Mills for his MBE
