Information /support : I feel so much for you... - Vasculitis UK

Vasculitis UK

7,759 members6,736 posts

Information /support

Fennahj7115 profile image
1 Reply

I feel so much for you with regards to the heat. I can only agree with you the vasculitis does get worse. I have to manage it by using electric fans I have one on in the lounge during the day and I have another in the bedroom at night. There are many draw backs but some nights I have to change the sheets due to sweating so much. Unfortunately I have no other answers. I feel quite guilty shutting out the sun having to close the sun out but it's important to manage the situation as best I can.

I have decided not to have a mastectomy but stay with taking the hormone tablets I unfortunately the side effects are similar to the side effects I am experiencing with the vasculitis,nausea,hot flushes I am finding it difficult to know which belongs where the only new pain is in my shoulders,wrists and backs of my hands.

So all that is left is to persevere

No matter what this condition throes at us we just can't let it beat us. So I will pop the pills,plug into my oxygen and keep telling myself I am going to be around for a long time.

I know it is very hard.

Written by
Fennahj7115 profile image
Fennahj7115
To view profiles and participate in discussions please or .
Read more about...
1 Reply
anthony01 profile image
anthony01

I believe you can get an under cooling sheet and cooling pillowcases, typical I have not got mine yet but have seen them on the internet.

You may also like...

Just getting through the day. Do you find this a supportive site/ informative site?

Basic Information sheet

I have produced an Information Sheet, regarding my condition, that I can give to any 'new'...

Medication information

Rheumatological condition or was it specific to Vasculitis?  Anyone not given any information at...

Interesting and Informative article in the Daily Mail online today

still learn of too many similar cases where the Vasculitis has gone unrecognised and undiagnosed...

The importance of Support

training blog, but thought I'd highlight another side of WG and illnesses that are just as...