Jennifer and Neil, coordinators of the South Wales Vasculitis Support Group attended the Welsh Rare Disease Strategy Meeting March 3rd 2015.
One of the speakers at the meeting was a lady diagnosed with a particularly rare type of Vasculitis. Please follow this link for more details vasculitis.org.uk/news/rare...
100,000 Genomes Project - Genetic Alliance UK (Rare Disease UK)Rare Autoimmune Rheumatic Diseases Patient Survey The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) launch a new report A question on behalf of someone else, asked this morning by email, a new member to Vasculitis UKYoung Vasculitis UK closed group on face book 
