I'm losing A lot of hair from my head, a lot comes out when washing/brushing it, even if I run my fingers through it I have a good couple of strands. I hardly have a lot of hair as it is, it's upsetting.
I am also tapering again, but lady time I had no hair loss from steroids pred.
Hair loss does seem to be a side effect of Methotrexate. I have a friend with PMR who is complaining like mad about hair loss, she is still on steroids as well but tapering fast.
Hi Ravi. I've also posted this on the V-UK Facebook page for those who don't use FB.
I'm sorry to hear about your hair. It is so upsetting. It ought to be the last of our worries but it isn't ,it is so personal and so upsetting. I used Nioxin. It won't stop it coming out but will help thicken your hair and stimulate your scalp. You can get details here, and there is an on-line consultration nioxin.com/en-UK/home-page..... I got the three products together - you can buy them on Amazon. Redken also do good products for thinning hair. I got Redken from my hairdresser but you may be able to get those on Amazon. Why not mention this to your consultant? See if there is something else which would work just as well on the vasculitis but be kinder to your hair. If he/she is worth anything he/she will understand. Take care.
PatriciaAnn
Dear Ravi35,
I think that we all get a bit of hair loss, I know that I do- along with dental problems-but and it is a BIG but.....We are all still alive! I'm sorry if this sounds unsympathetic, It's not supposed to, but surely a little- or even a lot- of hair loss is a small price to pay to be alive, isn't it? If you are still worried after reading, and carefully considering, this advice then do talk to your doctor(s)/consultant(s) regarding what can be done. Sorry if, as I said above, this sound uncaring- it isn't; I'm just trying to give a sense of proportion here.
I send you my best wishes, really I do.
AndrewT
Hi Andrew no offence taken at all, I am greatful everyday that I'm alive and can spend each day with my family. The hair loss is upsetting sling with lots of other side effects, I will get through this. I'm determined.
When I was taking MTX I lost about 50% of my hair - it was also very dry and difficult to style in any way, and barely grew. Immediately I stopped the methotrexate, fine hair started growing back under the 'straw' thatch. It grew surprisingly quickly, and my hair is now back to normal even though I am still on steroids. So I think it's probably the MTX, not the steroids. I know that doesn't help you while you're on your current treatment, but thought you'd like to know that it will probably come back strongly if/when you can stop the drug that's causing it. in the meantime, my thoughts are with you. It's truly not a trivial problem as it affects so much of your well being and your ability to face the world.
Thank you for your inns thoughts.
It's prob the methotrexate as I've been on prednisolone for now going to be 9 months.
I’m a long way down the line now…..still on steroids but pretty stable and on tociluzimab injections every two weeks. My hair is fine, thicker than most of my contemporaries and growing pretty fast so needs cutting every six weeks. I hope you find a treatment that really works for you and can feel confident about your hair!
I am taking 50mg Imuran a day, plus prednisolone. I too have lots of hair coming out when I brush it, plus it looks like a haystack, no matter what I wash it in and I have tried every conditioner, but nothing works. Luckily I had thick hair to start with I did think it couldbe the Imuran, but I can't stop taking at moment. The dose I am on doesn't seem to be completely controlling my cutaneous vasculitis, so my rheumy may suggest a higher dose of the Imuran . Hope not.
Sorry, think I put my reply in the wrong place, but it is there!
Methotrexate, mycophenolate mofetil and prednisolone
Methotrexate v Azathioprine 
Methotrexate & ongoing side effects
