best hospital in london: I am waiting for a... - Vasculitis UK

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best hospital in london

12 Replies

I am waiting for a diagnosis from the Royal Free. 20 months so far! i can travel anywhere in London,even the outskirts. Does anybody have suggestions concerming the best place i can go?

cheers

alan

12 Replies
Suzym2u profile image
Suzym2uModeratorVasculitis UK

Thomas and Guys have a Lupus and Vasculitis department led by Dr D'Druz . Hammersmith Hospital have a Multidisciplinary Vasculitis Centre in London, led by Prof Charles Pusey and Prof Justin Mason. You would have to ask your GP for a referral.

Hope this helps Alan

Susan

in reply to Suzym2u

thank you, as soon as i get my diagnosis i will work out what to do. If i can get to see the right person i may get some answers. Twenty months ago i was told i may have "mythenia Gravis" it took until 7 weeks ago to get a Muscle/nerve biopsy and i still wait for a follow up appointment to tell me what i have.

alan

RosieK profile image
RosieK in reply to Suzym2u

I attend St Thomas's. I have Takayasus. Dr D'Cruz is a lovely man. Very thorough and friendly, as are all the staff. I live in Essex and it takes me an hour to get there. It is a busy clinic , so expect a long wait. Good Luck

Rosie

hamble99b profile image
hamble99bVolunteer

would Cambridge be ok? isn't Dr Jayne there?

Yeah i can do that, is dr Jayne the sort of person i could e mail and explain my situation?

cheers

alan

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply to

yes Dr Jayne is Alan, cuh.org.uk/addenbrookes/ser...

Susan

Thank you, I will wait until my diagnosis and take it from there. Hopefully after an initial consultation i won't need to attend more than a couple of times a month. I can get there on a day return from London.

cheers

alan

I Just e mailed doctor jayne and recieved a reply. I will need to go through my GP/specialist, no problem.

I looked at the web site and weekly or monthly updates can be made by phone once you have had the initial consultation.

thank you all

although i may have a look at hammersmith hospital

AndrewT profile image
AndrewT

Dear Alan,

I can't comment on Hammersmith Hospital, having never been there, but Addenbrooke's is excellent. I had a kidney transplant there, over a year ago now (July 2013) and I am still 'under' them, for vasculitis treatment- Dr Jane's team. Dr David Jane is also associated, with this 'forum' as he is an advisor to 'Vasculitis UK- our sister organisation.

Please do let us know how you get on Alan.

In the men time, take care of yourself

AndrewT

thank you

alan

Ravi35 profile image
Ravi35

Hammersmith are really good and helpful

Mishy profile image
Mishy

Hammersmith in my experience is excellent.I have Wegners

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