Starting a discussion on Vasculitis & Kidney... - Vasculitis UK

Vasculitis UK

7,758 members6,736 posts

Starting a discussion on Vasculitis & Kidney Disease

AndrewT profile image
3 Replies

I have had 'uncategorised' ANCA vasculitis, for about seventeen years now. A lot of fellow members do 'know' me I am aware.

I was just wondering if, my experiences, both of vasculitis treatment, and kidney transplant, can be of use to anyone. Perhaps an exchange of views/experiences might be helpful? For this reason I have NOT put this question to 'members only', as I normally do.

If anyone is interested please do reply to this post.

I send you all my very best wishes.

AndrewT

Written by
AndrewT profile image
AndrewT
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Suzym2u profile image
Suzym2uModeratorVasculitis UK

Have you ever written your experiences down Andrew

all the best

Susan

AndrewT profile image
AndrewT in reply to Suzym2u

Actually Susan, in reply to your reply- so to speak, no I haven't- do you think anyone would be remotely interested? If so my best 'bet' might be to simply write it all, a bit, like a story; just one I have considerable personal experience of! Do you agree? If not how should I present it? I do think that this would be better than an 'endless' post.

I just thought that asking this, as a question/request for input was perhaps better. That way I can give specific information and/or start a 'definite' line of discussion.

Can you please advise me further?

Very best wishes AndrewT

Murray2012 profile image
Murray2012

I would be interested, I have Good Pastures (diagnosed 2012) which effected my kidney and i have recently had a kidney transplant. I agree with Susan's idea of writing your experiences down, I think we all feel a bit alone because the condition is so rare and varied.

Dianne

You may also like...

Has anyone with GPA - vasculitis gotten their kidneys back?

Has anyone with GPA - vasculitis gotten their kidneys back? I was diagnosed on March 18, 2017 and...

Consultation Response for Rare Diseases (Vasculitis UK)

everyone with Vasculitis. :-) :-) It will be in the public domain sometime this week. Also if...

A new members question,on Urticarial Vasculitis.

am a new member to health unlocked, vasculitis uk, and i would like to ask members a question, as i...

Vasculitis and rheumatoid arthritis

that are more vasculitis related. Would love to hear other people's views or experiences about...

Vasculitis is discussed on the Jeremy Kyle programme today

Not sure if anyone has seen the Jeremy Kyle Emergency Room programme but there was a lovely lady,...