Wales Rare Disease Charities Deliver a petition to the Welsh Assembly

[Suzym2u]

Last week, Welsh ‎Rare Disease charities‬ delivered a petition to the Welsh Assembly for ‪Access to Treatment in Wales......to call on the National Assembly for Wales to review the use of the "exceptionality rule" in determining whether a patient can access a treatment....

Jennifer, the South Wales Vasculitis Support Group organiser was representing ‪Vasculitis‬ UK, Jennifer is to the right of the photo and her husband Neil, is standing at the back.

There will be a full report in the next VUK newsletter written by Jennifer.

[jinasc]

Well done.