We have been contacted by the South Wales Vasculitis Support Group, who were contacted by a reporter from the Western Mail who would like to feature an article to raise awareness of rare diseases locally (Cardiff area) and in light of Rare Disease Day on the 28th February.
The article will highlight your rare condition and you will have the chance to talk about it and how you were diagnosed, how it affects your day-to-day life, the changes you've made and how you are able to live with it because of support from organisations, doctors, family etc.
The reporter is Emma Sisk and her contact number is 07922 817 913 and email emma.m.sisk@gmail.com.
Please do get in touch with Emma if you would like to feature in the article as it would be a great opportunity to raise awareness.