Since you were diagnosed with vasculitis, ha... - Vasculitis UK
Since you were diagnosed with vasculitis, have you also been diagnosed with cancer. If yes please comment what type & drugs you were given.
Suzym2uModeratorVasculitis UK119 VotersPlease select all that apply:
I had been on various tablet forms of chemo. All the usual. Had 4 infusions of rituximab. I had no symptoms whatsoever. Only found bladder cancer as was going to try cyclo. It was low grade cancer. The type of heavy smokers. Never smoked. Also processed food. Always ate organic mainly vegitarian. Hope this helps? After 4 yeats still clear and now on cyclo infusions as nothing working.
Methotrexate
I am on Tamoxifen 30mg a day for 5 years. Had my 2 year check up last Friday week 7th and all looking good 3 more years i will be in remission. 
I had to have 17 days of radiotherapy 3 months after the lumpectomy (i was so lucky i never needed a full mastectomy as it was caught early).
Before diagnosis i was in remission for about a year with my wegener's but the month before my breast cancer i had to have my other hip replaced within 2 weeks my Weg's was back they think caused by the trauma on my body through the operation. I am still not into remission over 2 years later. I am on Methotrexate, Steroids 5mg, folic acid, lansoprazole, alendronic acid. Last year to add to it all i got a DVT so now on rivaroxaban and lovely surgical socks.
I was on prednisolone initially and then Azathiaprine.
Squamous Cell Carcenoma, just like a spot on the head. Removed, used a skin graft from leg and hey presto, small bird bath on head when it rains!! All bad cells removed, no ongoing treatment. The graft was the worst bit. This relates to my husband who has WG and doesn't use facebook.
But pre capillary pulmonary hypertension showing up on a Reveal cardiac device not revealing loss of consciousness/sleeping? on ingestion daily likewise many cardiac & urine tests .Had asked for investigation at time of MI as unaware what it was .This meant did not get diuretics for acute oedema ignored which has become lipo lymphoedema for which no treatment unless one has cancer?which could cause a problem when develop multi infart dementia like late Mother hoisted everywhere unable to do anything for herself with cognition completely gone as most likely genetic as already had MI [ cardiac arrest ] weak heart pumping with classic heart failure symptoms [ breathing] ignored before & afternoon .Yet they could target me out of job by not giving antibiotics without which would die or get sepsis [ pyuria] !
Am I a guinea pig do nothing? Watchful Waiting? Then get my records when I die ! F ine if given fair investigation & most up to date treatment planning .No if not . Does the system care?
No drugs. Basel cell carcinoma
no drug squameous cell on shoulder have wg removed by surgery from appearance to removel about 10 weeks by which it had gone from pinprick size to 6 cms
I was treated for grade 3 invasive breast cancer about one year before my Vasculitis diagnosis. After my mastectomy I was treated with FEC-T chemotherapy which consisted of 5FU, Cyclophosphamide, and Epirubicin for the first three cycles and Taxotere for the last three. I am taking Anastazole (an aromatase inhibitor) which I started after chemo. I think I might have to finish this year. I refused radiotherapy as I have a serious lung disease (Bronchiectasis). I also take Metotrexate. October 2016 I had Rituximab for my Vasculitis.
I had Bowel cancer before being diagnosed with GCA
I was treated with oxaliplatin Chemo
Prior to cancer diagnosis I have had
20s to 50s periodic Urticaria ( treated as allergy. It no allergen ever found) developed 6 mths after first child
40s Fibromyalgia lasted 2 years
50s Diabetes type 2 but very Labile and treated with Insulin 2 episodes of DKA
50s Shoulder pain and stiffness
Unable to raise arms above head
? Lupus and had positive ANCA and anti DNA ? But tests after a year showed negative So discounted and shoulder pain resolved in 1year to 18mths
60s Bowel Can et
GCA On steroids
How lucky am I ???
June
Malignant melanoma insitu. Two small operations to remove it with a clear margin. This occurred 4 months after starting azathioprine following 8 sessions of iv cyclophosphamide.
I had 3 infusions of cyclophosphamide and 2 infusions of Rituximab last summer. As far as I know I have no sign of cancer. I pray it stays that way. I just had a bladder catherization and they didn't find anything wrong. Thank God for small miracles.
Several skin cancers, both squamous and basal, removed in recent years, 2 more diagnosed today.Probable malignant bowel polyps removed but lost internally due to haemorrhage during procedure hence query over diagnosis, about 20 years ago.Bladder cancer discovered on routine ultrasound on transplanted kidney nearly a year ago after symptoms dismissed as IBS, had 2 ops to remove the tumour and now having 3 monthly cystoscopies .Been on various forms of immunosuppression, steroids for 35 years, Azathioprine same, Cyclosporine for 30 years since my transplant, but I think it has been the 9 years on Cyclophosphamide that has probably caused the bladder cancer.Now aged 56, been ill since the age of 20.
I have not been diagnosed with cancer, yet. I really need to find a doctor who is knowledgeable in APS and the other issues that seem to go with it, like torn retina, forgetfulness, pains in legs wth bruising, 3mm growth in lung that behaves at first like pleurasy, and hematoma. I need an ultrasound, Ct scan, thyroid test, etc.
Diagnosed with breast cancer after Humira and methotrexate for rheumatoid arthritis, then after the vasculitis diagnosis Cyclophosphamide, Azathioprine, Mycophenylate mofetil and two infusions of RTX in that order
Small growth on forearm, on site of a burn from many years ago.
Removed - diagnosed as basal cell carcinoma - no drugs but to attend dermatology for review every 12 months.
Prednisalone for 2 years. cyclophosphamide, rituximab
