annsouthren8 years ago

Lynn Jaques informed me and I'm very grateful

Hidden8 years ago

My consultant recommended these sites.

Chezh8 years ago

My friend recommended Health Unlocked, I then noticed the Vasculitis Health Unlocked community.

Mc898 years ago

I'm a member of the IBS site via the IBS Network & searched out the vasculitis site when my husband had HSP. It was very comforting to find a group that understood what HSP was as very few people had heard of it. Thank you.

Angelajones7778 years ago

I found out about your site looking up my condition churg Strauss syndrome

kath123418 years ago

I saw a counsellor through work when first diagnosed with wg and she found the site for me

Kenneth8 years ago

I was a member of the Stewart Strange trust since 1996. Dr. Martin Lockwood introduced me to it.

Suzym2uModeratorVasculitis UK in reply to Kenneth8 years ago

We were at a Vasculitis meeting today, in Cambridge, named after Dr Martin Lockwood

Best Wishes

Susan

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Hidden8 years ago

web search MPA

Hidden8 years ago

I'm a member of Health Unlocked and browsed through the site sections.

Hidden8 years ago

I googled my symptoms and it came up with a post on the HU vasculitis group. It was through this group I found out about Vasculitis UK and all it does, including the support groups. Often wondered why there there was no leaflet from the hospital, like other charities do.

Suzym2uModeratorVasculitis UK in reply to Hidden8 years ago

VUK share many leaflets with the medical profession and hospitals. There are over 150 doctors plus nurses on the VUK mailing list.

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Hidden in reply to Suzym2u8 years ago

I thought as much, I wasn't doubting the work of VUK

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grace_8888 years ago

Shopping on the web for information on vasculitis .

Mgt12348 years ago

My consultant provided me with the information.

ruby5418 years ago

I was searching for uveitis info and came across the site. I have now been diagnosed with probable neuro behcet's disease and the web is the only place that has heard of it!

suffolkgirl8 years ago

I'm not sure, but I think I just found it by Googling!

Mooka8 years ago

Came across it whilst googling vasculitis.

Hidden8 years ago

I already belonged to other communities on HU, so when I was diagnosed with Vasculitis, I searched for a community for it, so I joined. Then I found out about Vasculitis UK.

Pollie8 years ago

When our local support group was started in Liverpool about 18 months ago, this website was given out to everyone, and is SO useful.

michichgo8 years ago

I'm not certain. It was either the vuk website or intensive Google searches on the topic of MPA vasculitis.

Kentish_Man8 years ago

Found during a Google search on Vasculitis.

metalback8 years ago

Was given a leaflet about MPA from Stuart strange at hospital and joined

SusanneM8 years ago

Internet search

poppet28 years ago

I am not sure - I think it was searching on the web for as much information as possible about Wegeners GPA. I am so glad I found it.

AndrewT8 years ago

Dear Susan,

I know that this is going to sound completely stupid but I have actually forgotten, how I first came across you. Thinking about it there is some information, regarding 'Vasculitis UK', at Addenbrooke's Hospital-and in the Transplant Unit. Though I have a feeling that I might have heard of you before that (scratch head)?????

I don't suppose that my answer has been of any help, at all, has it?

In any event I wish you John, and all your family, a happy and peaceful Christmas-not forgetting a Happy New Year.

AndrewT

Suzym2uModeratorVasculitis UK in reply to AndrewT8 years ago

The same to you too, Andrew x

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