IF you have suffered abdominal/ gastrointest... - Vasculitis UK
IF you have suffered abdominal/ gastrointestinal pain as a result of your vasculitis(not due to medication)what type of vasculitis have you?
Suzym2uModeratorVasculitis UK48 VotersPlease select one:
I've had HUVS for the last 19 years and have had abdominal pain, on and off, for most of this time
I don't have a diagnosis yet but the best guess is Behcets. For the past 10 months I have had severe abdominal pain which appears after eating and lasts for 2 to 3 hrs. It's not connected to the type of food I eat but the volume, the more I eat the worse it is.
I have lost weight and these symptoms are making me miserable as I love my food. A CT scan and recent capsule endoscopy were negative, now I have been left to get on with it. I have changed my eating pattern as much as I can ( little and often ) but the symptoms are worsening again.
Vasculitis GCA
Found out lactose intolerant
Worst after sugary foods
Gluten intolerant for years
Good days and bad days sometimes wakes me up in the night
I have had lots of nausea and varying types of abdominal pain. It has been one of the most debilitating of my symptoms.
I had severe abdominal pain while hospitalised just before diagnosis. Been on omeprazol since then but haven't had problems since I started the steroids. But I would say I have an " abdominal sensitivity "
Urticarial/hypersensitivity vasculitis
The abdominal pains started late on, a few weeks before the MPA diagnosis. That really was my worst pain, it was just unrelenting. It wasn't a stomach pain or associated with a stomach upset, but more general dull pain around my gut.
Eu have been told I have AAV mpo positive which I assume is MPA but don't have that confirmed. Gallbladder disease and regular abdo pain
I dont know if this would count , but I have abdominal pain which became so bad I was given a colonoscopy, the outcome IBS ,or so they say,these pains are at there worst at a flare. I have UV. I wonder ,would Vasculitis create an irritable bowel , are there many of us with it?
I had a misbehaving gut and 'morning sickness' (sometimes all-day) for years but paid no attention to it as I was otherwise fit and healthy. Then assumed the severe fatigue was just my age. Two emergency admissions to hospital with other interesting symptoms but assumed the runs were due to the huge quantities of antibiotics. When routine bowel screening picked up blood, I had an urgent colonoscopy and ulcerative colitis was diagnosed. During the third hospital admission it was re-diagnosed as crohn's and by then the inflammation was systemic. Then the PET scan picked up Takayasu's. (Just aorta, nowhere else.) Nobody has any idea whether one caused the other but they are 'seen together in the literature' (ie, some other folk have the happy combination)!
Urticarial x
Jackrussell I had IBS for twenty years before the UV I now have constant chronic diarrhoea and I have bleeding somewhere in the gut, since UV had cameras both ends and capsule camera due to red flag symptoms but nothing specific found, had it for almost 5 years now and I just have Imodium in my repeats. At the end of all the investigations they said IBS which I already knew I had. Unfortunately IBS is the fall back diagnosis if they don't find owt else xxxx
Been pretty much in the same boat myself winter 64, had stomache/bowel problems for years ( Ive had UV for around 23years ) mine is mostly constipation, I never really thought it was IBS, as it never seemed to completely go away,and at times I have been in really bad pain, I have long since realised that if the Drs don,t know what it is " you haven,t got it " .
I have to say, as much as I truly do sympathize I,m pleased to know I,m not the only one with similar problems, there is very little understanding in all of this so most of the time it,s not worth the mention, so we plod on !! oh and do keep taking the pills.
Oh I will lol rattle when I walk, mine isn't the same as my other IBS either and doesn't go away. I'm 10 years in with the UV and 30 years in with the IBS but to add insult to injury I put weight on I never lose it, the very least it could do is let me be sylph like Lol lol
I've had abdominal pain on and off for several years, earlier this year I was rushed into hospital after a severe episode. The pain wad so severe that I kept passing out.
They didnt really want to know at the hospital gave me I V pain relief and antispasmodic med and sent me home.
Off work 3 weeks, still have intermittent pain.
Dear Susan,
I have 'uncategorised ANCA Vasculitis-that does have the 'usual' headaches, tummy troubles, muscle pain and the like-not helped by being Rheumatoid Arthritis 'positive'.
Hope you are both well, at least.
AndrewT
Every time I get a relapse I get a return of this abdominal pain. I never have it during remissions. I have CSS.
