This past year, have you experienced frequen... - Vasculitis UK

Vasculitis UK

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This past year, have you experienced frequent alterations of appointments resulting in long delays until the next appointment (multi-choice)

Suzym2u profile imageSuzym2uModeratorVasculitis UK97 Voters

Please select all that apply:

18 Replies
amms43 profile image
amms43

I have experienced revised appointments but not for the vasculitis clinic

jackrussell profile image
jackrussell

I have had my appts re scheduled 5 times in one year should have seen Consultant at 6mths, became 1 year,

Albasain profile image
Albasain

As per my last post: Last appointment (actual) 28th Nov 14; next appointment 23 January 15 (8)cancelled; revised appointment 13 March 15 (15) cancelled; next revised appointment 08 May 15 (23) challenged and revised back to 20th March 15 (16). The figures in brackets relate to the total number of weeks from the last actual appointment. Hope that helps.

maisie5 profile image
maisie5

No changes for Vasculitis clinic but unbelievably long waits for rheumatology after postponements of original appointments. I have had to suffer in silence due to lack of steroid sparing drug due to poor rheumatology service at Addenbrookes. All other departments have been really good (vasculitis, audio, ent, dermatology etc.).

braindamage profile image
braindamage

No problem with appointments being changed, except to bring them forward which suited me better.

suffolkgirl profile image
suffolkgirl

No major problems last year, but have already had one appointment moved to about six weeks later, this year.

SuzyJaneG profile image
SuzyJaneG

I am very lucky I always have the best attention from my immunologist and appointments have never been changed.

Pollie profile image
Pollie

I did have one appointment revised by 1 week and at that the Consultant asked me to inform her if this happened again...I had not told her, but assumed it was because she was on holiday.

AndrewT profile image
AndrewT

I have had a few problems, with dental appointments but, I'm not too sure, that these count. It was more messages being 'stuck in the system' than a cancellation, as such.

Ayla profile image
AylaVolunteer

No revused appointments, thankfully, but consultant sometimes not present in clinic and he is the only one who knows anything about vasculitis, thus I can go for a year without seeing anyone who has dealt with vasculitis patients before.

Winter64 profile image
Winter64

I havent had appointments changed but immunology wont book you a follow up appointment they write to you after 6 months to book your new appointment which means that my 6 monthly appointments are actually 9 months apart.

sarahxxxx profile image
sarahxxxx

I seem to be one of the lucky ones and have had none of my vasculitis appointments changed. I have to turn up an hour late for them as I go straight from work - never been a problem or issue. QEH in Birmingham are fab!

All my appointment have gone ahead on time up to now. The only problem I've had, is turning up to a normal appointment only to find I had to have unplanned methylpred infusions, starting on the day of my normal appointment. Plans for the rest of that day went awry!!

pwc51 profile image
pwc51

My appointment changes are usually only changed by a few weeks and have never caused any significant issues.

RosieK profile image
RosieK

I attend two different hospitals. One for Vasculitus , as it's rare . No problems there with appts. However , the Hosp I attend for my other Rhuematology probs , do change my appts . I had to be called in recently as I had a flare up .

Suzym2u profile image
Suzym2uModeratorVasculitis UK

thank you for all your replies and comments, :-) it is something we will look into. It seems some hospitals have been changing appointment systems and others changing to paperless systems and this in turn has caused problems in some areas.

thank you

Susan

BronteM profile image
BronteM

No problems with changed appointments at Addenbookes Clinic 12, but usually a long wait when I get there. My cardiologist is fantastically efficient, has never changed anything and is on time, though sometimes I see her at one hospital, sometimes at another.

Merrytrious profile image
Merrytrious

From one hospital very rare alterations but from another one sometimes up to four amendments.