weathervane3 months agoPOPULAR
Well , we spent last night organising my youngest son as he is off to uni in holland today , he on an early flight so we all went to bed earl...
Economic impact of Vasculitis
Keyes4 months agoPOPULAR
I am involved in the Scottish Government Vasculitis Short life working group and the question of the personal economic impact of a Vasculitis...
Anca vasculitis and diet
Christina19605 months agoPOPULAR
Hi everyone, my husband has anca vasculitis and I've been trying out Holistic approaches with him....
Leg lesion biopsy result
LauraMk305 months agoPOPULAR
Evening/morning all Letter from dermatologist 8th June Received today Dear Laura, This is to confirm your biopsy showed very little, although...
EGPA/Churg-Strauss? New Member, recent Diagnosis
grindhaus7 months agoPOPULAR
Hi All- I'm new to the community. is there anyone else here diagnosed with Eosinophilic Granulomatosis Polyangiitis ( EGPA)/Churg-Strauss?...
Yeprat4 months ago
Hello, With reference to John Mills's article in the AGM magazine regarding how poor Wales NHS actually were in treating Vasculitis patients ...
Moving to Durham
anthony013 months ago
I am moving from London to Durham and think the closest specialised hospital will be Newcastle? that deal with Vasculitis PANCA and Cerebral?...
Lauriescott17 months ago
I have been suffering a number of flares which have in the past been treated by an increase in steroids however last weekend I suffered a bad...
kazmac452 months ago
Anyone have any thoughts on this rash? It's on my arm, but also on my side and my thigh, although a bit less severe....
LH448 months ago
I'm not convinced although he told me to look it up then I saw it was a vasculitis which ironically, several family members have different ve...
YOSELIN10066 months ago
Does everyone with vasculitis Has to go on this treatment of rituximab is its mandatory....
Hi all UK vasculitis sufferers/ Rituximab
25345 months ago
If you are on Rituximab could you tell me how many doses/infusions you have and at what intervals, please? I had two doses/infusions spaced a...
Skin & blood results
kazmac453 months ago
) My skin biopsy has also come back showing Urticarial Vasculitis - the dermatologist said that's what they were looking for in relation to t...
Wegener's Granulomatosis with polyanginitis
Lillybweggie4 months ago
Hi all, I have had this disease since 1990. I'm doing ok, but have suffered a lot of destruction to my sinus cavity, my nose and my eyes have...
London Bridge Lupus Centre
Wendy398 months ago
Any recommendations for who to see here? I have SCLE and possibly a form of vasculitis....
tonyeade19 months ago
It was to treat churg strauss syndrome which has left me with nerve damage to my left foot and right hand which seems to have got a little wo...
New App available for Vasculitis Patients - February 2017
Suzym2u10 months ago
This has been posted on the website today it is A new App called patientMpower is available for Vasculitis patients....
LauraMk306 months ago
I know this isn't related to vasculitis but it has something to do with keeping me sane....
Mononuritus multiplix enquiries
Ghayaha month ago
Hi every one; Im new here . I was diagnosed with " immune-mediated neuropathy " and some doctors mononuritus multiplix ....
Christina1960a year ago
Hi everyone, my fiance was diagnosed with Anca vasulitis in 2014....
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