Vasculitis & heart problems
I also have ANCA associated vasculitis which was diagnosed nearly a year ago.. My question is does anyone on here also have heart issues on t...
Strokes Again!! Update on mine and cerebral vasculitis.
I thought it was time I should give a wee update on how I have managed since my stroke at the end of October and it felt the right time as Ka...
Can Prolia trigger vasculitis
I was first diagnosed with Wegeners in November 2010 - sinus and lungs....
Can I have your experiences of this drug please? My rheumy wants me to start this ( as soon as my blood tests come back to show I’m healthy e...
Is vasculitis life threatening?
He went onto give information out and leaflets, so hubby has got Systemic vasculitis primary they think, ANCA PR3 ( don't really understand e...
Question about nausea and Vasculitis
so my dad was diagnosed with ANCA Vasculitis in 2018 and has been struggling with it on and off ever since. my question is, does this type of...
Getting a diagnosis
After getting in touch with Vasculitis Uk I went to my GP and then had blood tests for ANCA....
First Rituximab Infusion
Hi all I am waiting on blood tests to come back to see if I can have Rituximab instead of Azathioprine for my gpa my blood numbers are creepi...
Is Vasculitis classed as a disability?
With Vasculitis GPA causing shortness of breath and thus giving a lesser ability to walk any great distance I am thinking of getting somethin...
Coping Strategies for Waiting to be Seen
Those of you who were not in hospital when you were treated by rheumatology for vasculitis, how long did you wait and how did you cope in the...
Recommendations for ANCA vasculitis specialists near London?
Would anyone have any recommendations for vasculitis specialists in Churg Strauss Syndrome / EPGA or GPA in or near London?...
Hi I wrote a post earlier this year about a rash on my legs my gp told me it was vasculitis, and referred me to a dermatologist who I actuall...
Diet with vasculitis
Hi everyone can anyone suggest a diet I've had double bypass kidneycancer one removed and vasculitis thyroid shot keep trying to lose weight ...
Diagnosed with GPA over 2 yrs ago.
Hi, I am 63 and have been on the usual cyclophosphamide and prednisolone to treat Wegners granulomatosis. Changed to azathioprine after 8 mon...
Cerebral Vasculitis to Vasculitis Dementia
I’ve had Cerebral Vasculitis which has now been in remission for 10yrs and still have memory problems but I’m becoming confused and it’s hard...
Study suggests Azathioprine may increase risk of relapse in some AAV patients.
Since going on Retuximab 2 years ago, I have gone from ANCA positive to ANCA negative and haven't relapsed since ( fingers crossed )....
Trying another tiny steroid drop soon
That is not normal for vasculitis patients, but my cerebral vasculitis disease fights back badly at each drop....
Coping with a vasculitis relapse
I wanted to write a bit about coping with a vasculitis disease relapse. Fell ill in 1994 aged 22, diagnosed with cerebral vasculitis in 1997....
Avascular Necrosis caused by Steroids.
From personal experience I wouldn’t touch steroids with a barge pole. 10 years after being given steroids briefly for an overactive thyroid g...
I briefly was diagnosed with ANCA ( formerly Wegeners ) Vasculitis which has left me with CKD Stage 3 in 2015 and since then I have been thro...
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