Nalcrom (sodium cromoglicate) Availab... - The UK Mastocytos...

The UK Mastocytosis Support Group

541 members244 posts

Nalcrom (sodium cromoglicate) Availability

PCAD profile image
PCAD
3 Replies

Hi,

Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)?

Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”

Just wondering if anyone is having more success than us?

Phill

Written by
PCAD profile image
PCAD
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Mothertay profile image
Mothertay

I got my recent prescription without any problems from the hospital pharmacy

Jess-UKMasto profile image
Jess-UKMastoPartner

Generic sodium cromoglycate is definitely available. I was in touch with the generics company abotu two weeks ago and they had no issue. I don't know of an issue with Nalcrom branded product either.

PCAD profile image
PCAD

Thanks for the updates.

Good news, our GP and surgery pharmacy were brilliant and we received the meds yesterday. Even the branded version (Nalcrom).

This is all new to us, but makes so much sense now and probably been going on for much longer than we first appreciated. Reading various documents and advise has had so many jaw dropping moment as things fit into place and what seemed like random symptoms are just part of the Mast Cell issues. The ‘Phases’ of the reaction information covering:

- immediate

- first few hours

- next 8 hours

- 24/48 hours

Was particularly true for our daughter.

I do have a rare disease myself, so that has helped with planning etc.

Thanks again

Phill

You may also like...

Availability of Sodium Cromoglicate

get it. It’s for our 11 year old daughter and to be honest Sodium Cromoglicate has improved her...

Sodium cromoglicate - GP won't supply any more

recently started on sodium cromoglicate. The outcome has been almost miraculous - the first...

Nalcrom Supply Update

https://psnc.org.uk/our-news/medicine-supply-notification-nalcrom-sodium-cromoglicate-100mg-capsules

Help please. MCAS investigation on the NHS?

if a anyone is able to help. I've been trying to get a referral for MCAS unsuccessfully so wonder...

Anyone had Omeprazole cause Myositis?

have been taking Omeprazole for more than 11 years. It is both thrilling and horrible to think what...