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rebeccalub7 months ago
The info is too large, let me work on links, thanks!
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Here is a link to a slide show by Dr. Mesa showing signs and implications for early MF.
Hiddena year ago
I was found out I had ET when I was 28 years old, I am 45 now. My treatment is 1500mg per day of Hydroxycarbamide & 75g of Asprin per day. ...
Newly Diagnosed Polycythemia (possibly familial)Very confused!
Hello-There2 years ago
Hi my name is Paul and I'm a little nervous and confused. I'm looking to reach out to people in the polycythemia and MPN community for some ...
Newly Diagnosed and confused. Looking for advice or info! (Polycythemia)
New Med active in MPNs
rebeccalub2 years ago
Drug Active in Myeloproliferative Disorders
Essential thrombocythemia, myelofibrosis respond to telomere targeting
Promising Medication for Myelofibrosis and ET
Imetelstat Promising Across Myeloproliferative Neoplasms | Page 1
Silas Inman @silasinman
Published Online: Friday, September 4, 2015
Laughter is good.
cannonfire2 years ago
Ok. Joke for all.
Did you hear about the chameleon that couldn't change colors?
The chameleon had a reptile dysfunction.
I hope this offends...
￼Shining the Light on Myeloproliferative Neoplasms(MPNs)
You are cordially invited to join us in recognition of MPN Awareness Month
Support and Education Meeting in Blue Ash
I will be posting the invite for the panel discussion that is to take place in Blue Ash on Saturday September 12. Please get together any ...
Which Patients Qualify for Calreticulin
Susan Leclair, PhD, CLS (NCA)
Chancellor Professor, Department of Laboratory Science
Help for Special Needs Students Children
mayoljosh2 years ago
Help My Special Needs Students Get the Educational Services they need.
Please visit this website gofundme.com/l6klf0
and donate in any amount ...
Patient Power Link
Here is the link to the "Patient Power" website. Go to the "Join our Community" link. patientpower.info/user/regi... Let me know if you ...
RebeccaLubitz2 years ago
I will be sharing some of my favorite online resources. Patient Power is one of those. You can sign up for our disease family, Myeloprolif...
Hidden2 years ago
I think it would be really interesting for all of us to share how we got diagnosed initially. Include symptoms, doctors seen, treatments,...
Do I have cancer?
This has been one of the most asked questions.....is this cancer? Since my own diagnosis I have been told multiple things from different r...
PaulLK2 years ago
I was diagnosed with PV in 1983. For a long time it was controlled with phlebotomy, but became out of control because of exceeding the 8 tim...
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Cancer Support Community
OHC West Networking Meeting
Exercise for People Living with Cancer
Learn how to reduce side effects of cancer through exercise.
Welcome Tri-State MPN Education and Support
Sorry it has taken so long to get this up and running. Lots going on.......Please join our group as a follower and please post questions an...
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