Hello everyone I am Sarah and my lovely fiancé Steve has PSP
Hi everyone I have been reading posts on here for days and it has really helped me through what has been an horrendous few months. I thought ...
My beautiful husband has become another star in the sky
My darling husband of only 2 months lost his battle with PSP this evening....
At hospital now with Tony
So ever since we refused to pull his tubing and NOT allow for a organ donation as I said yesterday I feel like things have been some what dif...
Wedding Day 22/10/2018
Good morning from Mr and Mrs Hankinson to all you lovely people. Yesterday was simply wonderful in the end ❤️....
They don’t want to put her on a trach!
It is Day 8, and we requested the trach, and feeding tube as the next step, a doctor actually said to me “ you really want to put her on a tr...
In need of some encouragement and insight. (waking up from coma, dealing with the trach, etc...)
She been in a chemically induced coma for 9 days, during which her kidneys failed, and she had blood clots sent to her legs and spleen. ) the...
Some good news
I am very aware that he is resting on a knife edge and that he could decline very rapidly and that there is no happy ending for PSP suffers b...
Hi has any one here had to have a tracheostomy fitted?? How did you cope was you able to talk eat??...
I heard my mum speak today for the first time in nearly a month as they put a speaking valve in the tracheostomy such a good feeling to be ab...
Dad’s Day 5 in coma
First thank you to anyone reading this post. I have been reading all of the previous posts and I feel encouraged....
Back on track
Hi everyone We had. A set back a few weeks ago Tony had some seizures fell into a coma and then they actually had to induce him for a few day...
What is a PEG?
Hi all Hope you are all alright. I was wondering if someone could explain what a PEG is because I had a call from my family friends wife Aman...
Well after consultation I feel the best option is to move forward so we spoke with his father to allow for Tony to get his tracheostomy and p...
Waking up from Induced come (with a trach) - seeking for advise and hopefully some encouragement....
( A brief summary: My mom, 68 years old, has been in an induced coma for 9 days ( following an in-hospital cardiac arrest, and lung issues. s...
Prayers For Jackie
Last Tuesday, my mom got dropped off to the hospital from a cardiac arrest. The doctors say she wasn’t breathing, and it took them 20 min to ...
Mom long term ICU trach ventilation, ICU delirium, what can I do to help her emotionally?
My mom has been in the ICU for 5 weeks now. She had the flu, then pneumonia and went into septic shock....
cardiac arrest and brain injury - recovery
Some days he is very " present ", he is here, and we know he understands us, he makes meaningful answers ( mainly yes or no or mouthing words...
Tonys breathing and more
So I see they are trying to wean Tony off the ventilator as he’s had his trach just a few days ago. He was always breathing kind of low betwe...
Tbi with craniotomy currently 3/52 post op are drs always right about prognosis
Hi my partner was attacked in Spain 3 weeks ago. He received a craniotomy and approx 8 days later regained consciousness for about 12hrs he h...
update post Ivor Lewis
We both reading the posts since my husband got diagnosed oesophageal cancer October 17 and very valuable tips here and thanks everyone for th...
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