Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
Has anyone suffered side effects from tocilizumab ? Adeline x...
Hi has anyone experienced weight gain with Tocilizumab?...
GCA and steroid withdrawal
Now I am down to 5 1/2 mg of Pred and have begun to have really bad pain at night....
Websites - useful stuff, articles, resources
Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone ( Thank you PMRpro, I lifted your descript...
Hi guys daft question hi am on Tocilizumab Ive got a thing coming up and oysters are on the menu just wondered if I'm ok to eat them ?...
Please could you tell me is tocilizumab drug available. I read about it in the paper....
Starting yet another Biologic
Hi everybody, not posted for sometime now but just wondered if anyone is on Tocilizumab. My rheumy has suggested I go onto this biologic now ...
GCA and Tocilizumab
I am taking the above for GCA and have had two infusions and two injections....
Some Words of Encouragement. Severe RA and No Meds. right now. The Benefits of a Healthier Microbiome
My RA was under control for the first time in over a decade, but my quality of life was very poor. I still have Chronic Fatigue and Fibromial...
Has anyone experienced infusions of this drug ( Actemra ) ? I don't believe I've seen it mentioned here....
Hi all, I was diagnosed with RA approximately nine years ago and started off on Methotrexate, Prednisolone, Sulphasalazine and Hydroxychloroq...
Farewell Tocilizumab...hello Baricitinib
I was dagnosed with RD 3.5yrs ago, been on Enbrel, Rituximab and Tocilizumab. I am perpetually grateful for the very excellent and continued ...
Giant Cell Arteritis - Tocilizumab - NICE
If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact, me, Joh...
Hi all, Thought you might like to read about the tocilizumab trial patient in the Sunday Express mag. express.co.uk/life-style/he...
My RA has been very mercurial throughout all this, with pain and fatigue competing for top billing....
Hi guys had my first injection this morning now I have a warm flushing sensation in my upper body! Is this normal ?...
Newbie with Temporal Arteritis. New drug Tocilizumab (actrema)
Hi, I am new and have been reading a lot of good info an was so comforted when I read a post by another newbie who also has been in this batt...
Tocilizumab for GCA
Someone has just posted on the patient.info forum that on October 4th 2016 tocilizumab ( Actrema ) was approved by the FDA in the USA for use...
I have been so ill for nearly 18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6 months....
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