Does anyone know anything about tocilizumab?
Hi everyone, I've been reading a bit about a new drug that has been trialled to treat GCA and hopefully PMR, called Tocilizumab....
Biologics Differ in Safety Risks - Infection risks higher for Tocilizumab (aka Actemra)
" Tocilizumab helps patients achieve better control of this illness and fills what has been an unmet need," says Professor Dasgupta. http://w...
Tocilizumab and demyelination
Actemra for PMR and maybe even for GCA is IMO, a huge, completely unnecessary risk....
Pred tapering starts tomorrow
I was diagnosed with GCA/PMR May 7th and started on 60mg of prednisone. I will be lowering that dose to 50mg tomorrow....
Tocilizumab working - but what a price
Tocilizumab eventually started to work for me about three weeks ago - after 4 months. My blood tests bear this out; my ESR and CRP have been ...
Steroid sparing drugs.
I have read some of the posts from folk who are now taking steroid sparing drugs ( immunosuppressants ). I wonder how effective they are....
Very Important information for GCA sufferers
Hello there, I’ve not posted for a few months,- sorry, but I think this is important information for anyone with GCA I was originally diagnos...
NICE approves Tocilizumab for Giant Cell Arteritis!
There hasn't been a reliable new drug for GCA for 70 years, when steroids were first used in a case in France....
GCA and tocilizumab withdrawal
Has anyone given up taking tocilizumab ( Actemra ) and remained in remission or did you get GCA back. Is there a program to reduce injections...
Just wanted to ask if anyone has experienced an issue with weight gain on Tocilizumab? 🧐...
"9 out of 10 doctors on our payroll, recommend this product!" ~ Big Pharma : (
Oh Goody!!! Bio-Thera Solutions, a global biotechnology company based in Guangzhou, China, recently announced that it has initiated a phase 1...
Been on Bengali injections for several months with prednisalone thought the biological was working as I felt really well then had to taper of...
Please read this- it might save your life!
My GP increased pred to 10 mg ( for the 2 weeks when I was away on holiday ), but the next blood test still showed high inflammatory markers,...
Scoop on latest rheumi visit.
My next appointment with rheumi in October will mark the end of the second year since my PMR diagnosis....
GCA and people not understanding
My Father is sending me a cutting from the Mail about GCA and I think I will keep it with me to show to them!...
Hi there, I have recently started weekly tocizilumab injections, but 6weeks in am not feeling any relief. I did have to miss one week due to ...
Can you lower ALT enzyme?
Hi, new here. My tocilizumab infusions keep pushing my ALT high....
Today’s the day (again)
Morning lovely people, I’ve been called in to see the Rhumatology nurse today to change all my meds as things are not working. Have tried Aba...
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