Tocilizumab is not approved by NHS England for GCA on cost grounds
I am very sorry to have to share the news that NICE, the National Institute for Health and Clinical Excellence, has rejected approval of toci...
Has anyone suffered side effects from tocilizumab ? Adeline x...
Websites - useful stuff, articles, resources
Articles on: Few side effects due to PMR compared with an age-matched cohort not taking prednisone ( Thank you PMRpro, I lifted your descript...
GCA and steroid withdrawal
Now I am down to 5 1/2 mg of Pred and have begun to have really bad pain at night....
Hi has anyone experienced weight gain with Tocilizumab?...
Hi guys daft question hi am on Tocilizumab Ive got a thing coming up and oysters are on the menu just wondered if I'm ok to eat them ?...
Please could you tell me is tocilizumab drug available. I read about it in the paper....
GCA and Tocilizumab
I am taking the above for GCA and have had two infusions and two injections....
Hi all, I was diagnosed with RA approximately nine years ago and started off on Methotrexate, Prednisolone, Sulphasalazine and Hydroxychloroq...
Some Words of Encouragement. Severe RA and No Meds. right now. The Benefits of a Healthier Microbiome
My RA was under control for the first time in over a decade, but my quality of life was very poor. I still have Chronic Fatigue and Fibromial...
Farewell Tocilizumab...hello Baricitinib
I was dagnosed with RD 3.5yrs ago, been on Enbrel, Rituximab and Tocilizumab. I am perpetually grateful for the very excellent and continued ...
Giant Cell Arteritis - Tocilizumab - NICE
If you have had any experience of being treated with Tocilizumab for GCA/TA - favourable or unfavourable then please can you contact, me, Joh...
Starting yet another Biologic
Hi everybody, not posted for sometime now but just wondered if anyone is on Tocilizumab. My rheumy has suggested I go onto this biologic now ...
Has anyone experienced infusions of this drug ( Actemra ) ? I don't believe I've seen it mentioned here....
Rheumatoid Arthritis -
Hi Everyone I am new I have been reading everyone life stories, sad and happy. I have monthly infusions of tocilizumab ( Actemra ) I was diag...
Hi all, Thought you might like to read about the tocilizumab trial patient in the Sunday Express mag. express.co.uk/life-style/he...
My RA has been very mercurial throughout all this, with pain and fatigue competing for top billing....
Monotherapy with Actemra for GCA
Diagnosed with GCA in January 2017, 67 years old, living in Canada I rather quickly got in touch with a rheumatologist and had a biopsy done....
NICE consultation on new drug for GCA - we only have till 4 January!
You may have read that NICE, the National Institute for Health and Clinical Excellence has so far refused to approve the use of tocilizumab f...
I have been so ill for nearly 18 months and I understand that this new drug for GCA has a 55% chance of remission in about 6 months....
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