Soon to start on tocilizumab , any experience good preferably or bad , would be appreciated...
Changing to tocilizumab
Hi All, I posted a couple of months ago asking how long it takes Benepali to work. It didn't work after more than three months so now I'm goi...
Does anyone know anything about tocilizumab?
Hi everyone, I've been reading a bit about a new drug that has been trialled to treat GCA and hopefully PMR, called Tocilizumab....
Hi all, I was wondering how people feel after a Tocilizumab infusion and how long they take? I'm due for my first one tomorrow and would like...
I have TAK and am waiting to start on Tocilizumab. I've been taking prednisolone 55mg for 2 months....
Tocilizumab and demyelination
Actemra for PMR and maybe even for GCA is IMO, a huge, completely unnecessary risk....
Hi,new here introducing myself/decreasing prednisolone
Hi,new here introducing myself. Brief history: hyperparathyroidism operation 2003-rheumatoid arthritis diagnosis 2007-hospitalised with sepsi...
Running out of treatments
I've had my RA 26 years and it's always been severe and hard to treat....
" Tocilizumab helps patients achieve better control of this illness and fills what has been an unmet need," says Professor Dasgupta. http://w...
Tocilizumab (Actemra) withdrawn - update
Hello all who responded to my last post about the above. I have now been told I can have three more months supply but they cannot tell me if ...
GCA NICE Recommendations UK Tocilizumab
nice.org.uk/guidance/ta518/... Paste and Go in your URL For Refractory GCA Patients, your country posted th...
Will Humira help PMR?
" From rheumatology notes: " 64 year-old gentleman with PMR and a history of reactive arthritis ( with inflammatory low back pain, HLA-B27+, ...
Very Important information for GCA sufferers
Hello there, I’ve not posted for a few months,- sorry, but I think this is important information for anyone with GCA I was originally diagnos...
stop/start MTX problems?
Whilst she agreed that the MTX is probably not doing anything for my RA the wants me to keep going for 2 reasons. Secondly she said that if M...
Question about increasing tocilizumab (Actemra) dose schedule
The NHS system is a disaster for RA, and I'm wondering how I navigate needing to change medications....
Tocilizumab working - but what a price
Tocilizumab eventually started to work for me about three weeks ago - after 4 months. My blood tests bear this out; my ESR and CRP have been ...
Tocilizumab and rash
For the last nine weeks I’ve been self injecting with tocilizumab..... and really pleased with the result....
Steroid sparing drugs.
I have read some of the posts from folk who are now taking steroid sparing drugs ( immunosuppressants ). I wonder how effective they are....
Advice please pmrpro
Pmrpro as an expert, can you explain this? I've just had an ultrasound on both temples which is not showing active inflammation yet I've had ...
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