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Michael Crawford & M.E. dailymail.co.uk/femail/...

just watched a programme about michael crawford and he had to stop performing for 7 years as he had M.E. he went to new zealand to recover.

I think they said he'd just been at the peak of fitness in Barnum for three and a half years and was a few days into a new show when he took ill.

If only there could be more "known" people speaking about debilitating conditions.

sandra.

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Did he say what he did in New Zealand to get better?

Jane x

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no. I'd have liked to know more.

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I wonder if they have a better grip over there of chronic viruses like EBV or HHV6 which are often the cause of ME/chronic fatigue and consequently use antivirals. Jane x

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auckland

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Or maybe he took some time out in a quieter country and in fresh air to simply allow his body to start to sort itself out?

I so wish I had the money and support to be able to take time out and just rest. I think I'm heading for burnout, not from a demanding job these days (that is oh so in the past!) but from dealing with ill health, the NHS and having to make constant decisions on what to do each day with my limited time - all while watching my home and relationships decay as there is not enough energy to go round.

Hear, hear to more well known people speaking out if they are ill rather than giving the impression that they are and we should be superhuman. It says so much about the shame surrounding these illnesses that more don't.

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yes sandi i totally agree while i feel for michael and the rest of ill people it would be better to be ill PLUS afford to go to new zealand or switzerland to rest in in clean air- but alas as more and more money is squeezed from us, the less we have to eat let alone eat properly and organically as we like to eat, plus thecountry is in such dire consequences---- and filthy-- have you ever seen so much spittle on the pavements, its green lumppy and VILE when wet but when it dries and the spores fly up and we breathe them in-- its disgusting--- no wonder TB is back an di dont know about you but watching PARLIAMENT QUESTION TIME with david dimblebe-- nothing make sme more crossser when you get some big I AM... ditating-- ie... a woman on the panel who would not allow other s to voice thier viewpoint on vaccinations- the question was should child vaccination be compulsary. and the answer from a youngish doctor YES, AND THE WOMAN ON THE PANEL, and so forth as they said- DOCTORS AND SCIENTISTS KNOW BEST---an dthat the MMR was safe- WELL, its a matter of personal opinion, if you want your kid vaccinated but i dint think mums should be forced, things like tb and polio but when it was the one in discussion mmr surely a mum has the right to have whats best yes or no for her own kid? my kids had tb and polio but i didnt have them done for measles , whooping cough, they had these illnesses and thankfully got thru it but i feel for mums today, there is so many more horrible bugs illnessess cropping up, my eldest son was taken to hosp sunday at 5am, the ambulance had already been out at 2am, but he was so ill by 5am that they took him in an dgave a drip after so much fluid gone in sickness and D' he had adrip to put the fluid back, but both the doctor in hosp an dthe ambulance men said-- there are too many horrible types of bugs around now..... AND i was gobsmacked when the person who answerd an dtook details from the new 111 service asked me if he had ADRENAL INSUFFICIENCY as he had sickness diarhorrea vomiting , , weak lightheaded and dizzy---- oh hell i thought- you cant get diagnosed with thatanyway---- and how would i know as these things are not recognised,and since i know i have it and possibly endocrine runs in my family who knows-- he is still weak , so ihope it is just a normal englisg bug .... but back to vaccinations and the right to decide?

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that was meant to read things like tb and polio should be done-- an d i had my kids safeguarded against tb and polio but i dint have them vaccinated for measles.mmr or whooping cough- my own writing doesnt make sense at times..

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Your poor son. I hope he's much better now. Hope you got them to test for adrenal insufficiency if they suspected it - amazed but maybe whatever computer programme the operator was using comes from somewhere where they recognise it!

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well i never even thought to ask them to test for it, but if he doesnt get well soon i will have to sort that out- my brain sometimes annoys me-- i just dont think- what an opportunity i had and bnever even twigged it... i am so crodd now, but i am hoping itis either the scampi he ate or a bug that goes, i could bear him to be like me.. thanks sandi.xxx

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crodd meaning cross....................

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I like the word crodd. I think I may use it - it sort of sums up being cross with brain fog :)

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that has made me laugh a new word crodd!

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Hi Sandi, I know exactly how you feel. I,ve lived with mild/mod CFS since 1996, I had to give up a very well paid career because of it. Then in 2001 I was diag with an underactive thyroid, in 2006 High Blood Cholesterol. Recently been told my Kidneys are slightly damaged (found out this is because of the meds I take for my Cholesterol),I am just turned 60, but feel like a very old person most days - its awful. The only way I can describe my tiredness, is like someone has just switched off the light, so know how you feel. You sound alot younger than me though, so you have my sympathy. I have learned to live with my ailments, and do get times when I feel hunky dorey, but whereas I was getting say 4/5 weeks at a time, now im lucky to get 4/5 days, but perhaps that,s my age as well. I do hope you feel better soon, and I agree, if there were more Celebs speaking out, perhaps more research would be done.

Take Care, Best wishes, Kath x.

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Hi kath

Do you think you had M E all along or was it something else?

Si

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When I became poorly in the early nineties, they did check me for everything under the sun, before diagnosing my ME/CFS in 96. I new someone at the time who was also diagnosed with ME, and I have to admit I was horrified, as he was wheelchair bound. I on the other hand just had the extreme fatique. I was quite sickly as a child, having tonsilites practically every other week in the winter months,and I had wires put down my nostrils into my throat for about 2 years when I was 15, my tonsils were removed when I was 21. ME/CFS I know, is linked to your immune system, so perhaps all that happened in my younger years may have contributed to my ME/CFS. I was diagnosed at the age of 43. Do I think it was an accurate diagnosis, yes I do, as I have the brain fogging that is also associated with ME/CFS. Kind regards, Kath

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yes but what is M.E/CFS...it's just a name! Whats gone wrong at the centre of all this!? Brain fog goes with adrenal fatigue and hypothyroidism....

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I sound young - whoopee! But am only just behind you.

It sounds like you have a similar path to mine. Hypo diagnosed five years after having to leave my career due to CFS - and I'm just gradually getting fewer good days when I can do any brain work or drive, recovery time too getting longer. Like the light is gradually being turned off.

I'm not sure I've really accepted it all, am still sad over all I've lost and all I can no longer do that I so would like to do.

Just dream of an answer..

Sandi x

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It is truly upsetting Sandi, I know, as I have friends my age that ive known all my life.... who do actually have a life!. I try to convince myself that my age has something to do with my ailments, but when I see what they fit into their lives, I know this is not the case. But what can we do......as you say just dream things will get better. Take care of yourself. Kath x

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Sandi, that's the exact word I use, feel my body is on burnout, I worry how long it can continue with this last 2yrs feel like almost total collapse but I'm fighting it all the way.

Take care all Twinks x

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Did Barbara Windsor, stop for a while from eastenders with me. ?

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I believe Martine McCutcheon [sp?] might have had it and one time.

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It is certainly treated far more seriously in Australia. A friend of mine with long term M.E

, like myself, emigrated and they found an endocrine link with hers and have done great things to restore her health.

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I'm surprised she got accepted for emigration with these health issues. Having done it twice I know how tough they can be.

Good for her. ;) It should be the norm here too.

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how do they test for that?

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I agree with you. It would be great if more people spoke out. I notice he hasn't spoken out for years. It was just like that at my job. If I had ever given that as an excuse for being off work, I would never have got another job. As it was I lost mine in the end anyway.

Where did you see the programme?

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My son had ME. We used Reverse Therapy. Thats reeducating your hypothalmus, and it works!

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morgana--- your name says it all- wow --- can you give me details ,i am all for unusal out of ordinary stuff pm me if you would thanks....

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Could you be kind enough how one goes about re-educating one's hypothalmus?

Thank you!

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Check out the guptaprogramme.com - amygdala retraining and see what you think - I think it's like the lightning process by another name and i'm not convinced - the whole Harley Street thing is also very scammy - anyone can set up to have a consultancy there nowadays, they hire out rooms to any practitioner for consultancy - The Optimum Health Clinic did that too, a similar kind of scheme. I'll bet the registered business address ISN'T actually Harley Street.

If you look at the 'contacts' on the website for individual practitioners they mention working through emotional issues and hypersensitivity - i.e. it's mental based stuff that's causing your physical problems. There's obviously a link yes but whether that's all it's cracked up to be???

I paid a lot for one of these kind of 'retraining' programmes a few years back and it didn't help. It all depends what the ACTUAL CAUSE of your 'CFS' is. I don't believe ME is synonymous with CFS.

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Stormylove l doubt it was on her records. Nearly impossible to be taken seriously in my exp. with M.E. l've been ill for 21 years, but didn't get diagnosed until l fell pregnant 7 years ago. Despite a massive report from the M.E. place in Romford, all it says on my notes is 'Chronic Fatigue episode during pregnancy' FFS

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I wonder if warmer climates help, I know I feel slightly more energetic when the sun shines and it has taken a hell of a long time to get here this year. When my partner and I were first married in 1973 I wanted to emigrate to Australia, we never got there, he didn't want to do it. I often wonder if we had, would I have developed Hypothyroidism, and even indeed would he still be alive now having died of bowel cancer 17 months ago. An outdoor active lifestyle all year round has to be more beneficial for anyones health.

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I'm sorry for your loss, my Dad had bowel cancer.

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Thank you sandra99b, so am I.

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Hi - the New Zealand ME Association has a very developed base and back in the 90ties Dr Leslie Simpson came to talk to the local ME Support Group my husband and I used to run. He was on one of his regular overseas tours and spoke so convincingly of his convictions regarding the composition of the blood of ME sufferers compared to 'normal' samples. He has written a book called 'Blood Viscosity Factors' and particularly recommended at the time solutions which raise the oxygen carrying potential of red blood corpuscles. One of his favourite remedies is Evening Primrose Oil.

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I don't do twitter but someone who does could ask Michael Crawford if he has an account.

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This is interesting. The one very abnormal blood test I've had was for IgM which in my case was something like 15 times higher than norm. They said it would just make blood sticky (think that might be more viscous?) but have otherwise continually ignored it.

Will see if I can chase this book/ more info. Thanks.

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what channel was Michael on, is it poss. to watch the prog. on iPlayer? (which I'm not familiar with)...

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bbc 2 and I think it's on the bbc iplayer.

sandra.

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