Hello! I'm very new to this, a family friend has told me for years to research properly about my graves disease, and only recently I have become very worried about my condition..
I have been hyper and hypo a few times over the years. I was diagnosed with hyper at 14, I was disgustingly thin and weak, couldnt sleep for over a week at a time, hair fell out in clumps, my eyes were so wide I was accused of abusing drugs at school simply down to how I looked, and obviously so tired I couldn't function properly.. My periods stopped completely, and with my immune system being so low I was ALWAYS poorly, constantly sweating, i was having ice baths before bed, and had a constant shake and I couldnt stay still for longer than a few seconds.. It got to the point of suicidal thoughts because I thought I was simply just going mad and it was all in my head!
- I'm not too sure on dates or amount of thyroxine and other tablets I was taking because at the time I didnt understand, and wasn't explained to properly exactly what was wrong with me! I was basically told my body is working too fast and my tablets were to slow it down to normal, and that I was at risk of a stroke and/or a heart attack.
I was going for blood tests nearly every 2/3 weeks to keep track of my t4(i think?) levels! (i apologise I'm still not clued up at all)
The doses of either propananol/carbizamole/thyroxine (ive been on them all!!) there were some more but ive no idea what they were called, where changed a lot to get these levels that weren't right to a normal level, until i came off the tablets for a few months. then I was putting on a LOT of weight, I was constantly sleeping, freezing cold, and was the total opposite to before, to then i was told i was then Hypo?
My levels eventually got back to normal after taking thyroxine i think for around a year..
then levels changed and my levels went crazy once again and I was given beta blockers, I was then hyper again after a few months, this was last May (2012) which was the last time I saw my consultant. I was taken off propananol because they were messing with my mind - or i felt as though they were, I was paranoid and depressed, i was seeing things, frightening myself and the people i surrounded myself with..
I am now taking 20mg of carbizamole a day, and have been for the past year.. I was meant to see my consultant over christmas (2012) but i had to have a tumor on my ovary removed, plus the ovary. And only just able to get an appointment to see someone! which isn't till the end of may this year now, so 3 weeks away..
I believe and feel I am now a little hypo, I'm feeling so down and confused, all my consultants have been nothing but useless, and just giving me all these pills with no information that I would understand properly! I'm very worried for my health, and never had anyone to talk to about it properly and i've no idea what questions to ask! what foods i should or shouldn't be eating, and what will benefit me for the best and hopefully keep my thyroid levels reasonable!
Would appreciate ANY help or advice!
Thankyou for readinggg xxx