Hi I am allergic to T4 and on T3. My specialist has told me there is nothing further he can offer. My condition keeps worsening

I have low thyroid for 8 years.

I now have to use a stick to walk, have severe IB, severe pain in muscles and joints, and depression. There are days I can’t get out of bed, or climb the stairs.

I am seeing an NHS occupational therapist for pain management.. My GP has been supportive but has said there isn’t much more he can offer and that I have had a lot of help already.

I am a single mum to a 13 year old with disabilities and really worried about what happens next and if there’s any other avenues open to me in the NHS and if there isn’t just how to cope and get my head round the fact that I am increasingly less and less able.

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  • I am sorry you are so bad and it is a worry when you have a with disabilities.

    First of all, get a print-out of your latest thyroid gland blood tests and post them here complete with the ranges and someone will comment upon them. It may be that you are not on enough meds to make you well.

    There is also a purified form of levothyroxine which is available for people who are allergic to T4. It is expensive but ask if it can be prescribed.

    Personally, I would go for an increase in T3 first of all as they already prescribe that and an increase may work.

  • Hi I would immediately have a referral to a good endo.Do your research first, not the GP`s choice always. I cannot take Levo and have Armour and since it came out a little T3. Of course, in your position you will need to be sure your GP will prescribe armour, a lot will but now mine1

    Best wishes,

    Jackie

  • Hi BeautifulBlue - I know you posted this a year ago but I just found it and thought I would see if you have found out any more information about being allergic to T3 and T4? How did you find out?

    I was diagnosed about two years ago with hypothyroidism and asked to only use Natural dessicated thyroid medication. I started using Nature-throid. After a while my back started to itch really bad along the bra line. I thought it was the bra but it wasn't. Anyway, my doctor (she's and OBGyn and Endo) tested me for allergy to T3 and T4. they had it in liquid form and injected it into my arm and watched for the wheal. Well I am allergic to it - both T3 and T4. She started me on desensitizing drops that I place under my tongue 2-3 times per day. I've been doing this for over 3 months and I think they are starting to work. My back doesn't itch as much and I'm monitoring all other symptoms in case I start going hyperthyroid (I'm taking 10 grains of Nature-throid - had to keep upping the dose because my body's cell receptor's aren't allowing a lot in (my other story). Anyway, hope this helps.

    Shelley

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