Help and advice please! Underactive thyroid. - Thyroid UK

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Help and advice please! Underactive thyroid.

Cherubhmm profile image
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I went to my GP for routine blood tests and on a follow up appointment I was told I had multiple allergies, high cholesterol and Underactive thyroid. I knew nothing about this condition and the only thing I was told was that I would be on medication for the rest of my life and it would be free! I did TRY to ask questions but to no avail. All I know is that I have to have repeat blood tests until the medication is at a correct level.

I feel absolutely dismal. The level of tiredness I feel is dreadful. I'm exhausted..and I can't sleep! I was put on Levothyroxine 25mcg tablets until my next blood test. I don't feel any different whatsoever. The diagnosis has explained previous symptoms I've had..heavy periods prior to an early menopause, dry skin, depression, aching legs and joints etc. today I'm finding it difficult to even type I'm so tired.

I'm irritated that the GP would not discuss this with me..no advice whatsoever on my high cholesterol (despite heart problems with parents and grandparents). Is there hope that I may feel well again? What level pills can I expect to be prescribed to feel better..I guess that's an unknown. I came across this site quite by accident and would appreciate any advice offered.

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helvella profile image
helvellaAdministratorThyroid UK

1) Get hold of actual test results and reference ranges - printed. You are entitled to these – if you have any difficulty, have a look here:

thyroiduk.org.uk/tuk/NHS_In...

2) Levothyroxine absorption can be affected by many things. We advise you take it well away from food, drinks (other than water), supplements and other medicines. Ideally by two hours. Iron and calcium supplements are especially bad so make it four hours for them.

3) When do you take your levothyroxine? Some people find bed-time better than the morning. Have a look here:

thyroiduk.healthunlocked.co...

4) Do not worry about your cholesterol for now. Many people find that proper treatment for hypothyroidism reduces their cholesterol. And trying to address that at the same time as dealing with levothyroxine treatment can be counter-productive.

5) Doctors seem to love the “for life” phrase. Whilst often true, it seems to be used to beat patients over the head.

6) Always have your blood tests as early in the day as possible. I am able to get mine done at the local hospital phlebotomy unit shortly after 08:00.

7) Skip taking levothyroxine before tests – otherwise you will be showing the peak that occurs after taking it rather than the more representative level over time.

8) Have a look round the main Thyroid UK site. Lots there to read.

thyroiduk.org.uk/tuk/index....

Reassurance – lots and lots of people feel almost entirely better after adequate treatment over time. It does not tend to be a speedy recovery, unfortunately. For some, the path it rockier than for others.

Whatever happens, keep posting, coming back, asking what you need.

Rod

Cherubhmm profile image
Cherubhmm

Thank you for that. I have been feeling so miserable over it all. I had no idea or knowledge on the subject. I take my medication first thing in the morning..a couple of hours before food. My only regret is that I didn't have the offered blood tests years ago as this tiredness etc has gone on for years.

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