Please help - just need to find a local GP who ... - Thyroid UK

Thyroid UK

137,156 members160,846 posts

Please help - just need to find a local GP who will let me try T3 or NDT (preferably NDT).

MazzaM profile image
6 Replies

I'm going nuts here and I've had enough. Can anyone help with giving me the name of a GP that prescribes NDT in my area (Watford)? By private message of course. I am so sick of trying to find out this info, I know there must be a GP out there who will let me trial it at least. I've tried freedom of information requests to my PCT, tried asking all local pharmacies, and I'm coming up against brick walls everywhere. I changed GP's after years with a hopeless one and have made tiny progress with getting my levo increased by my new one (and getting lots of other AI tests done) but have found that he won't even discuss other options for medication. I can go private if I have to, but I don't want to until I have no other choice left. I can't even get an Endo referral as I am not considered in need of one. My TSH is suppressed, (which my GP doesn't like but will allow as I feel better this way), I am holding down a full-time job and I am therefore a success story who doesn't need further investigation. However, I have a RT3 problem (found on a private test, my GP won't even acknowledge it) and I have lingering mental and emotional symptoms, as well as reduced physical function since being hypo (I am 5 years post-RAI).

PLEASE can someone help. I just need a name.

Written by
MazzaM profile image
MazzaM
To view profiles and participate in discussions please or .
Read more about...
6 Replies
shaws profile image
shawsAdministrator

Email louise.warvill@thyroiduk.org who may know of an Endocrinologist near you and then ask your GP to refer.

MazzaM profile image
MazzaM in reply to shaws

My GP won't refer me as he says I don't need to see an Endo as I'm fine. All my results are 'great'. Any problems I have are not thyroid related (he says). He won't discuss it any more. I will send an email though, thanks.

hooper profile image
hooper in reply to MazzaM

Hi MazzaM. I am in the same position as you. I really feel I would benefit from NDT or T3 and would love the opportunity to have a trial on it. If it doesn't work you at least know you've tried. I have asked a local (Devon) pharmacy if they can get NDT and they have told me they can, but need a GP's prescription and I can't get one. No GP at my surgery will consider it an option. It's so frustrating! I sympathise with you and wish you all the best.

Jen

shaws profile image
shawsAdministrator in reply to MazzaM

Your GP is ignoring all your clinical symptoms (they don't know them) and treat them all as separate from the thyroid gland failing.

Despite Dr John Lowe sending a Rebuttal about the BTA's stance on Armour they completely ignored him.

lesleywagg profile image
lesleywagg

I'm in exactly the same position as you, I'm due for a blood test on Monday but they will only test TSH and T4. I think I need T3 but I am petrified to go and ask for it off the doctor because they are so horrible saying its all in my head. My husband says he will go with me so I will let you know whether I am successful or not.

shaws profile image
shawsAdministrator in reply to lesleywagg

Email louise.warvill@thyroiduk.org and ask for a copy of Dr Toft's article in Pulse wherein it says it is o.k. to have a suppressed TSH and also the addition of some T3 to a reduced T4.

When your doctor says 'it is all in the head' say that may be because my T3 is too low. Is my levothyroxine converting to enough T3. Do you know that every cell in my body requires T3 to work and the brain contains the most cells of the billions that are in our bodies. He probably doesn't even know this. Ask him the questions first and see what he replies.

You may also like...

Desperately need to find a doctor who can prescribe me WP thyroid, I'm out and my local GP just gave me a bunch of levy which made me feel..

this hard to get a prescription for WP Thyroid. I have been turned down by several GP's and given...

Consultant said try / GP said can't afford. Help finding good source of T3 online.

me by private message. Oddly enough I am a doctor with a chemistry background .. but no private...

Can anyone help me find T3 without a prescription?

me T3 because she says it won't help, even though I'm begging her to just try it because I'm so...

Help please. Reacted to levo and seem same on ndt. Will t3 be better for me?

groundhog day in that what I can take and what I need are not the same. Do you have any ideas? Do...

Help with converting NDT to T3 please

feel well but even though I have calculated the equivalent in T3, and tried it, I feel even......