Had scary results in January TSH <0.05 FT3 7.3 (ref 3.5-6.5) FT4 26.00 (ref 11.4-23.0)
Behind my back my GP sent these results to an Endo I have never seen, who wrote back I need to reduce my medication. To be honest I have never got rid of any hypo symptoms since treatment started in August 2011. I did however start to lose a little weight, 10 llbs in total (over 3 months) which I was really pleased about. Now with mucking around with the dosage it's gone up by 5llbs in a blink.
I see Dr Skinner and I reported back in December that I felt I'd slipped back on 175mcg so he upped me to 200 mcg. I didn't feel anything positive with the rise. My GP as predicted told me to cut back to 175mcg. On the day I did I started sweating profusely especially at night, and started to get double vision again. I only lasted 2 days at the lower dose, then I alternated 175 one day 200 the next for the next couple of days. I got so weak again and the sweating was making my hair wet and leaving the bed sheet damp, my fingers swelled up more too. Also constant double vision, eye pain, infact they've gone very bloodshot again. This last week I've had enough and gone back to 200mcg. The sweating has stopped. I honestly think the Levo just pools in my blood, I never feel it's getting anywhere. My tongue is just as enlarged as when I started in 2011, the hip pain has been just awful, foot and leg pain exactly the same, skin very dry etc. I get up at 7.30, I'm lucky to get 4/5 hrs sleep. By 11am I am fighting to stay awake. No energy until late at night.
I have had a lot of trauma in my life, so now I'm thinking I have an adrenal problem. Could this be stopping the Levo getting absorbed too? I have diarrhea a lot, plus take Cimetidine, so a battle to get anything into my system.
I've now had enough of Levo and when I see Dr Skinner on Wednesday I'm thinking of going onto NDT. I'm worried about how much this is going to cost, money is very tight. Is there any evidence that NDT can help to fix your adrenals along the way?