One of these bad days...

[sisi]

One of these bad days...

I wish I had more energy, just enough to be able to take my daughter out to the park and run and play with her.

I spent all my day yesterday in pyjamas as since the very first minute I woke up I felt pain in my whole body, felt drained with not a drop of energy.

I dragged myself around the flat trying to do a few bits.

Thankfully my partner made lunch and dinner which I appreciated very much as I just couldn't move off the sofa.

And the doctors say it is me just moaning...

I have got an appointment to see an endocrinologist in a hospital in central London in April.

Finally it seems ti have found a GP who kind of un depressants how I feel, my frustration, my pain, my desperation for willing to feel better.

We is the one who referred me to this doctor, as I had requested - recommended by another thyroid patient-.

I really keep my hopes this doctor will be willing to help and prescribe me the natural treatment, t3, as t4 clearly does no good to me at all.

I went to see a nutritionist last month, also in London.

This man, kindly explained me in detail how our thyroid hormone works, where they com from, where they change from t4 to t3, where this takes place, what is free t3, reverse t3, etc.

He gave me a diet, what's I should eat and how to combine the different groups of of food and what supplements to take.

I must say I am feeling improvement.

But for some reason I went 3000 miles backwards, yesterday was a really bad day and today I feel like its "hangover".

I still feel tired, in pain, my joints, my body.

I just don't know why, I only want help.

I said to my partner I was feeling very tired and in pain, but just once as I don't want to worry anyone. I don't want to be pain in the back for anyone.

This is all for today,

I am really hoping I will have some energy this coming week as I need it for work.

[Teddysmum43]

I am right with you there Sisi. Just want some help but need my hand held as I have no energy whatsoever. Lets both hope we can get the help we need.

[sisi in reply to Teddysmum43]

Thank you for your comment

I am sure we will get there. We will find the right doctor and the right treatment.

Take care

[shaws Administrator]

Many of us, even those who have been stable for a while sometimes have 'off' days.

Hopefully, the Endocrinologist you will see will be good and get you on the road to recovery.

From the 4th month to the 17th month on Levothyroxine I had constant pain. Muscle and joint and every movement caused more pain. I am now fine, pain has disappeared but it is a matter of trying to search for a doctor/endo who can prescribe what suits you.

I don't know if you've seen this video and hopefully it will make things better for treatment/diagnosis.

thyroiduk.healthunlocked.co...

[sisi]

Thank you Shaws

I started watching it yesterday, just finished now.

Will this change anything in England?

Fingers crossed I will get the help I need in April.

Otherwise I will have to save up enough money to go privately.

But that can take a while unfortunately

Let's hope the best!

Brilliant video, brilliant women, fighting for this condition to be recognised and to be taken into account.

Let's hope doctors will open their eyes.

[sisi]

Sorry for the mistakes/wrong words. I used mobile to write the text and it always comes up with different words I didn't check the text before I posted it.

Today is Monday and I still feel tired

Has this happened to anyone before?

I mean to have a really bad day, a body pain/exhaustion for a whole day, and still recovering for after ?

[Barbaraj]

Hi Sisi - I have such episodes that are so frustrating! This latest one has left me feeling like this every day for over a week now - the house is a tip and I can't muster up the energy to go for even a short walk. A trip to the supermarket sees me lying on the sofa in recovery for hours. Still, I tell myself at least I have two legs and arms and there are many not so fortunate. It's the only way I am able to cope so.I try to accept it as getting upset at the limitations it imposes on my life, leads me into depression and you can guess what my GP would diagnose if I went for a consultation then! If it doesn't dissipate then I'll have to start looking into my replacement hormones and their dosages again! I hope the endo will be an enlightened one and will help you on the path to wellness.