slowed heart rate / lowered Levo dose

[thepanicpigeon]

Hi everyone, new to the forum and would love some help/advise as my anxiety is spinning out of control.

been diagnosed with underactive thyroid since last October, original levels were tsh 22 (0.27-4.2) t3 4.8 (3.1-6.8) and t4 9 (12-22) I was put onto 75mg of Levo and that's the dose I've been on ever since.

previous to be underactive I do believe I had a nasty period of being overactive for some time symptoms were catastrophic and included panic attacks, hives, anxiety, insomnia, palpitations, heat tolerance... it was an incredibly frightening time of my life where I felt completely out of control of my body and I now even suffer a little ptsd because of what happened.

my levels have been improving until around may this year I noticed I started feeling anxiety again and het intolerance, my levels were tsh 1.8 t3 5.3 and t4 17 (all same ref ranges as above).

the doctors said to lower my dose to 50 and see if I improved, so I did I then had another test in the July and my levels were tsh 3.11 t3 5 and t4 15.7

so they left it at that as I felt good and symptoms had gone, I've recently had another test and my levels are as follows on the tsh 1.91 t3 5.9 and t4 19 (this is with lowered meds to the 50mg)

again I was feeling jittery, getting insomnia and also heat intolerance so they said to lower to 50/25 so that's what ive done, but ive recently been experiencing a slower than normal heart rate, it sits at just 44bp sometimes when sat down which worries me.

im feeling tired and sluggish and fatigued but im also having anxiety attacks and hormones rushes plus heat intolerance again.

I don't know if I need my meds upped or lowered im completely confused and I hate feeling like this.

I have been losing weight throughout all of this (intentionally ) lost 2 stone so far so I wondered if that was the cause of needing to lower the meds, I also went gluten and lactose free some months ago and my antibodies have really reduced as follows

tpo have always been normal but always had higher thyroglobin

at diagnosis - 456 (0-115)

may 24 - 128 (0-115)

oct 24 - 127 (0-115)

im so scared to end up over active again as its caused me significant trauma but the health anxiety is creeping in thinking my hearts going to stop.

any help would be a appreciated xx

[Regenallotment Ambassador]

I hear you, I have a similar issue with staying on a stable dose, my levels move all by themselves.

You are doing all the right things, your diet changes will perhaps improved your absorption.

Keep doing 3 monthly blood tests and adjust as necessary, monitoring low resting heart rate is helpful. I know I’m over replaced when it goes towards 60 and under when it’s under 50 but we are all different.