Carbimazole my experience

[ZiggySta]

Hi there, I have Graves disease. I was very hyperthyroid 2019 and they took a long time to work out what was wrong. Sent me to Cardiology first who after various tests found it was my thyroid I started on 60mg Carbimazole, went down to 40....stayed on that dose too long, which was my choice...which then sent me very depressed , sluggish and lethargic. Went down to 20 then 10. I stayed on it for a year in total ending up on 5.. It did work and I have been in remission ever since. Elaine Moore has great information. Take care and get your bloods done again if you think you are hyper bfn

[pennyannie]

Hello ZiggySta and welcome to the forum :

Well that's good news isn't it :

I found Elaine's website and books most informative but my Graves hit in 2004 and I blindly followed the medical advise and had RAI the following year and only found Elaine 10 years too late for me when very unwell in 2014.

Once triggered you will likely be more prone to further episodes so just accept and if allowed repeat the AT drug treatment protocol.

Work on reducing your own immune system response and try and identify your personal triggers - stress and anxiety tend be common triggers but no two Graves patients have the same journey and likely why Graves is so poorly understood and badly treated.

There is an option to Carbimazole should you need it - Propylthiouracil - PTU :

The most recent research is suggesting the longer the patient stays on the AT medication the better the long term outcome for the patient :

pubmed.ncbi.nlm.nih.gov/338...

Just in case :- ncbi.nlm.nih.gov/pubmed/306...

and yes in a patient centred health care system you would expect regular monitoring and titrating of medications as a given.