Having spent 18 months on T4 mono therapy and still feeling rubbish my FT4 reached 78% in the range but FT3 was still lagging woefully behind. My TSH was under range and trying even a small amount of T4 on top of 125mcg of Levo made me feel very over medicated so I’ve taken the plunge and I am self medicating T3.
I’m only taking 3mcg twice a day to go “low and slow” following advice from here. WOW! 😳. I can’t believe the difference. I feel so energised it’s incredible. I feel like I did 4 years ago before all these horrible hypo symptoms took over. Can this really work so quickly (5days). In fact I felt an immediate difference on the first day! Think of all the hypo symptoms there are ……….. all gone.
However, I have felt a bit too “wizzy” if that makes sense to I’ve had to stop the second dose in the afternoon.
So just 3mcgs a day.
Is it really that powerful? How is it making me feel so energetic and clear headed? I’m really interested to know how this has happened.
It is remarkable stuff and hits the spot quickly as it is instantly available, I found the same, it is quite amazing how a little bit of what your body needs can return you to your 'old' self within hours isn't it, especially when you've lost all hope of seeing that person again...
Funny your comment about 'wizzy' Citrinesun and I have renamed Roma 'whizz' as it seems very fast acting but doesn't last 😁
I think it's down to how your receptors respond and how much they have shutdown due to lack of T3, yours are obviously soaking it up and putting it to good use... so a little goes a long way?
You may also find that your ability to convert T4 will improve if not restricted by genes...?
Or you might find as things settle in you will need a little more... like you say slow and steady, listen to your body
thanks Eeyore100 . Did you find your face was flushed?
Do you think the wizzy feeling will ease with time as it’s affecting my sleep a bit ?
I’m very sensitive to medication and have always had to titrate slowly
I think everything flushed to start with as the life literally flows back into you! Sadly the initial euphoric hit eases as your body adjusts to a steady flow 😊much like wine...
I ended up needing 15- 20mcg ( still fiddling) but would add a little and wait 1/2 weeks for things to settle as like you say it is much faster than waiting for T4 to level up.... are you keeping an eye on your BP / RHR and base temperature? I find these a really useful gauge of how things are settling 🤗
Like you say maybe stick to am to start but weirdly you might in the end take some before bed as it also helps you sleep... I took a sneaky 5mcg before bed last night and had a great nights sleep
Thankyou. Yes BP/pulse all still the same. Low. No palpitations. Just zingy. I will stick to 3mcg until I settle then up it. Think I’m too scared to try night time 😵💫
call me 'overcautious' if you like ( you wouldn't be the first ~ my driving instructor voiced the same opinion .... but that was in 1980 something and i've never come a cropper and i drive 'big trucks with 2 .5 tonne trailers' very well thankyou )
if "3" feels good.... don't make the mistake of assuming that 6 will necessarily be an improvement... personally if "3" made such an improvement to me as it has done to you ... i'd give it a few months and see it that carried on before fiddling with it .
Absolutely, only add if you feel yourself dropping back 😉
You like me relish the precision trailer reverse with a group of disbelieving onlookers…Little wins eh 😏 haha
must admit i do enjoy the look on their faces when a small female scarecrow steps out after fitting it between their badly parked BMW's and the gatepost.
Oh yes! 😏[smirking]
thanks tatty. I agree wholeheartedly. I too am a very cautious person. I’m very happy with this dose go far. I actually could weep it’s made me feel so alive !!!!
you could be like 'a real person' again..... that would be novel .... enjoy
…. Instead of a zombie 🤣
Can’t agree more with tattybogle comment. I think/I am sure I somehow managed to overlook precisely what she says AND I managed to do it twice. I felt this pressure? to increase my 2.5 mcg per day, when in fact I was already doing very well. I still can’t really understand why I did that. It’s positively weird. I clearly did not fully appreciate what was happening. I also found it difficult to believe the quick improvement - almost immediate. I have had to stop it altogether for the moment because of heart issues. If only I had not increased, I might still be getting the benefits (in saying that my muscles have remained a little improved - I can’t find anywhere that intimates that is possible) but now I am back at square one. DO NOT OVERDO IT!
it's easy to get seduced into thinking we must need more than than 'a teensy weensy bit' of T3 ... partly because everything you come across in print says that "the average thyroid gland produces 80% T4 : 20%T3 "
But that figure was not based on any one real individual.. it was based on 14 individuals whose thyroids all produced significantly different ratio's.
80/20 was just the mathematical 'mean/ average' of those 14 people.
In reality their actual results look like this. Some make teensy weensy amounts of ready made T3 ( person 14).. some make shed loads (person 3)
It's is just as likely that you and SarahJane are the people who made a teensy weensy bit of T3 when healthy , as it is that you are the ones who made shed loads.
(and it it turns out you only need teensy weensy amounts of T3 to feel healthy again then thats a definite 'win' on the financial / supply front.
that makes complete sense. It may be in a few weeks months my body asks for a bit more T3, but it may not 🤷♀️. You were right! Slow is best and listen to your body
I have had to think about this overnight. There is a lot of mention about where our Frees are and where they should be. This info for T3 flies a bit in the face of that. However I can see it’s a fact from this info. AND it makes sense as to the individualisation we often talk about on the forum. Really good information. At the moment it restores some of my thoughts on T3.
I’m still on the 3mcgs and I’m taking slowly as advised here. My body has spent 4 years deprived of thyroid hormones ( particularly T3) so it will take time for it to recover.
Yes mine much longer. It will be ironic if after all these years I need only a minuscule amount of T3!!!!
well I hope that’s the case for you. My GP provides the Levo and I self source the T3. ( GP doesn’t know about the T3 and I have no intention of telling her yet)