I’d be so grateful if someone could help with an opinion on my latest results. A year ago I used Monitor My Health for T4,TSH & T3. I had been on Levo since 2015 and 100 mcg for some years. Because I was experiencing some symptoms around joint pain, inflammation, temporary high -parathyroid level results and all manner of things, an Endo said it may be worth reducing my dose to 75mcg to see if it helped with the joint issues. Now I’m gaining weight rapidly, having increased dry eye issues with bleoharitis, sometimes feel exhausted and have been falling to sleep sitting up in the evening and my hair is falling out. As well as scrambled memory and problem just maintaining focus. Just had another blood test done myself as the GP did one for TSH only 4 months back and said all is fine !! They refused my request to have T3 and T4 checked.
I’m also 55 so I realise I have peri-menopause that is probably involved here somewhere altho my GP doesn’t even appear to take that into the equation to help me.
The thing is, I was shocked to see the TSH rising , my T4 rising but only by a small amount and my T3 the same.
when I questioned it, they said well it’s within range and as they think I had De Quervains following Thyroiditis and a massive delay in being diagnosed back in 2015 ( cause unknown ) they say probs my thyroid gland has repaired itself .
Thank you, I have read the long list of information before and do try to adhere to the advice in it when I can - all be it battling with unhelpful clinical professionals. I believe they tested antibodies when I was finally diagnosed. Don’t have the results if that any more, they told me it was “ok” .
They tried to tell me I could only have TEVA in 75mcg but I refused and insisted I have 50mcg Accord ( same brand I had been on for many years) and the extra 25mcg by Wockhardt. There has been an issue about this every time I need a repeat prescription - I’m so fed up with it. Going between GP/ Pharmacy2U or other Pharmacy whoever will get it in for me.
I was under a rheumatologist who sent me for an extensive list of blood tests ( not Thyroid ) but he told me my Vit D was ok and so was my B12 . I questioned if it was active B12 and he said it’s the same thing. I questioned Vit D as it was 73.1 (50-350nmol) so I felt this was too low and he disputed this with me.
I have been taking a range of supplements for some time now.
He also did tests for Lupus and I had a whole body nuclear bone scan etc but nothing came up conclusive except synovitis left foot and upper body inflammation.
Perhaps I should get my blood test done again to cover more vitamins etc ??
I don’t know where to go from here really except start looking more closely at hormonal testing - as they have more or less told me there’s nothing wrong and to get on with it. I wouldn’t mind, but I hardly frequent the GP if I can help it as they’re a total let down for assistance.
And RBC has been above range 5.2 or 5.3 10*12/L (3.8-4.8 10*12/L ) since around 2018/19 - I don’t know if this is relevant to know. I constantly ask about it , but it seems to irritate them my asking and I don’t get an explanation why this might be.
I can’t find anything on Ferritin on any of the blood tests .. and I’ve had loads.
Prior to Covid they were investigating hyper-calcaemia and although I had already been taking Vit D daily for about 2 years prior, they just said I should have the prescription version instead 1600 iu per day . It has never made any difference as you can see from my Vit D blood test result. Paid to see an Endo privately in London and he repeated a blood & urine test and said levels had come back down so it didn’t confirm hyper parathytoidism. No follow up after that and I’ve run out of money to keep paying.
The Endo noted my skin is thin and fragile .My blood vessels are weak in my hands / fingers and will rupture/bruise vessels easily with normal activity at times. But then in 2020 I suffered a prolapsed disc in C6-7 and this as a result has affected nerves in my upper back-shoulders/arms and hands so other medical consultants say it’s likely to contribute to that, although my hands were going like this long before the neck injury.
Thank you Slow Dragon, I will try to get those done again. Just to update, I bought a simple Ferritin test to do at home, I realise this may not be as accurate or as detailed, but I was curious and needed something to back up my request for a blood test from the GP , and the result was negative / insufficient. I have now got an iron blood test booked through the GP but earliest possible was 12Jan. So that’s quite a wait by the time I will get any results back. Should I take an iron supplement of some kind in the meantime do you think ?
Also I resorted to trying B12 and Folate transdermal patches instead of oral supplement because I don’t know if Im absorbing sufficient nutrients through the gut. My B12 and Folate were tested but they said they’re fine. I thought they were a bit low for someone who had been taking supplements for a few years. What’s your opinion / thoughts about trying to use the B12/Folate transdermal patches - if any ? Thank you so much 😊
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)
Thorne currently difficult to find at reasonable price, should be around £20
If you want to try a different brand in the meantime, one with virtually identical doses of the ingredients, and bioavailable too, then take a look at Vitablossom Liposomal B Complex. Amazon sometimes has it branded Vitablossom but it's also available there branded as Yipmai, it's the same supplement
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
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Help, please. Levo lowered and BP rising again. 
Weaning off Levo help please + test results
Double my dosage of Levo?
Different labs different results. 
Latest results after dosage change
