Understanding results : really hope you lovely... - Thyroid UK

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Understanding results

Tiggywoos profile image
14 Replies

really hope you lovely people don’t mind me posting on here it’s just you’re always so helpful! I haven’t been diagnosed with thyroid problems but wondered if anyone could say if these results are ok as I don’t trust drs ! (Sorry) 😳.

TSH 1.35 (0.27 - 4.20)

FT4 12.9 (12 - 22)

FT3. 4.2. (3.9 - 6.8)

Thanks ever so !

bloods taken always in the afternoon if that helps

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Tiggywoos profile image
Tiggywoos
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14 Replies
TiggerMe profile image
TiggerMe

Hi Tiggywoos! The great and good will ask for you to take a pre 9am blood test as this is the most accurate... then they will fly into action 😉

Tiggywoos profile image
Tiggywoos in reply to TiggerMe

Fab thank you 🙏. Will I need cortisol too ?

TiggerMe profile image
TiggerMe in reply to Tiggywoos

Probably not to start with? Just a repeat of the above would be a great starting point 😉

If you have other results already add these into your bio

Regenallotment profile image
Regenallotment

When you post the next results also let people know your symptoms and fill out your Bio a bit. It’s good to know what someone is struggling with most to be able to help. 🦋💚🦋

SlowDragon profile image
SlowDragonAdministrator

TSH would be higher in morning, though unlikely over 5

FT4: 12.9 pmol/l (Range 12 - 22)

Ft4 is only 9.00% through range

FT3: 4.2 pmol/l (Range 3.9 - 6.8)

Ft3 only 10.34% through range

Both Ft4 and Ft3 very low

TSH should be higher for such low thyroid levels

Suggests either low vitamin levels, or possibly central hypothyroidism

What’s your diet like

Are you vegetarian or vegan

Or gluten free or dairy free

When were vitamin D, folate, B12 and ferritin levels last tested

What vitamin supplements are you currently taking

Have you had thyroid antibodies tested

 

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally just before 9am

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Tiggywoos profile image
Tiggywoos in reply to SlowDragon

this is so awesome thank you !

I’ll post proper reply later with other test results

Tiggywoos profile image
Tiggywoos in reply to SlowDragon

ok dug out my most recent results

Medichecks

Thyroid anti bodies. 12 Range <34

TPA. 17 range <115

Vit D 88 range 50 -200 (I take 2000 daily)

Iron 9.6 Range 6.6 - 26 started taking spatone iron despite GP saying wouldn’t recommend as I’m not technically anaemic

Ferritin 59 range 13 - 150

B12 (I don’t supplement )

881 range 197 -771

Holotrans 256 range 25 - 165

Diet is gluten free have been for 15 years since severe endometriosis and bowel resection .

I supplement fish oil , magnesium, spatone iron . Slow release c and zinc .

Was advised not to take b12 supplements . I had MMA test and intrinsic factor and they were negative .

I was diagnosed with autoimmune rheumatic disease but I continue to have daily waking headache(like hideous hangover for 4 years ) , always cold , hair loss and awful fatigue . Never wake up feeling like I’ve had any proper sleep . Extremely dry eyes had positive schrimers test . Suffer with hideous burning painful feet at night (Erythromelalgia)

BP generally 90/60

Thanks for all your help it’s so appreciated

SlowDragon profile image
SlowDragonAdministrator in reply to Tiggywoos

Gluten intolerance and endometriosis suggest you are likely to have Hashimoto’s

TPO antibodies often reduce on gluten free diet, but you can still have Hashimoto’s with negative antibodies

Suggest you get ultrasound scan of thyroid

£100 privately if GP won’t agree

thyroiduk.org/help-and-supp...

20% of Hashimoto's patients never have raised antibodies 

healthunlocked.com/thyroidu...

 

Paul Robson on atrophied thyroid - especially if no TPO antibodies 

 paulrobinsonthyroid.com/cou...

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors 

tukadmin@thyroiduk.org

Endometriosis and autoimmune thyroid disease may be linked

kaldascenter.com/blog/endom...

preventmiscarriage.com/endo...

B12 result seems suspect

Paradoxical B12 deficiency linked to being hypothyroid

b12oils.com/paradoxical.htm...

B12 testing….can be unreliable 

ncbi.nlm.nih.gov/pmc/articl...

healthline.com/nutrition/me...

Low B12 symptoms 

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

Perhaps experiment with taking a daily vitamin B complex initially

We can be low in other B vitamins

Have you had folate levels tested

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) 

This can help keep all B vitamins in balance

Difference between folate and folic acid 

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) 

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement

Bowel resection likely to increase chances of low B12

Will tag  Marz she might pop along and comment

Tiggywoos profile image
Tiggywoos in reply to SlowDragon

totally agree about the suspect B12 .. been raised for over 3 years .

Folate (serum) 12. Range 3.9 - 20

Also have lymphopenia .. lymphocyte subsets low . I don’t take immunosuppressants just hydroxychloroquinine

Tiggywoos profile image
Tiggywoos in reply to SlowDragon

I will definitely get thyroids done in morning for most accurate results

this is all ace thank you !!!

SlowDragon profile image
SlowDragonAdministrator in reply to Tiggywoos

Article about Lymphopenia and Hashimoto’s

ncbi.nlm.nih.gov/pmc/articl...

Tiggywoos profile image
Tiggywoos in reply to SlowDragon

Blimey !

TiggerMe profile image
TiggerMe

You are in the right place... we have all been failed by the current system 🤗

Tiggywoos profile image
Tiggywoos in reply to TiggerMe

thank you 😘. Would just do anything to feel like 50% of old self !!!

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