Hi, sorry guys posted about this when initially started Armour 6 weeks ago but struggling soo much… just to re brief
I have no thyroid due to cancer 4 years ago and struggled ever since with Levo etc so asked Endo as last resort for NDT which he prescribed 60mg Armour…stopped Oral Levo 6 weeks ago and started day after on 1 grain daily as advised by Endo!
He increased it by 1/4 two wks ago till next appointment in 3 wks which he will then do bloods and maybe increase again by another 1/4… his thinking was that I may need about 1 And half Armour as was on 150mcg (oral equivalent Levo) before and said I was slightly Over on that dose!
I’m confused by this as he stated 1 grain armour equivalent to 100mcg but on bottle (and seen it somewhere on here) it is 38mcg T4 9 mcg T3 which equates to 74 not 100… so 1 and half will only give me about 110 in total which is far too low!
Am I reading too much into this guys… just soo worried and unwell…feel like throwing towel in… not sure if can tolerate the slow build up feeling soo bad!
Since increasing by only 1/4 two wks ago I fee so fatigued, )used to living with fatigue, migraines, chronic nerve pain as have ME/CFS/Fibro ) etc but this a different fatigue feel like been drugged, all over cramping muscle pain head to toe, palpitations pains in chest n stomach, diarrhoea on and off… worryingly I’m struggling to speak even more than before muscles soo tight in head and face, voice feels really weak… it hurts to speak makes hard/facial pain worse, grinding teeth a lot too, can feel muscles pulling up on face, brain zaps similar to coming off antidepressants etc….strange over heating flashes (not like menopause hot flushes )much worse makes me feel faint, and upsets stomach… So sorry long list hope you all still awake lol
Joking apart at my wits end… on top of 2/3 hours sleep a day… do you lovely guys know if this sounds normal on building up NDT and is it worth trying to preserve, I’m 62 and had to Take early retirement before cancer so not got work to do like lot people on here, but struggling even more to function!
Pharmacist from Gp surgery rang today so told her, she thinks should contact Endos secretary ASAP as Gp probably wouldn’t be able to help with them not prescribing it!
On another note the pharmacist had never heard of NDT so tried to enlighten her with bits picked up on here, she never knew lots people struggle with Levo and different brands etc was going to read up about it so least educated someone!
Know it’s a long drawn out process but Should I persevere (if I can) or contact Endo… Know we all different but does this sound normal to you guys who’s battled with NDT???
Ps persevered for 4 years building Levo up and down many times, was changed at nearly every 4 monthly appointment… but this is a different level of being unwell if you know what I mean!
Sorry for essay guys!!!
Hope you all had lovely bank holiday weekend !