Good evening, everyone. I hope you're all well and have been enjoying the sunshine.
I made a post a few days ago asking about some recent bloods which I subsequently deleted, since I didn't necessarily want the responses to colour my viewpoint going into my consultation as far as possibly making me want to downplay how I truly feel to the doctor (a bad habit of mine). I finally had the first of 2 endo appointments (the second one being tomorrow) today.
First, the good news is that I've actually been prescribed a 3 month trial of T3 on the NHS!! I could hardly believe my ears or my eyes as I went to the hospital pharmacy to collect it. The prescription is only for 10mcg daily (versus the 25mcg I've sourced for myself and have been taking at the instruction of my private endo up until now), but I still feel that this is a big step forward.
That being said though, my feelings regarding the rest of the consultation were quite mixed. I left feeling rather confused by what I was told, mostly. For one, I was under the impression from the forum that TSH, particularly post-thyroidectomy TSH, is a poor indicator of...well, really much of anything. Yet, this doctor seemed to rely solely on TSH and told me that any reading above or below the NHS normal range steeply increases the likelihood of death...Additionally, she said that T3 is honestly not a very useful drug generally because it only lasts in the body for 6 hours (??). To get anything from it, she says, you'd need to take a portion of your dose at least 4 times a day. Plus, T3 readings fluctuate so much that they barely indicate anything unless you're severly thyrotoxic (hence why she prefers the 'more stable' TSH reading).
Moreover, she seemed to be able to explain away all of my symptoms as something else besides the (lack of) thyroid (curiously all of them could be explained in ways that would mean I wasn't doing something right...), and said that there was no way I had poor absorption because my TSH has been suppressed on higher doses of hormone. Towards the end of the consultation, I asked her plainly, "In your opinion, do you think there's anything wrong with me?" and she said that she thinks my body is still experiencing a "hangover" from having been so badly thyrotoxic towards the end of my teens/maturation period, to suddenly having a properly functioning endocrine system. She said that I feel unwell because I never knew what "normal" was supposed to feel like.
So...I'm not quite sure what to take away from her commentary exactly, but at the risk of sounding unfair or stubborn or irrational...I don't think I liked it very much. Please let me know what you think, and sorry for the long read!!