Thyroid condition? Undiagnosed: Hey. (Sorry in... - Thyroid UK

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Thyroid condition? Undiagnosed

fuzlo profile image
fuzlo

Hey. (Sorry in advance about the long message).

I have an appointment with my GP tomorrow to talk about my periods and nails. I want to discuss my thyroid.

I am 26. I eat healthy and don’t smoke and have cut down on alcohol consumption with the means to quit entirely. I have PCOS but my cycles were 35-45 days before July and they’ve since been 81, 68 and 126 days (and counting). I’ve been spotting for around 2 months. As regards to my nails, they appear to resemble “Terry’s nails” which I’m obviously really concerned about. I’ve attached a photo of my nails to show. I’ve been obsessively scanning them for a while and getting myself into a bit of a state!

I was putting a list of symptoms together to make sure I mention everything. I’m pretty desperate now and fed up with feeling rubbish. Also I feel a great pressure to cover everything in a 10 minute appointment.

I’ve realised that a lot of my symptoms and conditions could all be thyroid related. I know that thyroid conditions are common alongside PCOS and I also have thyroid conditions in my family.

Things I suffer with include: PCOS (irregular periods and hirsutism), IBS (bloating and constipation), ADHD, joint hyper-mobility, scoliosis, fatigue, tiredness, cold hands and feet, recurring ear infections/dryness/inflammation, tinnitus, Eustachian tube dysfunction, intolerance to dairy/lactose, depression, anxiety, eczema on my upper arms, dermatographia, possible hidradenitis suppurativa on my thighs and underarms and “Terry’s nails” (pale with red bands across the top all of my fingernails and toenails). I also had an unexplained allergic reaction a couple of years ago that caused me to break out into hives and angiodema.

I had my bloods checked in December and everything came back fine. My thyroid was in normal range but from what I understand this doesn’t necessarily mean anything. I want to request the full thyroid tests. I approached my GP 3 years ago to discuss my thyroid but because my TSH was normal they dismissed it. I’m struggling more since then and I’m worried that if it is thyroid related, I won’t know until it’s too late and I’m really unwell.

Any advice for me? Tips for cramming everything into my appointment tomorrow? Tips for managing PCOS and thyroid? Does anybody have nails like this? I have health anxiety and so dealing with all of these weird symptoms has been stressful. I’ve really worried myself over my nails!

Thank you in advance

35 Replies
shaws profile image
shawsAdministrator

I am sorry you have so many conditions. These are a couple of links:-

thyroidsymptoms.ca/en-ca/hy...

thyroidsymptoms.ca/en-ca/hy...

We seem to have to educate doctors especially if someone has multiple symptoms.

SlowDragon profile image
SlowDragonAdministrator

PCOS, IBS, hives and EDS are all linked to autoimmune thyroid disease also called Hashimoto’s

“I had my bloods checked in December and everything came back fine. My thyroid was in normal range”

What are these results?

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to test vitamin D, folate, ferritin and B12 at least annually

Low vitamin levels are extremely common with autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Low B12 linked to tinnitus .,

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

PCOS and Hashimoto’s

verywellhealth.com/things-w...

pcosdiva.com/2015/08/got-pc...

Hives and Hashimoto’s

verywellhealth.com/thyroid-...

healthline.com/health/ciu/c...

Lactose intolerance extremely common with Hashimoto’s

fuzlo profile image
fuzlo in reply to SlowDragon

Thank you so much for the helpful information and resources.

I will look into Hashimoto’s. Should I request these specific tests from my GP or will I have to get tested privately?

Do you have experience with Hashimoto’s yourself? I’ve heard of it and know that it’s seen in those with PCOS. I’m quite anxious about the diagnosis process and also being diagnosed. I’ve only just started to accept and understand PCOS and now this! So many questions and worries about hormones, fertility and physical health etc.

Thanks

I had my bloods checked in December and everything came back fine.

Ask the receptionists (not the doctors) to give you a copy of the results and reference ranges of all the tests you had done in December, or possibly even all tests done in the last year or two. It is quite common for doctors to say that everything is fine, and then when you ask for the results you discover they didn't do most of the tests they said they would do. Copy any results and ranges you got into a new post and ask for feedback.

An alternative to getting printouts is asking for access to your medical records online. That can take some time because they often release data in dribs and drabs - they don't give it away without pissing people off, sometimes for ages. But you could be lucky.

I think only people in England (and not even all of them) can access their tests, results, and other GP records online. Scotland and Wales don't allow such access. I'm not sure about Northern Ireland. As for the rest of the world, I don't have a clue.

Tips for cramming everything into my appointment tomorrow?

Just a heads up... If you go and see a doctor with lots of symptoms, and papers printed out from the internet, they think it is a sign that you are suffering from health anxiety or are a hypochondriac. I would agree if you said this was grossly unfair, but that is the way UK doctors work these days. Anything to dismiss patients as mentally ill... So try to limit your lists, rather than cramming in more and more symptoms and problems into one appointment.

fuzlo profile image
fuzlo in reply to humanbean

Thanks so much for the advice!

Luckily I have a face to face appointment tomorrow morning. However, it isn’t at my usual or registered surgery - will that affect getting my blood test results printed there? Also do you recommend that I miss breakfast on the off chance that I am offered a blood test there and then? I usually have to travel to the local hospital as they seem to be the only ones who can find my veins! And even they have trouble!

I did worry about the list looking a bit much. Especially as I saw the same doctor in December when my anxiety was particularly severe. I think it helps my ADHD to have things written down so I am clear and don’t forget! But I’ll leave the list if it helps my case.

I’ve been “rehearsing” what to open with at my appointment tomorrow! 😅 I was thinking of saying something along the lines of...

“My main concerns at the moment are my periods, skin and nails. I’m wondering if it’s possibly down to one thing. I’ve always struggled with my skin, joints, hormones and gut health as well as recurring ear problems and more. I’d like to know if there was one root cause for everything. Could it be my thyroid? I understand that thyroid conditions are common with PCOS and they do run in my family. I do suffer with symptoms typical of a thyroid condition.”

I want to mention the allergic reaction I had a couple of years ago too as my allergy appointment was cancelled due to COVID-19. I had hives all over and my lips and eyes swelled up! I’d never had it before.

Is that still too much to cram in?

Thanks!

vocalEK profile image
vocalEK in reply to humanbean

"As for the rest of the world, I don't have a clue." As for the U.S., I suspect it has to do with your health insurance. I belong to a Health Maintenance Organization and we have complete online access to lab test results, past visit information, and can order from the HMO pharmacy.

However, it isn’t at my usual or registered surgery - will that affect getting my blood test results printed there?

Sorry, any answer I gave would be a pure guess. You'll just have to ask and see what they say.

do you recommend that I miss breakfast on the off chance that I am offered a blood test

Yes. I'm assuming that you aren't on any thyroid meds and your appointment is before 10am. Better still if it was no later than 9am.

I’ve realised that a lot of my symptoms and conditions could all be thyroid related.

They could also be the result of poor levels of nutrients. If you are developing a thyroid problem your absorption of nutrients may be affected long before your thyroid shows up that it is suffering. People often don't believe that nutrients are important even if they are rock bottom in the range, but lots of us get huge benefits from optimising nutrient levels.

Period problems can be caused by low in range or below range iron and ferritin (iron stores). Just an anecdote... My anxiety vanished when I optimised my iron and ferritin as much as possible. My depression reduced as well.

tinnitus

Some people can reduce this by optimising vitamin B12 and folate. It doesn't work for everyone though.

recurring ear infections/dryness/inflammation, tinnitus, Eustachian tube dysfunction, intolerance to dairy/lactose, depression, anxiety, eczema on my upper arms,

Do you eat gluten? If you do it is worth giving it up. But before you do, ask your doctor for a coeliac test (it's a blood test). If it comes back positive then you would have to give up gluten permanently. But if it is negative it is still worth trying going 100% gluten-free for three months, just as an experiment. If you get no benefits then go back to eating gluten again. But about 80% of people with thyroid problems have non-coeliac gluten intolerance, for which there is no test, only trial and error.

I’ve always struggled with my skin, joints

Get a vitamin D test. Low levels can cause all sorts of muscle and joint problems.

fuzlo profile image
fuzlo in reply to humanbean

My appointment is at 11.30! So quite late in the morning and if I was to be offered a blood test I doubt I’d be tested until at least 1pm.

That makes sense about nutrients. I’m vegan! And worried my doc will quiz me on that even though I’m really healthy. I have been veggie for most of my life. I’ve always eaten well and made sure I eat all my fruit, veggies, grains, protein etc. I currently eat the healthiest I ever have. When I was a teenager and a student in my early twenties I was fine with eating junk and drinking booze. But now I’m really mindful of eating well and have recently cut gluten out of my diet in a bid to help my hormones. I mainly eat whole foods.

I also supplement with vitamins such as B12, omega-3, magnesium and zinc. For a few years I was finally having periods almost monthly and I was feeling pretty okay and in control of things. I was made redundant in July due to COVID-19 and since then my physical and mental health seems to have spiralled downward. I know stress can cause inflammation and mess with hormones! So far I’ve been putting it down to that but since my nails have changed and discovering that all of my other symptoms and conditions could be a sign of thyroid, I’ve been questioning things again.

I did suspect a thyroid problem 3 years ago but as I said it was dismissed due to “normal” TSH results. Would my blood tests from December not have shown imbalances for vitamin D, B12 and folate etc.? I was told everything was “fine”.

God I wish I could just see an endocrinologist, a dermatologist and an allergy specialist so I could understand what my body is trying to tell me! 🤣

SlowDragon profile image
SlowDragonAdministrator in reply to fuzlo

As vegan it’s highly likely to have low ferritin/iron

Possibly low iodine too....but NEVER supplement iodine unless tested and found deficient. Iodine supplements can make Hashimoto’s worse

As vegan you must test iron/ferritin and B12 at least once or twice year

Important to tell medics your vegan

humanbean profile image
humanbean in reply to fuzlo

Would my blood tests from December not have shown imbalances for vitamin D, B12 and folate etc.?

Doctors think anything in range is "normal" or "fine". But I always use ferritin as an example to show why in-range isn't always "fine".

Three patients A, B, and C all have a ferritin test. The reference range is 13 - 150 mcg/L.

A's result = 15

B's result = 85 (roughly mid-range)

C's result = 148

Most doctors would say all these results are "fine" or "normal" because they are all in range.

Which patient would feel worst? Probably A.

Which patient would feel best? Probably B.

Some doctors might offer iron supplements to Patient A, but lots of them won't. The patient will probably feel way below their best.

Patient B has a result which is approx mid-range. Optimal for ferritin for most people is around 80 - 120. If you feel great with it being 50, then that's okay too, but in the world of thyroid patients a level of 50 might be rather too low for many of us who just can't get well and need help to feel better. Optimal is best.

Patient C - may be absolutely fine, but a high in range result or one which is slightly over the range could indicate that the patient is suffering from inflammation or infection. You would need more information to work out what is going on with a high ferritin. That would involve testing an iron panel and CRP. It may turn out that a Full Blood Count is helpful too.

Hi Fuzio see my picture below these are my nails I have the same. I have underactive thyroid and have been on meds for over 10 years. I have been feeling tired with aching muscles for a while I have my bloods done twice a year. I try to keep my iron vit d ferritin and folate optimal if I dont take over the counter vitamins my ferritin vitamin d and folate drop. I suspect my ferritin is low hence my tiredness and wierd burnt tongue feeling. On my last bloods they said were ok tsh was 0.83 t4 was 14 and t3 5 . something. They did full blood count which they said was ok but they didn't test my ferritin which I suspect has dropped again. My consultant cant understand I still dont feel well I have been taking 75mcg daily so we are trialling 100 at weekend and 75 during the week then retest this time with ferritin. My consultant suspects I have the D102 gene even though he said my t3 is ok as sometimes even though results seem ok you still have symptoms of low thyroid but cant get the test for me on the NHS so I will have to have it done privately at 80 pound I'm out of work too at the minute so is a lot of money . I have read that the nails we have can be caused by anaemia. They told me that my blood count is ok but I have read that ferritin I think is the protein part of the blood and can still be low and give symptoms even if iron looks ok. I suffered the tummy probs and lost weight which I didnt need to lose and I had a faecal elastase test which showed borderline severe low stomach acid and I was given Creon enzyme tablets which help enormously and better on the symptoms and regain ed the much needed lost weight. I am going ask my doctor about my nails I get the feeling that they are fed up with me😃

I'm impressed, you appear to have a consultant who is on the ball! I'd appreciate it if you can pm with his name, he might be near enough for my family to access.

I don't know what time you're seeing the GP but if this was me I'd do one of two things. Write a letter to your GP expressing your concerns, keep it short but list the things that bother you most, say they concern you and that you are feeling very unwell. Explain you're writing them down because you struggle to remember everything and in a 10 minute appointment you know you'll forget a lot of them. Then once done drop it off at the GP ASAP so with any luck it will be read before you go in. If that seems too difficult then just make a bullet point list of the symptoms you have mentioned and take it along with, also take a copy to hand to the GP when you go in. Another thing worth knowing is that GPs can offer double appointments for patients who have a lot of issues or who need to take their time getting info across. Good luck, stick to your guns, the battle is just beginning and you're unlikely to win in the first round 😉

fuzlo profile image
fuzlo in reply to Espeegee

Hey! Thanks for the advice. Technically I count this as my second round as I’ve approached my GP before about thyroid and it was of course dismissed because my TSH was in “normal range”. My recent bloods showed this too! So frustrating!

I have written down notes in the form of bullet points. It includes 3 small pages. 😬 The first is stuff that is bothering me right now and are my current main concerns such as irregular periods, nail changes and skin problems. They’re what I primarily want to focus on today! Another page includes other long term symptoms that I’ve never talked to the doctor about such as undiagnosed dematographia, undiagnosed lactose intolerance, cold hands and feet and unexplained allergic reaction. And the final page is a list of things I’ve already been diagnosed with that might be linked such as PCOS, IBS, JHS, ADHD, anxiety, depression and scoliosis.

Do you think the notes are too much? Should I just discuss the first set of notes and leave the rest? Should I talk about my main concerns but hand over all of my notes? I want to get the most out of my appointment but also don’t want to come across like a hypochondriac who has self diagnosed themselves. I wanted a double appointment but couldn’t get one unfortunately!

I was thinking of opening with “So my main concerns right now are my periods and my nails. I’ve always had problems with my hormones, guts, skin, joints, ears, mental health and many other things and I just wonder if they’re all down to one problem. I’m thinking maybe thyroid because a lot my symptoms are typical of a thyroid condition, I understand it’s common with PCOS and thyroid conditions are also in my family.” Yes I’ve been “rehearsing”! 🤣

Espeegee profile image
Espeegee in reply to fuzlo

I'd put forward your biggest concerns and if you can give him all your notes saying there is more but I appreciate there isn't time to discuss everything but I would be grateful if you could read them to understand just how many issues I have and how difficult it is on a day to day basis having to struggle to manage. Ask if he can book you a double appointment once he's read your notes to discuss anything he may have picked up from them. At your age he needs to help you move forward not just brush you off to carry on living a less than optimal life.

fuzlo profile image
fuzlo in reply to Espeegee

Perfect. Thanks! I will do that. Some people here have said to not show the doctor my notes at all but I just worry I’ll forget to mention everything or cover the important things.

Is it good to mention that I myself think it could be thyroid related? And put forward that thyroid conditions are in my family and that I’m also aware it’s common with PCOS.

Espeegee profile image
Espeegee in reply to fuzlo

Hard to advise on that, I told my GP and the Endos I saw that both my mother and sister had pernicious anaemia and were hypothyroid, I might as well have said they both had cats for all the difference it made. Have the consultation and see how he reacts, if he seems interested then mention it again, if he's dismissive then probably no point, you'll get better advice here to be honest. I'm not officially diagnosed as my TSH is within range too 🙄 so in the end after private blood tests and so much help here I self medicate. I'm so much better!

You’ve had plenty of good advice here already, so just a couple of tips:

Write a letter to the doctor about how you’re feeling, print off the list of hypothyroid symptoms that Shaws gave you the links for and tick off all of the symptoms you have.

At the end of the appointment, give your letter and list of symptoms to the doctor and ask for them to be scanned onto your file. (This is a tip from an ex-nurse - she said the file notes are never accurate and this will ensure that you have a true record of what you told the doctor on file).

If they offer you a blood test at that time, say that you want an early morning appointment and that you are happy to come back.

When I attend the local hospital they always want me to have a blood test, always in the afternoon. TSH fluctuates diurnally. It’s highest during the night and lowest in the afternoon, so there’s no point in having one then. I just take the form and tell them I’ll come back in the morning.

fuzlo profile image
fuzlo in reply to Maggie0652

Thanks!

Unfortunately I do not own a printer.

I do have a list of symptoms notes that I’d written down. My main concerns at the moment are my periods and my nails so I wanted to start with those and mention it could be my thyroid. Is it wise to hand over my written notes to the GP? Someone else on here mentioned it might give the wrong impression and make the doctor assume it’s all down to health anxiety.

I was thinking of saying something like:

“So my main concerns right now are my periods and my nails. I’ve always had problems with my hormones, skin, guts, joints, ears, mental health and many other things and I just wonder if they’re all down to one problem. I’m thinking it might be my thyroid because a lot my symptoms are typical of a thyroid condition, I understand it’s common with PCOS and thyroid conditions are also in my family. What I was hoping to get out of this appointment was an idea of what could be causing problems with my periods and nails, and also some full thyroid function tests.”

If they offer me a blood test and I need to go to the hospital it’s usually a drop-in so I can make it so I go in the morning next week.

Thanks

Maggie0652 profile image
Maggie0652 in reply to fuzlo

Hi fuzio

No, don’t hand your written notes over to the doctor, as you say, it could give the wrong impression.

Just write a letter to him/her summarising your symptoms and concerns. Ask for a thyroid function test with TPO and TG antibodies and vitamin levels. If you’re not confident with letter writing, have you got somebody who can help you?

Ask the GP to scan the letter on to your file.

You don’t need to go into masses of detail.

Margaret x

fuzlo profile image
fuzlo in reply to Maggie0652

Definitely!

I’m having a face to face appointment today so just wondering when I would write the letter? I also don’t know if it’s possible to write to the doctors?

Thanks

Espeegee profile image
Espeegee in reply to Maggie0652

It's useful to look up a list of local drop in centers for blood sampling. We have a few in my area where you just turn up. Most open around 8.30 some a little later so you can hopefully get there before noon lol.

I just want to add that you sound quite stressed and anxious, and you mentioned having health anxiety, so you should try to address that too.

If your thyroid bloods come back in the normal range repeatedly, then you probably don't have a thyroid disease. If they don't, and you do have Hashimotos it's very treatable and you will be fine.

I have PCOS, Graves disease and Hashimotos and Hashimotos definitely gives me the least trouble of the three - by a country mile!

In my case my numbers quickly and dramatically fall out of range so it's clear when my thyroid is struggling with either hypothyroidism or hyperthyroidism so the previous advice on here about being in range but not being in range is alien to me.

Good luck.

fuzlo profile image
fuzlo in reply to Soma33

Yeah definitely. I agree!

Thank you for your advice and insight about Hashimotos! It’s interesting to learn of people’s different experiences with thyroid conditions and diagnosis.

It may sound odd, but I found gluten in my diet made my nails look like this. It's a sign of poor guy health, which goes hand in hand with all the other conditions you've listed.

I'd suggest paying for a full thyroid panel yourself, as your doctor will never test antibodies and that's what you need to have tested.

I had all the thyroid symptoms but my GPs thyroid test looked fine. A private test showed antibodies though, which means I have hashimotos but I'm not yet hypo.

fuzlo profile image
fuzlo in reply to Cooper27

That’s really interesting. Thanks!

It is a possibility although I’ve been gluten free for over a month now and my nails seem to be changing all the time. They’ve gotten worse even since last week! So I’m unsure about whether it’s down to gluten. However I’m still sticking to gluten-free for gut and hormone health!

What do you do with the results from private testing? Do you bring them up to your GP? How do they react to private testing?

Cooper27 profile image
Cooper27 in reply to fuzlo

Yeah, I did a gluten challenge last year (brought gluten back in for a while) and a few weeks later, I noticed this line on my nails between the dark pink and pale pink pretty much exactly like this but halfway down the nail rather than at the top. It travelled outwards over the following weeks, it was as if the line was showing the date I cut out gluten, and the healthy nail growth coming in behind?

I had to do another gluten challenge in Feb and stopped again 5 weeks ago, and I can see the same line but less pronounced this time round.

It sounds like this might be a "thing", I wonder what it is about removing gluten that does this 🤔

Cooper27 profile image
Cooper27 in reply to fuzlo

Sorry,I forgot to answer your other questions... Post the results of any private tests on here, and people will give feedback 🙂

If you are rushed at the appointment stress the family connection and say you want comprehensive Thyroid testing to rule it out

Hi fuzloYou said you had your bloods checked in Dec, do you know what time of day that was, slowdragon may have touched on this subject with you, but its best to have thyroid bloods done first thing in the morning and a full pannel , ie T3, T4, TSH antibodies, I found my gp was doing my bloods at all times of the day when I was trying to get diagnosed with hyperthyroidism and he only ever did TSH and always said "your bloods are OK in range" I never question him until another doctor took bloods 4 weeks after he did, she found overactive thyroid she did a full pannel.. After my thyroidectomy in 2019 I requested my gp records and found the TSH he did where 2 suppressed and others under range, so I never belive a doctor when they say "your bloods are in range" these are guidelines set out by the NHS, but one person who's bloods can be just in range can feel awful, it's the individual person, we are not all the same. Personally I think the in range thing needs to change and gp/endos should look at symptoms not black and white printouts of the ranges,its hard to pack in everything in to a 10 minute appointment, I'm waiting on one to see an endo, I've printed out some information on my condition (hyperparathyroidism) I've highlighted some paragraphs that I think apply to my symptoms it's just a tool I can look on for guidance and to ask questions on..

Good luck with your appointment hope it goes well.. ❤️❤️🤞🤞

Hey everyone.

I had my appointment with the GP earlier today and was told my period problems were likely just down to my PCOS (I suspected this anyway) and that my nails are nothing to worry about.

I mentioned thyroid and how it’s in my family. I was shown that my TSH was in normal range in my blood tests from both June and December.

I also mentioned my skin issues and he said that dermatographia and eczema can make me more susceptible to allergies hence my allergic reaction.

I asked about other thyroid tests and he just said about TSH again. I also mentioned that I’m vegan but do take supplements. I’m having more bloods taken but it isn’t the full thyroid panel. I’m also having some scans on my ovaries again.

I’m glad that I’m having scans and tests to investigate my period related symptoms as they have been worrying me. The nails didn’t seem to worry the doctor even when I said they were changing all the time.

He could be right about everything but obviously having read here and on the Thyroid UK website about thyroid testing and everything I’m not sure. I ticked off a lot of things on the symptom checker but perhaps I just have all of these issues separately? 🤯🤔 I’m sceptical but going to see how my scans and blood tests go.

I’m going to go early in the morning next week on an empty stomach and ask if I’m able to have my results sent to me so I can go through them on this forum!

Thanks for everyone’s advice and help today it really helped. 🙂

"Does anybody have nails like this? "

Hi Fuzlo, I was interested to read your post. You bet my nails are like that. (Except much more purple because my hands are generally purple with cold & from poor circulation.) I've been mildly puzzled for years over the disappearance of the half moons in my fingernails, and wondered what the significance might be. They lingered longest in my thumbnails, but have disappeared from those as well now.

Last summer I tried researching the phenomenon briefly, and found that "receded lunulae" (i.e. disappeared halfmoons in fingernails) are thought to be associated with "poor circulation, shallow breathing, or thyroid malfunction". All of which would apply in my case.

I hadn't heard of the term "Terry's nails", so that was useful to read. I've looked it up today, and it does look as if true Terry's nails are a distinctly opaque white colour. On Wikipedia it associates it with hyperthyroidism, among other things.

But I ve often wished medical practitioners would do those oldfashioned things of looking at people's nails, tongues, etc to assess what these easy-to-see body parts are telling them. (My nails are always full of signs they are trying to tell me something, but I don't know quite what.)

Thanks also to Bookworm1961 and Cooper27 for additional interesting nail input, and also other for a lot of helpful comments in this thread.

fuzlo profile image
fuzlo in reply to Comorbidity

Thanks for this! Really interesting and I didn’t realise. My circulation is definitely poor especially since the pandemic. I think due to the vicious cycle of poor mental health and low physical activity...

I’m always obsessively scanning my nails and comparing them to other peoples in real life, online and even on the TV! 🤣 I looked through old pictures of me and it seems I’ve always had pale nails without moons - but they’ve only started to look like this fairly recently with the red bands across the top.

I saw my doctor today who looked at them and said that he’s seen a lot of patients with nails like this and that it doesn’t necessarily mean there’s any underlying health problems. Some peoples nails are apparently just like this. Although we are going to investigate my bloods again just to see if I’m deficient in anything, especially since I’m vegan.

It’s reassuring to know that others have nails like mine! Thyroid conditions have again been dismissed in my case due to “normal range” TSH but I realise that doesn’t necessarily mean anything. I’m still a little sceptical. I really suffer with cold hands and feet!

Comorbidity profile image
Comorbidity in reply to fuzlo

Well, just in response to your doctor's opinion that 'Some people's nails are just like this', in my case I can say that mine were not always like this! If I could not remember that my nails used to look different, and always used to have their half-moons, I wouldn't have wondered when and why they had disappeared.

Myself, I've had circulation problems and cold hands since childhood. (Used to have fingers swollen, painful & inflamed by chilblains 6 months of the year.) But I definitely started out with normal nails, with lunulae and normal colouring present.

It is good that he is going to look into nutrient deficiencies for you: I am sure that is sensible and helpful.

Best of luck with your investigations!

What treatment is being given for your PCOS? Although PCOS had not yet been identified as a condition, around 35 years ago I was diagnosed with low estrogen level after presenting with super-drenching periods with big clots and pubic hair gone berserk (so thick that the bulge in my undies made it look like I was wearing a cod-piece.) I was put on hormone replacement therapy (estrogen & progesterone) which straightened out both problems, although it did take a long time for the public hair to recede. These days I hear they are avoiding HRT and instead giving women a diabetes drug - Metformin. I have no idea how well that works for the 2 problems I had.

NOTE: I did not have any cysts on my ovaries.

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