I'm new to this group and hoped someone could help me. I was diagnosed with Hypothyroidism nearly 20 years ago and put onto Levothyraxine, eventually over the years my dosage has increased, I never actually felt much better, but with little knowledge about the disease and 4 kids to look after I never questioned the doctor only ever testing my TSH and always saying they are fine.
Eventually nearly 4 years ago I convinced my doctor to run a full suite of Thyroid bloods and low and behold my levels came back out of range. For the last 3 years they have upped and downed my dosage of T4 but I never feel any better. I did see an Endocrinologist on the NHS and he basically treated me like a idiot and said just take your tablets and get on with it. Last Saturday I finally paid to visit a Private Endocrinologist at Nuffield Health, after looking at my results for the last 2 years, she prescribed T3.
My GP is refusing to let m have the tablets on the NHS (No Surprise) So I wondered if anyone could help me find out where I can source Liothyronine( Thybon - Herring Brand) as cheaply as possible? I have had a few quotes through and they vary so much.
Thanks in advance.
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KatieJohnson1977
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There is continuing uncertainty as to whether we can use UK prescriptions to obtain it from Germany. I hope those who are managing to get it will respond with details.
I can't help you with the question where you can spource Liothyronine (sorry), but I wanted to tell you that you got the name of the brand wrong. It's not Thybon Herring, but Thybon HENNING, made by Sanofi, see this link here: mein.sanofi.de/produkte/Thy... . It's a German brand, but I hope it's possible to import it into the UK.
I've just looked up the cost of Levothyroxine and Liothyronine online to buy privately. Cost of Levothyroxine £43 for 28 tablets. Cost of Liothyronine £300 for 28. Think I can see why GP's won't let us have them and don't test our T3. Outrageous! I'm going to demand a T3 test from my GP now as I've been feeling really ill.
The labs have the final say as to what is tested. If your GP does allow it. Just an fyi in case it comes back untested with your other bloods that GP’s don’t get the final say.
Your post is confusing. The company you mentioned does not appear to supply either of the products being discussed liothyronine and levothyroxine - which are both prescription-only medicines.
If they did sell them, then your post would break this guideline:
26. Do not post advertisements, links or information of any sort whatsoever, on where or how to obtain UK prescription only medications without prescription. This includes online pharmacies who issue 'prescriptions' on the basis of the completion of a simple health questionnaire.
I shall edit out the details in case the company is a source of prescription-only medicines.
Hi, I get my Liothyronine (Thybon Henning, lactose free) from Springfield Pharmacy of Richmond Surrey. They are v efficient and ring me as soon as they receive prescription from Endo. I paid £1 per 20mcg tablet for last 3 month order as now stable dose, plus next day postage. They have also previously dispensed NDT on prescription for me.
Hi, I've been getting Thybon Henning liothyronine on the NHS. When I went to collect my prescription over the weekend, Tesco told me that they thought they would no longer be able to source it for me. The pharmacist told me that he had contacted all of his suppliers during the previous week. He did manage to source one packet for me, He told me that it is very unlikely that he will be able to obtain any more. He did not know what had caused the problem. To be honest, I thought there might be a problem over Brexit so I have managed to build up a couple of months supply, so it's not a problem for me yet!!
There has never been a problem with obtaining it before - I've been getting it for almost two years.
I also needed T3, my GP prescribed it but then I moved house into another county. My T3 prescription was filled for a couple of months and then I got a message saying I couldn’t have it anymore, when I asked why, I was told it was too expensive. I was devastated and fuming so I contacted my Endocrinologist who then wrote to my GP stating that I needed it. I have got it back, my blood results have always proved I need it.
Don’t buy it yourself, why should you! Get your Endocrinologist to write to your GP and kick up a fuss until you do get it?
I've been on Thybon for the last year , Roseway pharmacy is the only place i know to get it in the UK , there maybe a supply issue as german pharmacies stopped accepting uk prescriptions, but i will PM you where i got mine , email them and ask, as i got mine sent over last month but i wasn't sure if it was because i already had my order in before the cut off, or they were going rogue i paid 120 euro for 400 tablets including postage and it got here safely.
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