Confusing blood results😓 : Hi everyone sooo iv... - Thyroid UK

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Confusing blood results😓

gangymy profile image
gangymy
•13 Replies

Hi everyone sooo iv just had my NHS blood results back and I'm a little bit confused to the readings😕 they are as follows

TSH 0.04 (0.3-4.2)

Ft4 13.2 (9-19)

Tpo 634 (<60)

Vit D 57 (50-250)

Foltate 5 (3-20)

Ferritin 117 (20-300)

B12 364 (180-900)

Iv also had a full bloods done as well that comes back everytime with a abnormal neutrophil count 1.7 (2-7).

So my biggest confusion is my tsh/ ft4 on my previous bloods I was 0.5 tsh 17.3 ft4 but still showing worsening symptoms so she suggested a slight rise in thyroxine, now it's pushed my tsh very low but my ft4 has dropped aswel? Iv been seen an endo she's under the impression I'm not hashi and the tpo is normal, also has anyone else had any experience with Vit levels being what they are above is it the norm should I begin suplimenting? I'm waiting for an abointment at my local hospital to get a medicheck blood draw done, for my FT3 Etc I was due then covid hit so all got stoped.

I'd be grateful to see what everyone else thinks of these results? The gp will call me in a few days but Im sure they'll see no problem, and my endo just recommended I do yoga to get my symptoms better 😡

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PurpleNails profile image
PurpleNailsAdministrator

What medication do you take ?

gangymy profile image
gangymy in reply to PurpleNails

Hi purps I'm on 150mcg levo

PurpleNails profile image
PurpleNailsAdministrator in reply to gangymy

Often when medics see below range TSH they automatically reduce dose.

As others have said fT3 is the active hormone. If you are not converting & as some vitamins are not optimal that’s possible you will feel hypo symptoms.

Your 42% through FT4 range and often higher (top third) is recommended.

Useful calculator often shown on here to calculate where you are in range

chorobytarczycy.eu/kalkulator

You’ll find some good post on here with advice about vitamin. Introduce vitamins in stages (incase you get a reaction to one) and retest.

Lora7again profile image
Lora7again

Your vitamin D is too low and you need to bring your levels up. I use the BetterYou vitamin D spray which is easily absorbed on your tongue.

gangymy profile image
gangymy in reply to Lora7again

Hi lora 👋 thanks, il have a look see what I can get

Jazzw profile image
Jazzw

I’m not impressed by your Endo. You absolutely do have Hashimoto’s (autoimmune thyroid disease) with antibodies that level. And yoga is no substitute for being prescribed a decent amount of thyroid hormone replacement. Imagine an endocrinologist telling a type 1 diabetic that they don’t need insulin, they just need to do more yoga...

TSH is far less relevant now that you’re on 150mcg levothyroxine but what you do need to know at this point is what your FT3 is doing. Sadly, it seems like your Endo isn’t one who’s going to know how important it is.

How are you feeling? Do you feel like you might need a raise in dose?

Have you tried the Medichecks fingerprick blood tests? They’re just as good as having blood taken from your arm.

Re vitamins, your B12 is a little on the low side—generally it’s better for it to be over 500. And your folate levels are very low. Would be worth getting a good B complex supplement (one which contains methylcobalamin and methylfolate) as the B Vits work best in combination.

Out of range anti-TPO levels mean Hashimoto´s, period. How can your endo say your levels are normal when they are ten times the upper normal limit?! Your endo does not seem to know what she is talking about!!!

As others have pointed out, if still symptomatic, you need to have FT3 tested to know how well you are converting T4 to T3 (the most important thyroid hormone).

fuchsia-pink profile image
fuchsia-pink

Absolutely agree with Jazzw . Can you do a basic TSH/ free T4/ free T3 finger-prick test? - you have the other results you need. Your free T4 is only 43% through range, so I'd be surprised if free T is adequate. Your vit D is very much too low - as Lora7again says (should prob also add magnesium to the vit D spray) and folate could use a bit of a boost.

I'm guessing you don't feel great so the real issue is whether you need more levo, to bring free T4 up to the top third of range, or keep levo as it is and add lio, if conversion is poor. Either way, I'd say you need to be increasing meds ...

Good luck x

SlowDragon profile image
SlowDragonAdministrator

Endocrinologist should go back to medical school

Clearly your high TPO antibodies confirms autoimmune thyroid disease. (Hashimoto’s)

Vitamin D, folate and B12 all far too low

What vitamin supplements are you currently taking

Only add one new supplement at a time ....wait at least 10-14 dats to assess before adding another

Vitamin D

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

With your Vit D, are you also taking it's important cofactors - magnesium and Vit K2-MK7?

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Low folate and B12

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

With such low B12 result taking a B12 supplement and a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

cytoplan.co.uk/vitamins/vit...

SlowDragon profile image
SlowDragonAdministrator

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

healthcheckshop.co.uk/store...?

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Why gluten intolerance can upset cortisol levels

kalishinstitute.com/blog/gl...

Recommend getting TSH, Ft4 and Ft3 tested now via

cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Come back with new post once you get full thyroid results

Then retested again after added all vitamins and 3 months on strictly gluten free diet diet

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

sja11 profile image
sja11

The very best way to take magnesium is dark chocolate, as close to 99% as you can bare it. Just one or two squares a day seems to work for me.

tattybogle profile image
tattybogle in reply to sja11

I agree, Good quality Dark Chocolate is my favourite health food,. Magnesium, Iron (non-heme source so eat an orange [vit C] with it to maximise absorption) ,Vit B12 , Vit K, copper, potassium, phosphorous, Zinc , Selenium, and Manganese are all included for free.

fortunately for me i've always preferred it to milk chocolate.

gangymy profile image
gangymy

Wow Thanks everyone il have a chat with my GP again see if I can see another endo as well, il look to get some extra vitamin supplements as well thanks everyone for the awesome information and tips

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