New drug trial for Graves patients:: British... - Thyroid UK

Thyroid UK

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New drug trial for Graves patients:

pennyannie profile image
pennyannie

British Thyroid association looking for Graves patients for a clinical trial of a new drug : please check out website for further details if interested :

14 Replies
RedApple profile image
RedAppleAdministrator

pennyannie, can you post a link for this please, or at least say where you got the info from :)

pennyannie profile image
pennyannie in reply to RedApple

Sorry I can't do cut and paste, I just glaze over, it's on TPA forum posted by Lindsayp.

bantam12 profile image
bantam12 in reply to pennyannie

Do you mean Project DAVIAD on BTF site ? It's from last year. Not found anything on BTA site.

pennyannie profile image
pennyannie in reply to bantam12

No - Seasidesusie has kindly found the link for me below ;

SeasideSusie profile image
SeasideSusieAdministrator

btf-thyroid.org/Pages/Categ...

From that page :

"The company is now actively recruiting for their final cohort so please contact the site urgently, before the end of September 2020"

Thank you for helping me and posting the link for me :

You can only access this post if you are a member of Thyroid Patient Advocacy

pennyannie profile image
pennyannie in reply to Lalatoot

SeasideSusie has kindly put the link up for me ;

I heard something about this but I would be surprised if anything comes of it. There are fewer people with Graves' disease than people that suffer with hypothyroid. I wonder if more men suffered with thyroid disease would the medical profession actually look for a cure or even give better treatment. Sorry to any men who suffer with thyroid disease but it is man's world in my honest opinion. When I used to take my husband to my appointments to see my Endocrinologist he would talk to my husband instead of me. I felt like telling him I was the actual patient not my husband.

Valarian profile image
Valarian in reply to Lora7again

Just wondering why you (or even your husband) didn’t point this out,,,

Lora7again profile image
Lora7again in reply to Valarian

I felt too ill to fight my corner because I was virtually bedridden because I had been left untreated for over 2 years. I was very thin and I was balding with shaking and sweating. Now I feel well I would not have stood for it and I tell doctors exactly what I think if I disagree with them.

It’s for people who has had thyroid cancer for the trial, wish we could just get the drugs we need, instead of being left with nothing

Sweeneythyca profile image
Sweeneythyca in reply to Dorey69

Its for people with graves.....

This is a copy and paste of what i read

"Patients who were diagnosed and treated for thyroid cancer more than five years ago may also be eligible to take part in the trial"

Thanks, I read that too

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