Help Please. Slow speech, slurred speech. - Thyroid UK

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Help Please. Slow speech, slurred speech.

SPD1
SPD1

Hi All,

apart from the multitude of other symptoms i am struggling with i notice that i am having transient issues with slow speech and slightly slurred speech, it seems to be worse first thing in the morning and then improves as the day progresses, i feel sometimes as though i have to consciously formulate the words with my lips rather than it being completely natural (hope that makes sense) and sometimes if i don't slow my natural pace of speech then words come out mispronounced and slightly slurry..

Can this be common with Hypo ??

Any comments or assistance very much appreciated.

Many thanks.

55 Replies
oldestnewest

Yes, that can be a hypo symptom. You're probably under-medicated. When did you last have a blood test?

SPD1
SPD1 in reply to greygoose

Hi greygoose,

thanks for your reply, about 9 months ago, been on 150mcg Levo only for 15 years or so, the problem is my TSH has been around 0.01 to 0.03 for the last 10 years and i have felt very good but i am always having to battle with my GP who goes in to panic mode about it and always trying to get me to reduce so i don't think there is a cat in hells chance of an increase in Levo, she isn't interested in how i feel just the bloods, typical GP!

I'm stuck really because i need to investigate all the symptoms but worried sick that the GP will just focus on the TSH and not carry out further testing for Adrenals, hormones etc and i am struggling financially so can't afford a specialist..

greygoose
greygoose in reply to SPD1

Yes, it's a problem, isn't it. I don't know what we can do to educte these ignorant GPs!

SPD1
SPD1 in reply to greygoose

Unfortunately it looks virtually impossible to educate the majority of them :-(

greygoose
greygoose in reply to SPD1

It is, I'm afraid. Which is why so many people self-treat.

SPD1
SPD1 in reply to greygoose

Do you know what the situation is if the GP insists i reduce but i don't want to, can they just go ahead and reduce anyway? Is a patient able to sign a disclaimer of some description to absolve the GP from any liability if they disagree with a reduction, i would imagine it's not that simple as i have never seen it mentioned on here..

greygoose
greygoose in reply to SPD1

No, basically, the doctor does what he wants, regardless of the patient's wishes. And some of them can be so bloody-minded! They know best and that's all there is to it! You can find some doctors that can be persuaded that you know the (non-existant) risks and are willing to take them. But you have no rights in law.

SPD1
SPD1 in reply to greygoose

Thought that was probably the case..GP knows best (not) Grrrrr :-(

many thanks.

greygoose
greygoose in reply to SPD1

You're welcome. :)

Hello SPD1,

I am sorry to hear that you are going through this. I have encountered this myself, and, it's very frustrating and upsetting.

You will get some excellent advice on this forum.

I have to recommend, that if possible, go and see your doctor; if nothing else, they can check your health, and help to, put your mind at ease.

In the meantime...as far as I know, there is a link...because being very hypothyroid, can cause or worsen depression, which in turn can negatively impact the speech processes.

The first time that I experienced this (and I hate to tell you, but it can last a while, until treatment starts to work) was when I was under an extreme amount of work related stress (and, PTSD). While speaking with a GP Psychologist, I asked her if I had the early onset of Dementia...I did not, thank heavens (as I was too young) but it was that bad, that this was a big concern for me.

Good news is...it is treatable, and you will get better, just try not to be too hard on yourself.

Wishing you better, very soon.

SPD1
SPD1 in reply to Shield-Maiden

Hi, thanks for reply. i am definitely depressed and extremely irritable so i recognise the impact and affect of it all, interesting that you had speech issues also, thanks for sharing, i just wanted to check that speech problems can be thyroid related..

many thanks indeed.

Hi SPD1

Sorry to hear you're struggling.

I've recently been diagnosed with an Under Active Thyroid, and it did effect my speech.

I wouldn't say my speech was slurring, but in my head my speech was slow and I was struggling to get words out.

This went along with memory loss, weakness, headaches, fatigue and muscle twitching.

Thankfully, as soon as I started increasing my daily dose of Levo this has improved.

Hope this helps?

Wishing you good health.

B.

SPD1
SPD1 in reply to BShankly

Hi There, thanks for reply, sounds very similar to me with the speech issue you had, just wanted to check if anyone else had experienced it...

many thanks, wishing you good health as well..

BShankly
BShankly in reply to SPD1

Thanks... I don't often post replies. But I've been helped massively with other people's responses and knowing I'm not alone with the effects of this condition.

(Thank the Lord for this forum.)

Take care.

B.

SPD1
SPD1 in reply to BShankly

Thank you, you take care also :-)

BShankly
BShankly in reply to SPD1

Hi. Just wanted to add. My voice got quite weak and I wasn’t fully pronouncing certain words. I had to make a conscious effort to make full words.

Thanks

SPD1
SPD1 in reply to BShankly

I have noticed a different tone to mine at times and i also find sometimes i'm not pronouncing properly, the joys of thyroidism :-(

BShankly
BShankly in reply to SPD1

Please keep us updated.

B.

It could be undermedication—it could also be a Vitamin B12 deficiency. Or something else that needs checking out by a doctor. I think this is a symptom you should see a doctor about (though I know few of us are keen on that!).

Scrumbler
Scrumbler in reply to Jazzw

It is horrible. I have to separate my words very distinctly or I slur my speech badly. I sound as though I’m drunk. I have to make a conscious effort to know where to put my tongue.

In my case I think it’s connected to low cortisol especially as it’s worse in the morning. I do have neuro problems though so intend to mention it to neuro.

Ah right, just read your previous posts about your head injury and then whiplash—ouch, you’ve been through it. But also saw that your B12 looked ok.

This could well be hypo related then. In your most recent set of blood tests, your FT3 didn’t look stellar (it wasn’t awful but your FT4 was right at the top of the range and your FT3 hadn’t made it to mid range).

How much Levo are you taking now?

SPD1
SPD1 in reply to Jazzw

Hi Jazz,

thanks for your reply. 150mcg a day of Levo only. i was fine before the incidents and then all the symptoms became progressive including speech which has just started occurring and now also along with head and body hair shedding and lack of regrowth my beard has slowed dramatically in growing. Will have to risk seeing GP as i can't afford to see a specialist but my major concern is that she is paranoid about my TSH at 0.01 to 0.03 and i am mega concerned she will once again pressure me to reduce and that will then effectively turn me in to a zombie, but obviously there is something not right but just wondered if speech issues can be thyroid related..cheers.

Jazzw
Jazzw in reply to SPD1

Yes, GPs do seem to panic about suppressed TSH—we think a whole generation (or even 2) have been trained to believe it tells them all they need to know... 🤦🏽‍♀️

I can’t see if you’ve posted any iron/ferritin results anywhere—but low iron can cause hair loss, fatigue AND it limits conversion of T4 to T3. So... do you have any iron/ferritin results?

SPD1
SPD1 in reply to Jazzw

Hi,

Medi Checks, 9 months ago

CRP HS 0.07 (range 0-5)

Ferritin 150 (range 30 - 400)

Folate 16.72 (range 3.89 - 19.45)

Vit B12 active 135 (range 37.5 - 188)

Vit D 42.6 (range 50 - 175)

TSH 0.017 (range 0.27 - 4.2)

Free T3 4.35 (range 3.1 - 6.8)

Free Thyroxine 22.3 (range 12 - 22)

Thyroglobulin Antibodies 10 (range 0 - 115)

Thyroid Peroxidase Antibodies 9 (range 0 - 34)

Their comments were slightly elevated T4 and low TSH and Low Vit D

The problem i have is that whenever i attempt to supplement with Vit D, Biotin for hair, B Complex i get side effects, palpitations, hand and leg tremors, wooziness borderline dizzyness so i can't supplement, i dont know if thats anything to do with whats going on, i have taken various supplements for many years before with no problems but now i cant take :-(

Quite al ot of the symptoms i am experiencing do seem to replicate Vit B12 deficiency but it shows my active B12 as being quite good, or, has it dropped for some reason from where it was and although it's showing as quite good maybe for me it's not high enough?? havent got a clue really, i do seem to be more "woozy" borderline dizzy recently. :-(

I have a similar history of TSH 0.05 ish for 15 yrs with FT4 top/over range FT3 nearly mid range.

I've had something similar , but different, with speech .

Whenever i do too much , all energy in muscles and it seems, brain, just crashes extremely rapidly and i can't process the descriptive word i'm after. It is really rapid ie; OK at the meat counter, carry heavy basket to till, and have to grunt and point at cashier.

When i get home i'm reduced to " it's ..... thing.......that, there...... on the .... near the ..... box ......urgggh.

Go to sleep for a while........ better again.

Or, like last GP visit........ Long walk there . physically tired, was trying to discuss historic TSH results. Was really struggling , must have sounded drunk/stupid as talking really slowly and couldn't find word for 'july' so had to resort to 'before /a bit ago'.

But then when he upset me, i got a (?) adrenaline rush and could talk about feelings with force and accuracy and speed.

But still struggled with dates /numbers.

This has happened to me for years while on Levo. When it happens you might wonder if i'd had a stroke. But it's only temporary until i've had a sleep/rest/ or cup of Hot Chocolate in an emergency with no sofa and duvet available.

My family refer to it as "mum's gone bleurgh", "don't worry , she'll be alright in a bit"

It hasn't happened for a few months recently, and that does co-incide with a slight reduction in Levo.......... however since that reduction my activity has reduced so much that it's months since i had chance to get knackered ,so i don't know ?.

I'm starting to feel better now (4 mths after Levo put back up a bit) so i will be interested to see if it comes back when i do enough activity to get tired again .

SPD1
SPD1 in reply to tattybogle

Hi, thanks for reply. I definitely recognise your comment regarding adrenaline rush and then being able to speak/articulate "normally", also the memory issue as well, same happens to me.. sometimes i can find words fairly quickly but most of the time i am word searching whilst trying to converse with people, its sooo frustrating, it's like an engine being starved of petrol and misfiring and can't function properly, my problem is i will struggle to get an increase in Levo with my GP, she would far rather i live like a zombie as long as the bloods are within those good old faithful NHS guidelines..Grrrrrrrr :-(

Thanks.

Scrumbler
Scrumbler in reply to tattybogle

I know the words I want to say. I have other issues sometimes when Incant recall the word I want. I think it’s all connected with fatigue.

Hi Tattybogle,

Sorry to jump in here SPD1, but, sorry to hear that Tattybogle...what do your bloods suggest, ie, your blood work results? Do you think that you might benefit from a small amount of T3, in addition to the Levo?

Your description of the speech problems, are spot on with mine....when I get them...not all of the time now, thankfully.

Take care :)

Hi Shield-Maiden and SPD1, yes i'm sure i would probably do better on less t4 and more t3

In fact, i reckon the cause of the speech/ bleurgh thing, is my brain cells running out of T3 (petrol) as it's been used faster by physical activity........ and not being able to get enough back into brain cells immediately... (sort of 'slow' conversion issue ?)

Then, it feels like a total rest, (including from the need to maintain my body temperature) allows the brains supply of T3 to replenish and i can talk and walk at the same time again.

Unfortunately my monthly budget for essentials is already about 'minus' £60..... so no T3 on the current horizon :( , but i'm preparing to be a pain in the **** ,to get a trial on NHS.

Next time i find a few quid it's top of my list, but i don't think i'll start messing about with hormones until i've got a regular supply .

I react strongly to even tiny changes of levo (12.5mcg), and i've just started feeling ok ish after a 12 month game of #GP reduces Levo/ Life goes further down pan/We have an argument/ i put it back up a bit/ i feel better after 4 mths.

SPD1, , having just read your original post from a year ago..... the same is true for me..... i can tell if i've missed a dose of Levo within hours. I can find no logical explanation for this,given the long 'half life ' of T4 ........ but i've been playing this game for 17 yrs , and i'm not imagining it. I seem to remember 'helvella' gets it too.

SPD1
SPD1 in reply to tattybogle

Hi there, thanks for reply,

i have an extremely sensitive system, if i miss a dose of Levo by only a few hours i get muscle twitching and then the following day i feel more tired, we seem to be the exception but that's just the way it is, all different i suppose. I'm not imagining it either :-)

How come your GP keeps reducing and then Upping, does she listen to your symptoms or is it down to blood results, or combo?

Thanks.

tattybogle
tattybogle in reply to SPD1

Because FT4 kept going up ( been on same dose for yrs), ending up at 240% of range when normally i sit around 80-120% of range.....however, personally i believe this is complicated by local lab changing test machine and now using a really low and really narrow range for FT4. [7.9-14] -i asked 'diogenes' his opinion a few months back and he said he wouldn't give it houseroom !

TSH has always been lower than they would like (around 0.05 region). But they've let me get away with that for yrs.

Anyway this time i thought they may have a point, due to FT4 level . so agreed to go down from 125 to 112, even though i felt ok at the time. was paddling in sea each day , garden was growing herbs, cycling further than i had for a few yrs.

3mths later, i wasn't doing so well (and house has turned into a slattern's hovel,) at retest Tsh has raised a smidge, but FT4 has also raised !?, even though i took great care to make test conditions comparable.

GP thinks i'm lying/ taking more . Wants me to reduce further, as TSH 0.09 but FT4 22.7[7.9-14]

I ask if i can wait a few weeks before reducing again, as i'd just started to feel a bit more human and wanted to do some essential housework and put some cement around the hole that is washing the drain/house foundations away............ On further inspection it turns out the victorian builders of seaside towns didn't bother with foundations....... my 3 story terraced house is sat on 3 slates !!!! so presume next door is holding it up?

Anyway . i digress...... He say's "You'll Die ! The Dose is 100 ". I get my records and find my way here. i see my FT4 is very over range. So several weeks later i scare myself into gradually reducing to 100 because i remembered my aunty on Levo had a stroke.

Result was ~8 weeks later,totally constipated .

I tell him i've done my own research into risks of low TSH, and im going to put it back up . He say's ok , he doesn't want to make me unwell, he's put a note on my records that i understand risks, (to cover his ass,in case i drop dead ?!) then say's "how much do you want to take ?" come back in 6 mths.....

I've now been on 112 since April, felt ok ish again, for a month. Just about got it back together again, but lost too many things to mention along the way.

That's the last time i'll be scared into doing as told rather than following my instincts.

SPD1
SPD1 in reply to tattybogle

Hi,

thanks for sharing that :-)

Your GP seems to sort of work with you a little bit then ?

Whats the highest dose of Levo you have been on at any stage 125? where has your T3 been in all of this?

Putting TSH and T4 to one side, how did you actually feel whilst on 125 as opposed to currently 112, noticeably better?

Thanks.

tattybogle
tattybogle in reply to SPD1

We seem to have reached ' an understanding', although i suppose i'm not giving him much choice, as he knows i'll take what i want.

My T3/T4 ratio's have been;

63%/108% through lab ref range FT3/FT4

36%/84%

41%/59%

32%/66%

54%/111%

Sadly on the one occasion i actually felt overmedicated ,FT3 wasn't done. and these are from so long ago i dont really know how i felt. But i've effectively had something like ME/cfs from about 4 yrs after being on Levo. which i now suspect might have been improved with more T3/less T4.

I was on 150 for about 15 yrs, then in 2016 i was definately a bit over medicated symptom wise- slight tremor,10 visits to the loo before i could leave the house etc and a reduction to 125 followed.

But i've never been as good since then.

To be honest , it's impossible to say if i was better on 125 than now, on 112. because 12 mths ago i was active as long as i kept my activity sustainable, but since i've just spent about 9 mths mostly on the sofa and got pissed off about everything falling apart financially while my garden dies, i'm rather less fit anyway , regardless of thyroid hormones.

And then there's the ' Global Pandemic effect' :) which is tricky to quantify.

I get the same as you with symptoms of over and under med at the same time...... it must be tricky for your GP since you're a bloke...... with us ladies they can just blame it all on menopause..... what do they blame your inexplicable symptoms on if you're a man ?

Scrumbler
Scrumbler in reply to tattybogle

If you’re a man they blame inexplicable symptoms on living with the wife.

tattybogle
tattybogle in reply to Scrumbler

ROFL :)

Glad to see your GSOH hasn't buggered off along with your roller skates.

Hope you're still hangin' in there scrumbler xx

Scrumbler
Scrumbler in reply to tattybogle

👍🤣

tattybogle
tattybogle in reply to Scrumbler

Hope your OH hasn't still got to wear a bag on his head when he goes out.

Doc would certainly blame that on 'er indoors'

Scrumbler
Scrumbler in reply to tattybogle

It’s looking worse now than when I first did it 😳. He’s changed from ageing hamster to demented hedgehog 🤣🤣🤣

tattybogle
tattybogle in reply to Scrumbler

Oops .......

ps.

you'll have to add you own hedgehog imogi cos i'm not that clever yet.

SPD1
SPD1 in reply to tattybogle

I have been on 150mcg daily for about 15 years as well, i was absolutely fine until the head impact, i was knocked momentarily unconscious and then had a very bad car

accident(wrote car off) 4 months later, so 2 very bad whiplash's in the last 18 months or so there is a chance i have knocked out my pituitary or thyroid in some way as i didnt have the arm and leg tremors, muscle twitching, palpitations, breathlessness, blurred vision and alarming hair loss, which then developed in to eyebrow, under arm hair, pubic hair loss as well, i think my arm and leg hair seems less as well and very recently my beard growth has slowed dramatically, so a lot has happened which makes it quite difficult to get to the bottom of.

The tremors come and go, i also have transitory leg weakness, its weird. i have read lots of posts on here where people have some of my symptoms but nowhere near all of them so i'm not sure it's quite as simple as i'm over or under medicated, i really don't know what to think, i just think it's too coincidental that i didnt start with these problems until the 2 incidents, very confusing. :-(

tattybogle
tattybogle in reply to SPD1

I'm slowly forming the opinion that for some of us , Levo alone works adequately for 10/15 yrs even without good Conversion from T4 to T3..... but then our body stops being able to manage ..... and so probably we should try to get FT4/FT3 to a more natural balance . healthy people have more Ft3 than FT4

I,ve read many tales here that start with "i was on Xmcg Levo for 10/15 yrs, but then..."

I'm interested to hear the same story from a male , because of course menopause will affect things for women , and this is often going to be around the same time as 10/15 yrs on Levo because so many of us get diagnosed Hypo after having a kid. So how to say if it's menopause/ body not managing on Levo anymore/both ?

But menopause not a factor for you.... although i suspect rattling the brain is not a good idea either. Rattling his brain in a car crash has had a big impact on my brother who doesn't have any thyroid probs. More in the getting tired /angry/overwhelmed with too much stimulus dept. rather than the hair falling off/leg tremor/palpitations dept.

And of course the ultimate irony is that i do believe i'm starting to grow a beard......but i have tweezers so no ones going to know, and i'll deny i said that.

SPD1
SPD1 in reply to tattybogle

Hi,

i just feel it's probably too much of a coincidence that i was really good up until i had the head impact which was absolutely sickening and i have since learnt from the guys i play with that they think i might have momentarily lost consciousness, the whiplash was bad for 2 weeks and then the car accident which resulted in another 2 weeks of whiplash apart from the shock value and impact. I know Barry Peatfield mentions in his book that whiplash can affect the thyroid but because its a slow onset and symptoms can perhaps not start to show for months afterwards that the medical profession does not join the dots. I responded to SlowDragon about my energy levels and not feeling overly tired at all which is really confusing to have all these symptoms but the usual lack of energy and overwhelming tiredness that can be associated with thyroid issues is not currently one of them, the only real difference i have noted as far as that is concerned is i am waking every morning at 5am religiously and can not get back to sleep and around 9pm every evening i struggle to keep my eyes open, i close them for about 15 minutes and then i seem ok for the rest of the evening, its bizarre. WELL confused.

SPD1
SPD1 in reply to SPD1

p.s, plus after the head impact it gave me tinnitus which i still have and never, ever suffered with before and it has left me with transitory "woozyness" on the edge of being dizzy along with the other symptoms, Fed Up and WELL down :-(

Hi Tattybogle,

I hope that you get to obtain the trial of T3; push for it.

Take care :)

Thankyou.

SlowDragon
SlowDragonAdministrator

Recommend you get full thyroid and vitamin testing privately.....don’t involve the GP

That way you get control of how and when you test ....and if you choose to give them results

TSH 0.017 (range 0.27 - 4.2)

Free T3 4.35 (range 3.1 - 6.8)

Free Thyroxine 22.3 (range 12 - 22)

Ft3 was only 34% through range in last test ....that’s likely too low

Ft4 a bit high

You probably need to tweak levothyroxine down a notch and add in small doses of T3 alongside levothyroxine

Email Dionne at Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

Is this how you do your tests?

Vitamin D far too low .....improving vitamin levels can result in being increasingly hypo, if under medicated....as when vitamin levels are optimal it’s easier to use thyroid hormones

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus ultra vitamin (Note doesn’t now include folate)

medichecks.com/products/thy...

Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays and apparently have summer sale on now

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays

SPD1
SPD1 in reply to SlowDragon

Hi SlowDragon,

thanks for reply and your comments and links.

i always take my Levo at around 11.30 to 12 midnight every night, that last Medi checks blood draw was at 10am the following morning (fasted) so there was less than 24 hours in between (i now know it has to be at least 24hrs) how much do you think that would have compromised giving a "True" result, ? is it likely to have given a false T4 T3 and TSH ? or not made that much of a difference?

I know my Vit D needs to be supplemented the problem is i am reacting with side effects every time i try and supplement, i get palpitations, go hot and sweaty and get some hand and leg tremors irrespective of what i attempt supplementing with, be it Vit D, B complex, Biotin, it ridiculous really or could it be that because i'm under medicated that's why i am reacting?

Thanks.

SlowDragon
SlowDragonAdministrator in reply to SPD1

TSH won’t be affected by last dose being 12 hours....but Ft4 will be ...Ft3 probably not affected

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

I couldn’t tolerate any vitamin D until took magnesium supplements for 2-3 weeks first (more on my profile). I still supplement magnesium, vitamin D, vitamin B complex everyday ...otherwise levels drop

Vitamin D needs magnesium as co factor. Any magnesium must be four hours away from levothyroxine...so early evening.....if taking levothyroxine at bedtime

When first start vitamin B complex can initially make feel very wired .....lasts 3-5 days ....

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Easy to cut into 1/4’s ......perhaps start on 1/4 tablet.....two weeks ....then half tablet for two weeks etc

Remember to stop taking any supplements that contain biotin a week before any blood tests

SPD1
SPD1 in reply to SlowDragon

Hi,

thanks very much for detailing all that SlowDragon Very helpful indeed :-)

SlowDragon
SlowDragonAdministrator in reply to SPD1

As tattybogle said ......many of us “managed” on levothyroxine for years/decades....but, for what ever reason, even with good vitamin levels, conversion seems to diminish as we age

Also, low TSH does seem to affect conversion...but if on high enough dose of levothyroxine, TSH is often suppressed. Catch 22...if you reduce levothyroxine, conversion improves, but not on high enough dose

SPD1
SPD1 in reply to SlowDragon

Hi,

thanks for that..

What i'm really struggling with is although i'm getting so many symptoms my energy levels don't actually seem to have dropped noticeably at all, no where near as bad as when i first went on Levo 18 odd years ago, i'm not overly tired the way i was before going on Levo so i'm really surprised and confused as to why i am experiencing so many symptoms but significant tiredness and overall lack of energy are not really an issue, plus to be losing head hair to the extent that it looks like i will be bald in a couple of months given the fall rate which is absolutely ludicrous given the volume of hair i have always been really lucky to have all my life, and it's affected under arm hair, chest hair, pubic hair, arm and leg hair and now my beard growth has slowed dramatically, i have noticed lots of posts on here about hair loss but it always seems to be that most people experience head and eyebrow loss but not seen anyone else posting about noticeable loss elsewhere on the body, i can't get my head round if its so excessive why aren't i displaying far more tiredness and lack of energy symptoms that you would probably expect if it was purely thyroid, i'm baffled.. :-(

many thanks

SlowDragon
SlowDragonAdministrator in reply to SPD1

Have you had full investigation for hypo pituitary yet

Low cortisol can be due to low Ft3.

McPammy had dramatic improvements in low cortisol once on T3 alongside levothyroxine

Head trauma

Hair loss after head trauma....eg Duncan Goodhume

SPD1
SPD1 in reply to SlowDragon

I really wanted to sit down face to face with my GP as there is so much going on with me rather than a snatched phone conversation which is all i can have at the moment re covid. I am worried sick though that she will immediately jump on the fact that my TSH is 0.01 - 0.03 as she is always trying to get me to reduce Levo dose but i have always argued my case, however with all these symptoms it plays in to her hands and i am worried she wont investigate further or send me to an Endo, mind you an NHS Endo will take months.. i think i'm probably stuffed with this. my gut instinct is that the 2 incidents but probably the head impact primarily has damaged something, pituitary possibly, thyroid maybe but as i mentioned i don't understand why the overwhelming tiredness and fatigue has not returned that i had prior to first going on Levo whilst whatever has happened is causing all the other symptoms. If it was low cortisol would i not be feeling tired with no energy? its baffling. :-(

I will have to take a risk with GP as can't carry on like this and will ask for Full Pituitary test..

I will check out McPammy, thank you.

I read about Duncan G..

Thank you very much indeed for your help.

Hi SPD1-welcome to the forum. I'm new to this too.

I find that my voice gets hoarse quickly, more softly spoken at times and talking can get exhausting at times (although the latter might just be assuring my mum that 'im ok'!' )

SPD1
SPD1 in reply to santiagomark

Hi SM, welcome to the forum.

i have found in the past that even if i accidentally for get to take my thyroxine one day it can affect my voice, thyroidism has an impact and affect on so many aspects.

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