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New to this group need advice

Cazzawendy profile image
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Hello there I’ve had partial thyroid removal 5 years ago due to goitre 6cm with small amount of cancer cells noted no more treatment after needed, however since I’m suffering with weight gain, tiredness, skin flaking and itchy, stomach issues , needing gastro tablets. (Sister fluctuated between hyper and hypo on medication, granddaughter is hyper and on medication aged 9 years old.) I’ve had problems with my bones since 16 years old and now have osteoporosis where have hip replacement 14 years ago, constipation daily, brain Fogg and sweats, they have only tested me when I have asked after leaving it long while; no follow up at all since . So I had a private test done and results came back as follows

T4-86

Tsh 3.09

Free thyroxine 14.1

Free t3 4.1

Thyroid peroxidase 227

Thyroglobulin 533

They rang me to say get in touch with Gp for possible Hashimotosi have taken these to them in beginning of March heard nothing only to ring yesterday and find my list disappeared popped another into them and still no one got back to me; getting frustrated

What should be happening?

Sorry for the long message

Please can help! Thanks

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Cazzawendy
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silverfox7 profile image
silverfox7

Can you post the ranges please for your results. Rangers differ from lab to lab so without them we should only be guessing. They are usually in brackets after the results. If you weren’t given a printout ask if you can have one. If they aren’t on there ask the doctor or the lab you sent your results back to GP.

SlowDragon profile image
SlowDragonAdministrator

High antibodies confirms autoimmune thyroid disease also called hashimoto’s

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Low vitamins tend to lower TSH...so getting vitamin levels OPTIMAL may help get levothyroxine prescribed

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

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