At long last my test results are here despite the Covid delays

Hi all it’s been quite some time since I posted as I’ve been mainly on the p.a forum which has been a great help to me so thank you for pointing me in that direction.

I’ve finally managed to get my bloods tested after supplementing as advised here,so today I had some results back and turns out I have Addison’s disease.my new gp has been first class and has referred me to the private endo of my choice a lovely professor based in oxford who came highly recommended thank you.Appointment is in two weeks.

My results have changed since I first posted here so I’d appreciate your wisdom once again please.

TSH 1.48 range 0.27-4.2 miul

FreeT3 4.63 pmol range 3.1-6.8

Free Thyroxine 14.6 pmol range 12.-22

My folate is still low but I’m guessing that’s because I’ve been having b12 injections so I’ll increase my supplements on that.

[Marz]

Hope your appointment brings you better health soon ... 🌻

[Hidden in reply to Marz]

Hi Marz thanks so much for that,slow but sure I’m making progress x

[magsyh]

Looks like you need a raise of thyroid meds as levels are still too low but you need to address your Addison's first as raising your medication would put more stress on your adrenals. Hope you get this fixed soon and feel better with hydrocortisone.

[Hidden in reply to magsyh]

Thanks so much magsyh that’s what I wanted to hear ,this endo I’m going to has expertise in this thyroid area too.x

[fuchsia-pink]

Assume you had an early morning blood draw, an left 24 hours from previous levo.

In terms of statistics, your TSH is a little higher than many of us hypos like. Your free T4 is only 26% through range. Your free T3 is slightly better at 41.35% though range which means you convert well - but many of us need both of these to be at least top third of range, often top quartile - so there's plenty of scope for a dose increase if you don't feel tip-top x

[Hidden in reply to fuchsia-pink]

Hi I’m not on any thyroid medication.I took the advice here and optimised my vitamin levels then I got retested to see what if any changes I had so that’s why I posted the latest results. X

[fuchsia-pink in reply to Hidden]

Aaah. Then they probably won't treat you as your TSH isn't out of range yet, and most doctors want it waaaay out of range before they'll give you levo

So you'll need to get regular checks of your TSH and see if your doc will treat you once you go out-of-range,

But good luck!

[Hidden in reply to fuchsia-pink]

Thank you for the advice it’s always appreciated.take care x

[magsyh in reply to Hidden]

I wasn't aware you were not taking thyroid medication in that case wait till you start on hydrocortisone you may well see a good improvement in your thyroid.

[Hidden in reply to magsyh]

Thank you magsyh I’m happy to be guided by this new endo he comes highly recommended be nice to have someone who can join the dots.x

[Jamima in reply to Hidden]

I’m watching your progress with great interest as I have similar readings to yours and I’ve been recommended the same endo. I have found another endo near me who I’m speaking to tonight but if I get no joy, I’ll contact your man. Good luck.

[Hidden in reply to Jamima]

Hi a Jamima I went to another endo but sadly it was just money after money and also involved buying big amounts of support supplements which I wasn’t comfortable with taking when we didn’t have the full test reports and investigations done so I decided to part with him.

This endo comes highly recommended by members and I’ve did my homework researching so fingers crossed is all I can say,I got my appointment super quick and I’ve had a lot of updated tests done myself so I’ll update after I’ve spoken to him.x

[Jamima in reply to Hidden]

Please do. I will too.

[SPD1]

Hi,

do you mind me asking how far away from where you live your Endo is? i wasnt aware you could ask your GP to refer to someone in particular, does it just apply to someone within a persons County or could it be anywhere in the UK?

many thanks.

[Lora7again in reply to SPD1]

Mine is 15 minutes away but I wouldn't touch him with a barge pole. I used to work for the NHS and with a referral letter you can go anywhere within the NHS to see the Endocrinologist of your choice. If you find one you want to see I would ring his secretary and ask if he will see you and then ask for a referral letter from your GP.

[SPD1 in reply to Lora7again]

That's really good to know, thanks very much indeed.

[Hidden in reply to SPD1]

Hi there it’s a private endo referral which you can do anywhere in the country if your gp is amenable.

I think you can also ask your gp to refer if you have an nhs endo in mind and your willing to travel but I’m not 100% on that I’m sure someone here can give better advice sorry.x

[SPD1 in reply to Hidden]

Many thanks.

[Hidden in reply to SPD1]

Can pm his details and costs if it’s any help to you x

[SPD1 in reply to Hidden]

Please, any suggestions very welcome. thanks.

[Hidden in reply to SPD1]

Pm sent to you good luck x