My GP consulted rheumatologist about thyroid (k... - Thyroid UK

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My GP consulted rheumatologist about thyroid (kinda funny)

Justiina profile image
7 Replies

Got called to get retested TSH,ft4 and,ft3 because my ft4 and ft3 dropped but TSH didn't rise.

19.03 2020 /07.05 2020

TSH <0.01 ->0.18

FT4 20.8 -> 10.1 (10.2-21)

FT3 8.7- > 4.7 (3.5-6.5)

At first I thought they mixed up patients as I don't have arthritis and haven't asked for rheumatologist but I assume it was closest to endo they could think of 😄

I expected antibodies tested too but no. Fortunately my functional doctor happened to call today and got me referral to TPOab and thyglab. He said if those are negative as well then ultrasound as cause must be find before we start treatment.

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Justiina profile image
Justiina
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SlowDragon profile image
SlowDragonAdministrator

See from your profile you are in Finland

Yes rapid and significant fluctuations in TSH, Ft4 and Ft3 strongly suggests Hashimoto’s

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in EU is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

All four vitamins need to be regularly tested and frequently need supplementing to maintain optimal levels

20% of Hashimoto's patients never have raised antibodies and ultrasound scan of thyroid is always recommended

healthunlocked.com/thyroidu...

TSH is frequently unreliable and unresponsive with Hashimoto’s

Ruby1 profile image
Ruby1

I know nothing compared to many on here, however I believe rheumatoid arthritis is an auto immune condition like thyroid conditions can be, so it doesn’t surprise me. Perhaps there were other signals? I also believe when you have one autoimmune condition there is a chance you’ll get others.

Have you been referred to rheumatology or was it that the doctor asked his advice?

Justiina profile image
Justiina in reply to Ruby1

There is no endo in my local hospital so rheumatologist apparently is someone closest to endo because they asked rheumatologist to review my thyroid. I have no symptoms of rheumatoid arthritis.

Yeah it's better than nothing when my GP is clueless as rheumatologist probably faces more autoimmune thyroid problems than GP and has some idea. Unfortunately the rheumatologist also dismissed antibody testing!

Fortunately my functional doctor got those sorted out, but he was upset that my GP went to rheumatologist and they still did not come up with better plan, but he figured that GP and rheumatologist only care about the TSH and that freaked them out. Will see.

Ruby1 profile image
Ruby1 in reply to Justiina

Ah I see. That makes more sense then. Glad your regular doctor is on the case!

Batty1 profile image
Batty1 in reply to Justiina

If I didn't have thyroid cancer I would rather have my Rheumy deal with my thyroid levels...my Rheumy was the only doctor who said get her thyroid levels under control and her cholesterol will fix Its self when all the other medical savants said your thyroid levels are goood.... I wonder if my Endo was offended by my Rheumy, hope so!

Justiina profile image
Justiina in reply to Batty1

Yeah , I am not saying the rheumatologist is useless but it's sad even the rheumatologist missed antibody tests. Fortunately my functional doctor got that sorted.

ling profile image
ling

Finally : )

When will all the test results be available?

You had TG antibodies tested some years ago and it was really high. It would be worth a retest.

Btw, what is thyglab?

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