Hi, I need help. 3 years I was a perfectly healthy woman or so I thought. I started getting neck pain and went to the doctor. After a minor examination of my neck the GP said I had a huge thyroid. I had no idea what that meant so she sent me for an ultrasound and low and behold I had a 9cm mass and a 2cm nodule. I was sent to a surgeon and told they were going to remove my thyroid in which they did. They found cancer on the back of the thyroid in the healthy skin which was the size of a grain of salt. They called it an accidental finding.
From that day to this my life has literally been a nightmare of sickness, hospital visits and being told I have anxiety and multiple referrals to psychologists. I am perfectly fine mentally it’s physically that is a nightmare. During the operation they accidentally took out all my parathyroids and found 2 of them and shoved them back in. I had calcium problems for 2 years and still need supplements to cope.
I was started out on 150 of Synthroid and for 6 months was in a state of pure hell. Then switched to levothyroxine and made me worse. Constant pain And vision problems, shaking, feeling cold and buzzing in my ears.
Late last year I was sent to this “fabulous” new doctor who put me on 7mg of armor thyroid and kept me on that for 3 months. Yes I said 7mg of armor. My lungs and bowels shut down and my heart was in risk of failure and every time I went to the hospital I would be told it’s in my head. My tsh was over 99 and I had no t3 in my system and my t4 was minimal. At the beginning of 2020 I was rushed to hospital and told I had to go back on levothyroxine and they started me on t3 called cytomel. 150mg of levothyroxine and 5mg of cytomel.
Fastforward 4 months and I’m in constant state of shaking, I feel like my spirit is being pulled out of my body, my whole body hurts/agony and I can’t sleep at all.
My endocrinologist took my blood work and said it’s all normal, I told him but I’m so sick I can’t live like this. He said it’s not his job to make me well but to get my numbers right. In order to “feel” well I should take up yoga or meditation.
Here are my results. I know that I was supposed to wait 12 or more hours after medication to get my blood tests but they said they only had one available opening so my bloodwork was taken 6 hours after my thyroid medications.
Calcium ionized Standard 1.15-1.33 mmol/L. Mine. 1.14mmol/L
Ferritin. Standard 16-232 Mine. 79
Folate. Standard >5.4. Mine 11.0
Vitamin D. Standard 30-100ng/ml. Mine. 36ng/ml
Vitamin B12. Standard 200-1100pg/ml. Mine. 705pg/ml
T3 Free. Standard 2.20-4.10pg/ml. Mine. 5.43pg/ml
T4 Free. Standard 0.58-1.64ng/ml. Mine 1.09pg/ml
TSH. Standard. 0.450-5.330ulu/ml. Mine. 1.178ulu/ml
T3. Standard 0.9-1.8ng/ml. Mine. 1.4ng/ml
T4. Standard 5.5-11.6ug/dL. Mine 11.5 ug/dL
Calcium. Standard 8.6-10.3mg/dL. Mine 9.1mg/dL
Any help would be so appreciated.