Hello my lovely helpful friends Ive been back on 150mcgs of levothyroxine for over a year after coming of naturethyroid ..due to all symptoms returning been feeling really unwell recently... thus results
Could not believe my results TSH 10.4 , T3 3.5 (3.1-6.8) Free thyroxine 16, 12-22 ...
Been onto my endo and going to start ERFA 2 and half grains as from tomorrow Thursday ...
Please Help me to understand
Sending love Stay Safe Stay Well x
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you did this test?
results suggest You were under medicated.
Ft4 only 40% through range
Ft3 only 11% through range
Poor conversion
Likely low vitamin levels due to being under medicated
Have you had vitamin D, folate, ferritin and B12 tested?
Tuvm slowdragon yes test done early morning fasting for 12 plus hrs only water no levo for 24hrs vits are optimal b12 d3 been taking these orally for over a year plus b vitamins but stopped all b vits 1 week before test ....i take spatone for iron daily but stopped that also for 1 week....
So you needed dose increase in levothyroxine
But you are poor converter
Do you have Hashimoto’s?
Have you had Dio2 gene test?
Yes i am a poor converter slowdragon and yes had the d102 test negative yes i have hashis ....for over 20 years ..
For clarity, the gene that affects T4 to T3 conversion is called DIO2 - that is, three letters and a number. Not D102 - a letter and three numbers. Not DI02 - two letters and two numbers.
The name comes from the enzyme that this gene affects which is a deiodinase. It removes an iodine atom from a thyroid hormone molecule - it deiodinates it.
On this forum we probably understand, but if you wish to look it up anywhere, it might help to get it right. If you are discussing with a doctor, and get it wrong, you are providing an excuse for them to dismiss what you say.
(More strictly, two single-nucleotide polymorphisms (SNPs) on the DIO2 gene, rs225014 and rs225015.)
academic.oup.com/jcem/artic...
The Wiki article provides a basic introduction as to what a single-nucleotide polymorphism (SNP) is and why it can be important:
en.wikipedia.org/wiki/Singl...
Many thanks helvella yes D1O2 is what i meant typo...i have had the test carried out privately and i have also read many articles on the subject and bought many books but thank for your help.
Are you dairy intolerant and/or gluten intolerant?
Gluten yes try very hard to stick to gl free diet slowdragon
Hi Christinah , I am sorry I can’t help you understand , but I can sympathise as I am still trying to get the right dose myself..Your results are not good ,no wonder you feel unwell.. like me you definitely need t3 . Good luck with starting ERFA hope it doesn’t take long to start working x
Thanks Bev yep just been plodding on with other issues as we all do and probably got a bit fed up testing all the time and just carried on 150mcgs daily of levo hoping id be ok ...unfortunately it bites u in the bum just to let u know its still there causing all its bloody horrible symptoms until u go downhill and feel awful ..so contacted endo told her i would like to try something else so suggested ERFA so we will see get another test done in 6 weeks. Sending you safe and well wishes take care bevxx
Oh no Christina 61
I’m sorry to hear you’re not doing very well it’s so hard ! We both tried Nature Throid at the same time and got really ill we both went back to Levo 
if it’s any consolation I’m still on 100mg of Levo my results are bad but not as grim as yours ! I really hope Erfa work for you please keep me posted on your progress . I’ve got some Thyro Gold I was just about to start it when we went into lockdown so I held off incase I had a bad reaction as I’m not supported by my Dr or Endo so I will let you know if I have any progress 
Good luck and stay safe
Kazbe xx
Hi Kazbe thanks for your message yes youve got to be positive and look forward so heres hoping i was wishing that levo wud be enough but i need t3 too...and im an awful convertor to ...i wish you also the best with thyrogold and send stay safe love and best wishes to you ...let u know how i progress xx
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