No call back of gp : I’ve just written a post,gp... - Thyroid UK

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No call back of gp

Denne profile image
14 Replies

I’ve just written a post,gp took liothyronine off me with no notice,been on it about 5yrs,I’m under an endocrinologist, can I make a formal complaint and is so to who ?

Many thanks for my reply’s previously,most helpful,I’m learning.

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Denne profile image
Denne
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14 Replies
SeasideSusie profile image
SeasideSusieRemembering

Denne

I would get in touch with your endo or his secretary.

Denne profile image
Denne in reply to SeasideSusie

they say they can't prescribe it.

SeasideSusie profile image
SeasideSusieRemembering in reply to Denne

But your GP shouldn't just stop prescribing, you need to be referred back to endo for review as SlowDragon has mentioned in her reply to your previous post here:

healthunlocked.com/thyroidu...

It would seem that the same thing happened a couple of years ago according to this post:

healthunlocked.com/thyroidu...

What happened to get T3 reinstated by GP back then?

Yes,the same thing happened to me ,thus my Endo has taken over providing my T3 Lio .

However, a 16 mile round trip to the hospital to get my prescription won't happen at the moment ,so have been advised to contact his secretary and have it sent by post.

Our GPs and CCGs have picked a good time haven't they ?

holyshedballs profile image
holyshedballs in reply to

A journey to collect medicines is exempt under the law. According to The Health Protection (Corona Virus) (Restrictions) Regualtions 2020

Regulation 6

(1) During the emergency period no perosn may leave the place where they are living wouthout a reasonable excuse

(2) For the purposes of (1) above, a reasonabel excuse includes the need -

(a) to obtain basic necessities, including food and medical supplies for those in the same household ....

(c) to seek medical assistance including access to any of the services referred to in paragraph 37 or 38 of Schedule 2

....

Schedule 2

37. Dental services, opticians, audiology services, chiropody, chiropractors, osteopaths, and other medical or health services, including serviceds relating to mental health.

38. Veterinary Surgeons and pet shops.

Batty1 profile image
Batty1

I'm confused how the Endo can prescribes T3 but can't give the prescription this is handed over to the GP so he/she can either ignore the order or prescribe the T3, which it seems it's mostly ignored.

Is their a reason why the Endo can't prescribe and then you pay out of pocket for it?

in reply to Batty1

"Is their a reason why the Endo can't prescribe and then you pay out of pocket for it?"

Where I live NONE of the GP's or endocrinologists is permitted to prescribe NDT at all..........BUT! A consultant has been appointed who is permitted to do precisely that, but ONLY on a private prescription, ie the patient pays the entire cost.

The strange fact is that she is NOT an endocrinologist, but a breast and thyroid SURGEON!

In other words she is there to satisfy the requirements of those, like me, who complain too much about levothyroxine monotherapy for reasons such as insurance or whatever.

I refuse point blank to get my NDT in that manner as I consider it to be indistinguishable from making a pact with the devil.

Batty1 profile image
Batty1 in reply to

I guess I don't understand why the endos are not permitted to give a script and you pay the cost as (not part of our formulary) I do this since some of my medication goes from regular brand to generic and I decide no to generic I pay 80% of the script cost by taking the written prescription to pharmacy .....I know alot of people think generic is just as good as a regular script of the same item and "yes" that's true for some stuff but not everything.

Denne profile image
Denne in reply to Batty1

just told by endo secatery that endo won't prescribe then my appointment was moved from March to May.

holyshedballs profile image
holyshedballs

A GP must not unilaterally stop your T3.

According to Good Medical Practice the GP msut consult you first and take account of your views.

According to NHS guidance, the GP must refer you to an Endocrinologist or with consultant Endocrinologist support.

Accoring to Good Medical Practice your GP must consult you berfore making any changes to your medication.

According to the REgional Medicines Optimissation Committee (RMOC) the GP must not stop your T3 without referring you to a consultant endocrinologist.

You must then demonstate that you have a clinical need for T3. I suggest showing that your brain fog resolved, your mood lifted, you have more energy, weight improved, etc.

Complain to the GP and the CCG, quating failure to follow GMP guidelines, failure to consult you, failure to follow RMOC guidelines,

if you get a negativ eresponse I sugges complaining to the GMC.

Denne profile image
Denne in reply to holyshedballs

Hello again,because gp stopped my liothyronin with no notice the he had the audacity to pass me round all the practitioners saying,feel free to ask another gp,I've been on a merry-go-round with gps n no meds,I reported them all yesterday to nhs England is that gmc.

Denne profile image
Denne in reply to holyshedballs

thank you.

holyshedballs profile image
holyshedballs

OK

refuse to go the other GPs

Demand to see a consultant Endocrinologist

tell them thats what the guidance says

NHS England is different body to the GMC.

I would download the guidance (my browser is palying up - i cant paste the link)

and the BTA guidance search for brithish thyroid assiciation precription of liothyronine in primary care.

i would complain to the Clinical Commissioning Group first, then NHS England

Denne profile image
Denne in reply to holyshedballs

thank you.

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