Would someonle like to comment on results after 3 months on 10mg carbimazole a day.
8/2/19 tsh 0.008 .Free t3 7,0. Free at 19.4.
3 months on carbimazole. 10 mg.
Latest results tsh 1.4. Free t3 5.1 free t4. 9.2.
Ref range. Tsh 0.5- 5.5, free t3 2.7 - 6.1. Free t4. 11.0 - 22.0.
They want to take my thyroid out. My thoughts are that gp nor endo want to help me keep it.....sorry type error that is ft4 19.4. On previous 8/2/19 result..
Your FT4 is now below range, so your results suggest you need dose decrease in carbimazole
Is Graves' disease definitely confirmed by TSI or TRab antibodies test?
Have you had vitamin D, folate, ferritin and B12 tested? These are frequently too low with Graves or Hashimoto's
Have you tried strictly gluten free diet?
Helps thousands of Graves or Hashimoto's patients
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
Thank you. I Dont have graves disease. I have thyroxicosis and multi nodular goiter. I should get carbi dose dropped because I feel hypothyroid.
In that case, carbi is not the right treatment for you, and never was. Have you had your Hashi's antibodies tested: TPO and Tg? If you have Hashi's, you certainly don't want to have your thyroid out!
Insist on having those antibodies tested, and if they're high, coming off carbi. Those results above certainly look like Hashi's too me.
Thank you. I Dont know what hash's is. But I've not been tested for it. My trabs have been no graves that's all. I will look up what hashi's symptoms are thank you. You'be given me a lot to go on.
Hashi's symptoms are the symptoms of hypothyroidism. Hashi's starts with a period of high, hyper-like blood test results - like yours above, but not high enough to be Grave's - and then you go hypo as the excess hormone is used up/excreted. But, it's not hyperthyroidism/over-active thyroid causing it. It's the cells of the thyroid being killed off by the immune system, and stores of hormones being dumped into the blood. Therefore, giving anti-thyroid drugs is the wrong treatment.
Hashi's is also called Autoimmune Thyroiditis in the UK.
I honestly suspected that because my neck started to swell on one side and very painful and tender. But my gp just said : that needs to come out . thank you. I understand what you describe as hashi's. I will insist on antibody testing. Is there a reason for not having thyroid out if I have hashi's ? Best regards.
Hello again,
Well, if I remember correctly you are now only around 3 months into anti thyroid medication.
Generally in the uk you would be given about 15 months on ATDs to try and give your thyroid time to stabilise, come into range - which you are now - and with a view to try and lower the ATDs to attempt to find remission.
There should be no rush to remove such a major gland - and yes, I think your assumption correct.
Is there any chance of finding a different doctor and or endocrinologist who have some respect for the human being standing before them ?
I Dont understand why my gp did not tell my ft 4 status is low. I got these results myself from gp receptionist who tells methe gp has read them 2 weeks ago. My end put me on carbi for 6 months before testing again. I went to gp because I felt so tired cold and very depressed. Been that way for a while now. I have appointment with general surgeon in 2days...think I might cancel that.
Hey there, the tiredness, coldness and depression that you describe are all symptoms of hypothyroidism - as your blood test results now validate - you need a reduction in the carbimazole to see if your thyroid can come back into balance and can stabilise with as little as possible medication.
See you are in Australia
For full Thyroid evaluation for Hashimoto's (autoimmune thyroid disease) you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
If TSI or TRab antibodies are negative for Graves' disease, then this is most likely Hashimoto's.....and as greygoose says carbimazole is not usually recommended for Hashimoto's
Suggest you get vitamins and antibodies tested....also cholesterol test
High cholesterol is linked to being hypothyroid
Read up as much as possible about autoimmune thyroid disease
Most medics ignore the autoimmune aspect....but patients find getting vitamins optimal and looking at food intolerances can make enormous difference to symptoms
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Thank you. My cholesterol shot up after being excellent. Have trouble with gluten. Vit d low. I take supps now. I'm very glad a talked to all of you. It sickens me to think I am not being treated properly. I can do this now.
So it sounds like you either have Hashimoto's and/or over treated on carbimazole
Vitamin D is frequently low with Hashimoto's or Graves
ncbi.nlm.nih.gov/pubmed/286...
Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.
endocrine-abstracts.org/ea/...
Evidence of a link between increased level of antithyroid antibodies in hypothyroid patients with HT and 25OHD3 deficiency may suggest that this group is particularly prone to the vitamin D deficiency and can benefit from its alignment.
Yes. I'll sleep on all this now. Its a lot to take in. I Dont know what the problem is with it. Am I supposed to think that if my gp doesn't think there's a problem then neither should I.? Just send me off to the surgeon and let him cut it out ? Sometimes I think doctors think patients have no brains or even common sense enough to ask questions when you know something's not right. My brain should work better by morning I'll have another go at it then. Thank you. Keep sending to me. But instinct is telling me to get other tests and a drop in carbimazole dose.
I want to thank everone who commented on my thyroid function test results. I saw the syrgeon today. I'm underactive and i suspected it. He told ne to stop taking carbimazole because its making the condition worse. My thyroid thyroid os now 10 times bigger than it should be. I'm shocked my gp didnt address the abnormal results especially when i described my symptoms before the tests were done. These results were not sent to the specialist . id still be taking carbi if i hadn'd gone to surgeon today. Monday i app. With my gp. I will insist on those other test you mentioned before. I've read up harshimotos . i get that. Carbi did its job but too fast and nobody but me picked up. You picked up and i'm more than glad you did.
Hey there,
What a good job you didn't cancel this appointment with the surgeon -
I know you must be feeling very upset at present - take all of Slow Dragon's information on board, get the full vitamins and minerals tested alongside the full thyroid panel and re-post the results with the ranges when you have them.
Try and stay calm, stress will only exacerbate your symptoms.
Keep strong, and maybe is there a thought as to finding another doctor ?
Ok will do. And yes i may need to fire this gp. And i'll tell her why on monday. Regards.
Well, initially try and use her to your advantage by getting all the blood tests as advised on here. She might be truly apologetic, and have read up on all things thyroid and become the best thing since sliced bread ? !!!! ?
Play for time, just see who else is out there, in your area, and try and get some recommendations and feedback from other people in the area.
Yes . just about to tell that. Whilst i've got her attention i'll insist on those blood test...feel better already. Lol
Just remembered too. I read somewhere that if antibodies are in a nodule (and i've got lots) they may not show up in the blood test...have you heard of that?
No, sorry - maybe start another post headed up just with this question as you may not get picked up here with an answer ?
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