Advice please: So had a TT in aug 2018cancer... - Thyroid UK

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Advice please

paul1979 profile image
18 Replies

So had a TT in aug 2018cancer contained

Had rai Oct 18

My anxiety is just unreal.

Was ok on 150mcg levo

Put me up to 200mcg went off my face

Now on 175mcg and having anxiety and mood swings

39 year old male

TSH won’t stay under 1 on 175

I am thinking of dropping back down to 150mcg

To get the anxiety to STOP

I would rather be hypo than the anxiety

Need my life back.

Waiting to hear a out T3

What are the dangers of having my TSH above 1 ???

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paul1979
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SeasideSusie profile image
SeasideSusieRemembering

The following articles may help with whether or not your TSH should be low/suppressed

btf-thyroid.org/information...

thyca.org/pap-fol/more/tsh-...

pennyannie profile image
pennyannie

Hey Paul

Have you taken the 10 T3 and dropped back down to 150 T4 as suggested in previous post 3 days ago ? This action alone will reduce your TSH down - hopefully you might also find relief of some symptoms.

paul1979 profile image
paul1979 in reply to pennyannie

Hi penny. Fighting with gp for T3. Find out Monday. Just want to stop all together

pennyannie profile image
pennyannie in reply to paul1979

Oh, I'm sorry I must have misunderstood - I thought your endo had sanctioned 10 T3

and had started you off with a prescription.

OK then, hang on in, it's only tomorrow -

I am sorry for your having to fight for your health like this - it's so unfair.

I'm with Graves Disease, post thyroid ablation with radioactive iodine - my fighting my corner was making me more ill, as Graves symptoms are exacerbated by stress and anxiety - I've vacated the shooting range and am self medicating - it's truly very upsetting, and doubt anyone not affected would believe what we have had to go through to try get our health back on track.

It shouldn't be down luck, but I'm wishing you some for tomorrow -

paul1979 profile image
paul1979 in reply to pennyannie

Thank you. Penny. Endo happy but gp is playing the budget game. She wants the hospital to cover half the costs of the T3

pennyannie profile image
pennyannie in reply to paul1979

That's simply despicable behaviour - whatever happened to the oath they all take of " do no harm " ?

Well I suppose you could go in with it all in small change and put it on her desk ?

I would think an endo overrides a GP in matters like this - maybe source your own T3 in the meantime, though I've a suspicion you're already on that one.

I'm lost for any words 'cause this doesn't make any sense -

shaws profile image
shawsAdministrator

I am not medically qualified and have my thyroid gland but I sympathise with those who've had their gland removed altogether and several research teams have shown that a combination of T4/T3 may be more conducive for people who aren't improving on levothyroxine.

I have my gland and, for me, levothyroxine caused me to be far more unwell.

I have recovered my health on T3 alone. There was no comparison for me.

All our bodies are different but T4 - inactive hormone - cannot compare with T3 - the Active thyroid hormone and we have millions of T3 receptor cells - heart and brain contain the most - and all need T3.

Quite a number of Research Teams have shown that those not improving on T4 do so with T4/T3.

I assume that you pay for your prescription, why not then order your own T3. The cost is around £18.33 for 30 tablets at 25mcg. prescription not required.

You could either 1/4 one to start with and then increase by 1/4 every two weeks until you feel well, this would lower your TSH and keep it suppressed.

It depends on how much you use if just a half every day the cost would be around £9 per month.

paul1979 profile image
paul1979 in reply to

Great thanks. Could you PM a link of where to buy it from ?

paul1979 profile image
paul1979 in reply to

1/4. What’s that?

in reply to paul1979

T3 is strong it is best to start off with very little and work up. One quarter of a 25mcg tablet it's easy to just cut one into four and start with that, OK?

Mishymoo22 profile image
Mishymoo22 in reply to

hello there

very similar to your self

i still have my thyroid but do not well on levothyroxine

i am on 200 a day but still have depression tiredness a massive weight gain and really burning tingling in my feelt. also joint pain in my arms especially in the mornings.

i eat really healthy food and try to keep active

yet people i have known for years comment on my weight gain

would yo tell me please how to obtain and purchase T3

thanks

paul1979 profile image
paul1979 in reply to Mishymoo22

Hi. I am fighting with my GP to issue it. My endo has agreed but can’t get go to issue.

I have been told you can buy T3 online

paul1979 profile image
paul1979

Happy send me the bill.

paul1979 profile image
paul1979

It’s was papillary contained in the thyroid. No nodes affected but it was very large nodule 6.5cm

Yes I am 39

Thyrog under 1

Mishymoo22 profile image
Mishymoo22

thanks

i would like to purchase it .

i am trying to get my latest results from GP then i am having private tests done

i will need to grease the front door to get in the house soon :-)

paul1979 profile image
paul1979 in reply to Mishymoo22

Trying. Just walk in and ask them to print them for you. I do

Mishymoo22 profile image
Mishymoo22

i will.

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