RAI: Hi all, next Tuesday I am going for an... - Thyroid UK

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Nat1972 profile image
9 Replies

Hi all, next Tuesday I am going for an uptake test for RAI. Just wondering about the length of time you need to be in isolation for afterward. How have you felt after having RAI?

I have been suffering with Graves for twelve months and the Carbimazole is not working. I have a nodule and goitre and antibodies for both hashimotis and graves.

Just wondering how RAI went for others? I am a little nervous.

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Nat1972 profile image
Nat1972
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9 Replies
paul1979 profile image
paul1979

Do U have kids under 16?

I was isolated for 2 days in hospital then 7 days before I could see my 2 year old son

bantam12 profile image
bantam12 in reply to paul1979

Was that normal dose RAI for Graves or higher dose RAI for cancer ? It's very unusual to be in hospital isolation after a normal dose.

When I had it was able to go home and virtually carry on life as usual, I had young children so just kept an arms length away for a week or so, still did the school run and so on.

paul1979 profile image
paul1979 in reply to bantam12

Mine was cancer

bantam12 profile image
bantam12 in reply to paul1979

Ok that explains it, much higher dose hence isolation, Lower dose for Graves doesn't need isolation.

Nat1972 profile image
Nat1972 in reply to paul1979

I have two kids 13,12 and husband and a clingy dog! So depending on what the uptake test says then depends on the dose. I will see on Tuesday!

gregorydocker profile image
gregorydocker

Hi Nat,

I am due to take RAI in the next two weeks so I can relate. This probably doesn’t help but thought I would reach out anyway as I’ve also felt a little nervous about my situation.

I have Graves and have some harmless nodules on my thyroid which stressed me out mega but luckily we’re benign.

I’m nervous about RAI because I have to stop my medication and I’m currently under control.

I’ve researched the start of time with everything related to thyroid issues and treatment and I think it’s safe to say we’re heading down the right route and to provide some reassurance, I know our doctors have a plan.

Let me know how it goes for you?

Doug

Greekchick profile image
Greekchick in reply to gregorydocker

May I ask you why you want to have RAI if you are well controlled on your medication? I am just curious if there are other reasons your MD wants to do this procedure on someone who is doing OK .

Greekchick profile image
Greekchick

Hello,

Do you have a large goiter? Have you also been presented with surgery as an option?

Nat1972 profile image
Nat1972

Hi, thanks for your reply. I got it done and it’s the best thing I could have done. I have felt the best I have felt in years. I got the RAI end of March and afterward I felt lousy for about three weeks then all of a sudden things changed and for the next two week I felt fab! Now I am serverly underactive and I have started on 100mg of Levo. So now I start my journey with no thyroid! I believe now I have done the right thing. When you are overactive you are naturally anxious and wired which doesn’t help and when the carbimizole doesn’t work you don’t have many options...

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