In 2005 I was diagnosed with a underactive thyroid at the time my doctor stated my antibodies were attacking my thyroid. At the time I had all the standard symptoms and more got the correct dosage straight away on 125mg levothyroxine, result come back fine every year since taken. Since however I have had repeated symptoms that do no go way just keep coming back and back and back. brain fog, Tinnitus, Headaches, nausea, Dizzy spells, exhaustion/dry skin issues/headaches. weight gain gone though In the past 4 year however I have had more headaches/blocked ears/worse dizziness/sound + light sensitivity, Tinnitus goes through the roof and more. depression/anxiety. Doctors don't know what to do! as they cant see anything wrong as my levels are where they should be. Been to ENT they don't think anything wrong with ears Meniere ruled out 2010 and 2018, Now passed to a neuro as maybe migraines. My question is has anyone had repeated symptoms even though after taken Levothyroxine levels showing as normal?. I ask because I am getting older 44 years young however my ongoing symptom's are taken more of a toll before I used to get on with it now its hard to ignore. My ENT stated I am the type of person that is predisposed to be aware of their symptoms! to which I reply its hard not to when it been ongoing for years. This started around the time is was diagnosed with UT can away relate
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Craig520
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Do you have your latest blood test results you can post? If not, just ask at your surgery's reception desk for a print out then post yoir results including the reference ranges - don't accept verbal or hand written results as mistakes can be made.
Sometimes, low nutrient levels, or deficiencies, can cause symptoms - tinnitus and dizziness can be low B12. So if not already tested, ask for
Vit D
B12
Folate
Ferritin
When we see all your results we can comment further.
* Book the first appointment of the morning. This is because TSH is highest early morning and lowers throughout the day. If we are looking for a diagnosis of hypothyroidism, or looking for an increase in dose or to avoid a reduction then we need TSH to be as high as possible.
* Fast overnight - have your evening meal/supper as normal the night before but delay breakfast on the day of the test and drink water only until after the blood draw. Eating may lower TSH, caffeine containing drinks affect TSH.
* Leave off Levo for 24 hours before blood draw, if taking NDT or T3 then leave that off for 8-12 hours. Take after the blood draw. Taking your dose too close to the blood draw will give false high results, leaving any longer gap will give false low results.
These are patient to patient tips which we don't discuss with doctors or phlebotomists.
To get a full picture, you really need TSH, FT4 and FT3, although FT3 is rarely done even when a GP requests it as it's the lab who decides if it is going to be done. This is why so many of us here do private blood tests.
Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
As SeasideSusie says, it's absolutely essential to regularly test vitamin D, folate, ferritin and B12
Frequently we need to supplement dome or all of these regularly to maintain optimal levels
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ideally ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
Welcome to our forum Craig520. I'd copy your thyroid history, above, and put it in your Profile i.e. you've just got your name within it. It makes it easier for members to read in future if you have other posts at times and then they don't need to ask repeat questions.
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