"An aside – (Additional information, as provided to me)
I should mention here that I have been told that the RCP has been asked on numerous occasions to cite references to research/studies showing “overwhelming evidence supports the use of thyroxine (T4 alone)”, but to date, they have provided none. A Freedom of Information (FOI) request that the RCP provide such evidence – again met with no response. A request was made via the ‘Ask for Evidence’ website, run in association with ‘Sense About Science’ asking for evidence on the safety and efficacy of L-T4 as a treatment for hypothyroidism. This request was directed to the RCP who eventually responded stating “The RCP’s guidance is based on the opinion of an expert panel which was temporarily formed for this purpose. The evidence they used to form their individual opinions has not been collated and therefore the RCP cannot provide any evidence list”1 (Jolly, as they say, good)
Restricting the diagnosis and treatment of hypothyroidism to measuring T4 and TSH, and nothing else, is the approach that seems to be used by conventional medicine in the rest of the World. I recently received an e-mail from someone in Singapore telling me that their doctor was about to be struck off for prescribing T3 to patients- against Singaporean medical rules. In the UK, T3 testing is virtually banned, and the medical authorities are making it virtually impossible to prescribe T3 in any form.
If any member hasn't read the whole link, it is worth a read.
Another excerpt:-
"I would just like to add that when I was recently in England (I live overseas) I was shocked to find out from a pharmacist that a box of 100 20mcg Cynomel (T3) from Sanofi (made in France) costs £350, yes you read that right, can you believe it? Well, in my country it costs £17, yes, that’s right, so who is profiting from the sale of T3 in the UK, ripping off the NHS and thus depriving patients who need it? This is a scandal. I can not understand why the NHS does not source it directly from Sanofi in France.
Believe me, it is not just GPs in the UK who are badly trained in Thyroid issues, I believe it is the case in many other countries. Health services, medical schools, hospitals, are all beholden to the pharmaceutical companies, and the GPs must not step out of line for fear of losing their license. And yet, I can not understand why endocrinologists keep such a closed mind. For supposedly intelligent people, they are quite stupid when it comes to the thyroid (and adrenals for that matter) and turn a blind eye to the real issues, and the effective ways of treating the problems that are caused by Levothyroxin.
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What I don't get is how they get away with not being able to supply evidence but able to continually and systematically spout rubbish? If they have no evidence of the group/minutes/meeting and decisions made, and relevant reasoning, then it should be deemed that they have NO evidence?
I still hold that the reason for withdrawal is not cost, The cost was and is still being orchestrated to be an excuse, but they do not want the benefit of T3 known. That is the benefit in reducing heart condition, reducing fertility and pregnancy problems, reducing mental health disorders, reducing incidences of diabetes....etc etc...No profit in well people. Question is - who and how many involved in facilitating this?
I so agree with you and your thoughts on the alternative agenda - keeping people sick ...
We often hear the comment that Big Pharma is bigger and more powerful than any government - well now we know !
An expert panel temporarily formed - amused me - found a few mates down the pub and handed them their reward for the next round ...
Dr K always said he would one day pick up on the Thyroid issue once he had finished with - What really causes heart disease ... so glad to see him in action ...
Only the government can step in and deal with the over pricing and as they have yet to do it - begs another question - how many snouts are in the trough ?
And for how many decades has this been going on, grooming the next generation coming through. Because this is not a new issue. It smacks of long term corruption.
One of our Advisers resigned his Licence so that he could treat people as he wanted and he couldn't be pursued. He stated that levo became No.1 due to payments/handouts to doctors and endo to prescribe Levo instead of NDT.
Hi there - I am not sure it is a closed mine endo's have - having battled for over 25 years with such a complex condition which includes or is mastered by the thyroid and the adrenals - I have had to tweak my condition on a daily basis to keep going and to stop serious symptoms taking place. If I can explain that even having a hot chocolate when out shopping causes a pain in my muscles particularly the left leg - and I end up limping out of M&S or wherever - that's how sensitive everything is with me - I have finally drilled this down after all these years to being a sex hormone adrenal gland issue - i.e. low DHEA etc. - and as I said to my husband - having been to numerous endo's and other departments over the years - the main thing they did not test for was all the hormones - I had to go overseas - I am now taking the deficient hormones prescribed and I feel so well. The endos in this country don't have a closed mind their expertise in this field is practically non-existent - I went to see a Professor in the UK recently and said I am taking Pregnenalone - he said I haven't heard of that one - let's ask Dr Google - in front of me - then sent my GP a letter saying she is taking Preg and I am more than happy for her to continue. You could not make it up - I am not advocating anyone take what I am taking I have been diagnosed as deficient by blood tests - I can see how endo's don't want to open pandora's box with each patient - as they haven't got a clue in my opinion how to deal with them.
You could not make this up either. Whilst living in France and visiting my Endos I asked for her to include a Vitamin D test and she actually had to go to her computer to find out about it. I did have the test done though.
Hi that is such a shame because many years ago I worked with a lady who was French but living in UK and she used to travel back to France every so often to get her vitamin and minerals tested because they did them in those days - so did Australia but I think that has stopped also and the normal healthy Australians are suffering with health issues just like everyone else now. I have had every test available on every part of my body over the years due to severe symptoms and nothing found that could count for the symptoms I was suffering - in my opinion if that happens it can only be one thing and one thing only - a hormonal issue and they don't do that as a matter of course here. Vitamin D is a pro hormone not a vitamin as such and is vital to make adrenal hormones etc. - so is cholesterol - so it horrifies me when I hear people on statins taking away their valuable cholesterol that is so needed by the human body. If they tested for Progesterone as a matter of course - it would show if the adrenal glands are being supplied with enough cortisol - because progesterone whizzes off to the adrenals glands to make cortisol if not enough being produced - if nothing else here I have realised how wonderful the human body is and how it will attempt to grab hormones or vitamins and minerals to supply whatever part of the body is malfunctioning. I was saying on another post that when I have a hot chocolate (have given up coffee as not good for my kidneys) my left hip and the thigh muscles kill me with pain and I am limping afterwards - with some research worked out it was the muscles connected to the adrenals/kidney area and the chocolate was not being met kindly by either and was showing up in this way - my husband says to me every time - how is the leg - I say Yep pain has stated - he is always incredulous about this saying - that's amazing - what Dr would ever have worked that out - it passes but is most painful for about 15 minutes.
Maybe they don't need to be paid if they sought the assistance of Mr. Google. We can do that ourselves. I think the majority on this forum know far more than the top Endo.
I looked up what was causing the muscle pain I was experiencing after hot chocolate and believe it or not the cocoa bean has a direct result on the kidneys and muscles so that is what I am feeling a ping in the kidney which makes my muscle hurt.
It happens in the U.S., too. The cost of Epi-pens (for emergency use in anaphlactic shock) went from $94 for a set of two to over $700 for a pair when Mylan bought the device from a competitor. But many, many drugs cost way more in the U.S. than in Europe. Check this out: forbes.com/sites/theapothec...
The pharma companies are running TV ads calling Trump's proposal "price fixing". They claim that the US pharma companies won't be able to afford research for new drugs if they are told what they can charge for their products.
Hi I have heard Donald Trump complaining about this and the UK's involvement where he accuses our government and the relevant health authorities of allowing the NHS to get drugs at a cheaper rate at the expense of the USA where UK drug companies are charging them an extortionate amount - so watch this space as Trump has said he will not put up with this and don't blame him.............
it is everywhere. i have had problems with gp's / specialists in uk, nz, canada (toronto & vanc), germany, netherlands, portugal and again uk. the personal cost of incompetence / lack of training has been huge. they don't care
The cost will also be increased if the patients get additional prescriptions for remaining symptoms they may develop instead of doctor insuring that the TSH is one or lower instead of 'in range' (up to 5)..
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