Hi I’m new in here I’ve been feeling unwell dizziness headaches joint pain insomniac I’ve been taking Levothyroxine but been changed brand to anhydrous Levothyroxine sodium 50mcg my latest blood results are if anyone can give me advice would appreciate thank you
TSH 3.04 mU/L
Free T4 15.2 pmol/L
Vit B12 137ng/L
Anhydrous levothyroxine sodium isn't a brand, it's the active ingredient of your Levo tablets (anhydrous simply means without water) that is compounded with the inactive excipients to form the tablet shape.
Thank you !
Some people are sensitive to the inactive excipients, so you might need a change of brands.
I'm afraid we need the ranges to comment on the FT4 and the B12, but your TSH is too high, you need an increase in dose. 
Thank you for your reply
You're welcome.
Can you add the ranges on FT4 and B12
The aim of Levothyroxine is to increase the dose slowly in 25mcg steps, retesting 6-8 weeks after each dose increase. This continues until TSH is around one (certainly under 2) and FT4 in top third of range
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
You also need vitamin D, folate, ferritin and both TPO and TG thyroid antibodies tested
See GP for dose increase in Levothyroxine and other tests
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Thank you for your reply
TSH 3.04 mU/L (0.3-5.0)
Free T4 15.2 pmol/L (7.9-16.0)
VitB12 137ng/L (120-900)
Your B12 is extremely low
You need folate testing too
Folate and B12 work together. Both likely to be low
Request full testing for Pernicious Anaemia before starting on either B12 injections via GP, or if they refuse to do so self supplementing sublingual B12.
Do you have B12 deficiency symptoms?
Dizziness is a symptom
b12deficiency.info/signs-an...
Plus vitamin D and ferritin need testing
Vitamin levels drop as direct result of being under treated for hypothyroidism.
50mcg is only a starter dose. Most patients need around 100mcg, sometimes more
Request 25mcg dose increase in Levothyroxine and bloods retested 6-8 weeks later
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Won’t know for sure until you post the ranges but that B12 looks incredibly low - as in, you probably need Vit B12 shots low.
And 50mcg of Levo - whatever brand - clearly isn’t enough. You’re undermedicated.
Thank you for your reply I was having 3 monthly b12 injections but then stopped as they said my iron stores were adequate for 2 years
TSH 3.04 mU/L. (0.3-5.0)
Free T4 15.2 pmol/L (7.9-16)
Iron stores are nothing to do with B12
Your B12 level is extremely low and needs urgent improvement. Probably as direct result of being hypothyroid because you are not on high enough dose of Levothyroxine
See GP to discuss restarting B12 injections
You also need vitamin D, folate and ferritin retested
Levothyroxine dose should be increased slowly in 25mcg steps, retesting 6-8 weeks after each dose increase
NICE guidelines (see initiation and titration how to initiate and increase.)
The initial recommended dose is:
For most people: 50–100 micrograms once daily, preferably taken at least 30 minutes before breakfast, caffeine-containing liquids (such as coffee or tea), or other drugs.
This should be adjusted in increments of 25–50 micrograms every 3–4 weeks according to response. The usual maintenance dose is 100–200 micrograms once daily.
cks.nice.org.uk/hypothyroid...
Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine
(Many of us need TSH nearer 0.2 than 2.0 to feel well)
See box
Thyroxine replacement in primary hypothyroidism
pathology.leedsth.nhs.uk/pa...
Thank you for your help I’m seeing GP Thursday as I’m feeling really unwell hoping that they will get it sorted out for me I’ve had all the bloods suggested on here taken today so the latest results will be with GP Thursday
The GP have never really taken much notice of my thyroid meds they started me on Levo 50mcg and I’ve been on that dose only for a long time but I will take all this info with me Thursday I’m very thankful for this help.
If you have changed brands I wonder if your new brand is manufactured by Teva, I am unable to take this brand as it makes me quite ill.
I’m not sure of the brand will find out and thank you
Like @lesel mentioned, if you have Teva levothyroxine, this gave me terrible headaches and a sore neck - and I yellow carded them so that the NHS are aware. Hope you start to feel better soon.
Hi thank you I will find out the brand and thank you for your reply
It's probably a "generic", but do find out which company manufactured your pills.
Thank you for your help
As mentioned above, you need your Vit D, folates and ferritin tested, which if low will bring the dizziness
Thank you
Not sure if I can help with my input (newbie too), but I have similar symptoms (75mcg) and asked GP for a slight increase. He was not happy with the way I was feeling and asked for further blood tests. Turns out I’m low in sodium (and vit d), and he has repeated the tests to be on a safe side. Still awaiting the results, but it would be worth asking yours for kidney function tests (unless done already and they are fine). Looking at the symptoms of low blood sodium, they are freaking the same as hypo, and there are number of causes inc underactive thyroid, adrenal function....Good luck x
It's good that you have a GP who seems willing to listen and do the tests you need
Thank you
Just to let you know I use Medichecks in the UK for my tests, as my GP won't do them. They have a Thyroid UltraVit test that covers thyroid levels and the essential vitamins. I used them twice: once to find out my Vit D levels were low and then again 4 months later to check the supplements had lifted them back to normal. It was a very fast and efficient service.
Good luck Dukemaster.
Thank you for your help
Are you male or female? What age?
Female age 60
Sorry only getting back 😣 my menopause gives me those symptoms plus many more, im on hrt and feeling much better. Are your symptoms any better? X
Try cutting out sugar. Works for me. Worth a try.
Thank you I will try anything
Honestly that ft4 is top of range - you aren’t converting at all. You must feel terrible. Can you get your hands on some t3 or ndt until you get your vitamins in range?
Hi I’m going GP Thursday so hoping that they will get it sorted out yes I’m feeling pretty rubbish 😒thank you for your help
I was thinking the same as Hashela. I am in a similar situation where my T4 is high but I'm still hypothyroid. My vit B (and other vitamins) is very low... I also have a heavy metal toxicity. So I think my symptoms may be coming a lot from vitamin deficiencies and my heavy metal toxicity. Yes I agree your levothyroxine is very low dose But maybe your focus needs to be on vitamins initially? I focused on my thyroid meds increases rather than vitamins (as I wasn't tolerating supplements) but now my thyroid levels are good but I still feel terrible so have switched my focus to my vitamins. I don't regret the path I took as it was all I could do. But if you tolerate supplements then I would say to try the vitamins path first.
My GP was useless re my vitamins, I have to take charge of this myself too. If you are "in range" then apparently you're totally fine, which isn't true at all! Doctors ignore what the "Optimal range" is... So I'd be surprised if they'd give you B12 shots. You can still try though! Some are better than others.
Also it would be very useful to see what your T3 level is... You may need to do a home blood test for this privately, eg thru Blue Horizon.
I also had terrible side effects off all the UK levothyroxine... I had migraines every day and enormous anxiety, and boils(!) as soon as I started taking it. I switched to Synthroid which is a brand name (therefore properly regulated) and these side effects instantly vanished!!
Some people find a different Uk generic works for them, which is ideal as I have to pay a fortune for my synthroid as I buy it from abroad... So do try other generics locally. Talk to your pharmacist and ask them for a different one to usual. Show them your current box of meds and say "not this one again!". If you find one that you want to try for a while then ask the pharmacist to put a note on your file to say to always make sure you have that version. If they aren't helpful then go elsewhere to another pharmacist.
Hope this helps
Thank you so much for all your help and advice
Thoughts on sublingual vitamins to absorb buccally rather than ingested? I do my b12 this way.
Do you have antibodies? If so, an eye has to be kept on any triggers if you know them... I’ve got antitpo so no gluten for me.
Thank you for your advice no antibodies as far as I am aware
Headaches
Headaches
Hypothyroidism & Dizziness
Dizziness and Spinning 
