Hi. Many of you will have seen me post often since I had my “crash” in Sept 17.
Any advice on these results would be very welcome.
I did make the mistake of taking my levo around 845 the evening before my bloods (totally went into auto mode forgetting appt in the morning) hence the high T4 but I have been having an awful lot of palpatations and periods of my heart racing, so think my levo is too high anyway.
I have suspected for sometime from my remaining symptoms that I need T3, or some other form of treatment to increase T3, and to me these results confirm it.
I continue to work to increase my vitamin levels - tbh I’m a bit disappointed they’re not higher after a year of supplements, liver and Igennus B complex!
TIA as always 😊
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Murphysmum
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I’m currently on 200mcg per day - the highest I’ve ever been.
I’m not gluten free - never have been and was fine for nearly 14 years until 2017. I don’t really fancy it tbh!
I take the BetterYou Vit D + k2, so 75mcg per day.
I take 2 b complex a day and have been for a year, albeit only on igennus brand since about August.
I stopped all supplements for two weeks before my bloods.
Ferritin hasn’t budged in a year despite pate twice a week, iron rich goods, one course of iron tablets and an iron daily spray in addition to all the other supplements I take. I’m a bit gutted about that tbh!
Despite increasing my levo after every bloods since 2017, I have never got rid of the brain fog and feeling like someone has filled me with concrete. I exercise every day and have incrementally increased it back to what I used to do but every time feels like I’m starting from scratch. This is why my interest in T3 - I feel like my muscles are crying out for more energy.
All other symptoms have gone (despite now feeling a bit over, but that’s what I expected bloods to show)
All I can say on the gluten free diet, is yes I never dreamt it was a problem. I had absolutely no gut symptoms at all. But couldn't walk. Turned out it was key to my full recovery
The fact you have continuing low vitamins despite supplementing suggests it could be a hidden problem
Gluten free is much easier than you might imagine (honest!) Can clear brain fog too. If you have leaky gut, gluten gets in blood stream. Gluten can then cross blood brain barrier, can be cause of brain fog
If gluten is a hidden problem then you need to at least try 2-3 months of it, ideally BEFORE starting on T3
I found many almost immediate improvements, though brain fog was slow steady improvements. others find it's more subtle changes
Ideally ask GP for coeliac blood test first, or buy online for under £20. If test is positive then you have to remain on high gluten diet until endoscopy
I have thought about the DIO2 test, yes. I always wonder though, why would I start having problems after years of none? Wouldn’t I always have had this mutation?
Yes....but conversion gets worse over time. Seems to get worse after menopause especially
I managed (badly) on just Levothyroxine. But testing positive for Heterozygous DIO2 gene helped get T3 on NHS. Plus I was confirmed as severely gluten intolerant after endoscopy (no gut symptoms)
Can I ask - if I still have symptoms on this high a levo dose, and my T3 is now at the top of its range - is it to be assumed that thyroid levels aren’t the issue?
I’m asking in reference to another post about Dr Toft and “other issues” needing to be addressed.
I don’t get it. I was fine, for years fine. I had a very stressful year and “crashed” at the end of it and now I can’t get well. I can get nearly there but not right.
Do I start looking for other issues? Nothing has changed in life, I still eat fairly well, exercise regularly, take supplements etc, etc.
My sister suddenly developed an intolerance to milk. She was in her fifties when this happened. Some relatives of coeliac people have had the test and discovered that they have the disease even though they have no radical symptoms. I don't have coeliac but gluten is something I must stay away from. Two years ago I started having a drink twice a week - not realizing that it had a lot of gluten in it. Over 8 - 10 weeks, I gradually got sicker and then woke in the middle of the night vomiting. This was a common reaction for me to gluten. As I recognized it as a gluten reaction, I did a bit of investigation and discovered the gluten in the drink.
We are all different but it is worth a try to do without it and now there are so many gluten-free alternatives that it makes it easier. Some people notice a difference within a short time. Others only notice the difference after they have been off it for a couple of months or if they then go back on it. I didn't realize the extent of my gluten intolerance until I had a large gluten meal (Pancake Manor) about 6 weeks after I had gone off gluten. I had an immediate and quite violent reaction. It helped to make me realize that gluten was indeed a problem for me.
Wishing you all the best and hoping that you find a solution.
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