Hi all I got my new blood results today.
Tsh 2.40 .40-4.78
Ft4 1.1 .89-1.76
Ft3 2.90 2.30-4.20
Ferritin 47 10-291
Folate 21.9 >5.9
Vitamin. D3 36
B12 545
Prolactin low 2.1. Range 2.8- 29.2
Isn’t prolactin from pituitary and isn’t that. A problem with thyroid again I’m still confused
They didn’t retest the antibodies bc said once hashimotos confirmed they don’t recheck ? They were very high in the past
Ty again
You are under-medicated. Your TSH is too high and your Frees are too low. And your ferritin is much, much too low. Ideally, you should have an iron panel done to find out more.
Prolactin is from the pituitary, yes. Levels in hypothyroidism are usually high. So, your pituitary is under-producing.
It is correct that you don't need to retest antibodies because once you know you have Hashi's, it doesn't go away, I'm afraid. 
The primary told me my results were all good even prolactin I replied whattt ? Oh yes low is good it’s high we worry abt ? Said to go back t o Endo same run around . My Neuro. Bc of headaches and twitching tingling problems ordered more blood and testing but he basically said the same. Didn’t act like ferritin or prolactin problem . Almost as if we’ll low isn’t a pituitary TUmor so don’t worry . How do I get that addressed the pituitary problem and the Endo has told me that oh it’s usually high w hypo so what the heck w mine being low ? What should I do next ? How do I. Get those numbers up ? Since starting the synthroid only still on same 25 mg . I think the prolactin went lower ? Ty
The sad fact is, doctors know nothing about thyroid, and very little about hormones in general - except insulin, of course, they're pretty good with diabetes, I believe.
What you need is an increase in synthroid. 25 mcg isn't even a starter dose. It's half a starter dose! So, you need to work on getting that. You also need to sort out that ferritin/iron. Insist on a full iron panel.
We don't know that you actually have a pituitary problem. what was your TSH when you were diagnosed?
I definitely know that for sure want to treat diabetes mainly . What is the full panel and y wud my ferritin b low any ideas ? Onto the prolactin could it b pituitary not responding and y not responding to the meds synthroid only do I need t3 med do u feel ? Tsh was always around 3.4 so down a point . It did fluctuate y they never wanted to even treat me saying normal plus I exhibit the hyper symptoms ?
The Neuro said I hv a goiter ? Going back the Endo said no almost like just weight gain and double chin . she even said goiter comes w hyperthyroid ? Again I’m always confused alwsys different answers just want to feel normal . My big issues besides wired tired is the twitching tingling pains head eyes ? Ty again
I'm sorry, I can't tell you what the full panel consists of, but your doctor should know.
There are all sorts of reasons why your ferritin would be low - absorption problems (most hypos do have), perhaps.
Taking synthroid has nothing to do with your pituitary. Synthroid is not a cure for anything, not a drug, it's thyroid hormone replacement. It just replaces the hormone your thyroid can no-longer make for whatever reason. One wouldn't expect it to have any effect on a mal-functioning pituitary. But, if your TSH has never been above 3.5, you do perhaps have a mal-functioning pituitary.
I don't know if you need T3. You would have to bring your TSH down to 1 to really know that. And, to bring it down to 1, you need an increase in dose. But they told you your TSH was 'normal' because it was in-range, and they don't like treating when the TSH is in-range.
Do you have a goitre? If you have, you would be able to see it, it's not hidden. But, your endo is an idiot. Of course you can have a goitre with hypothyroidism!
I see . Ok I’m goin go try to post a pic of my neck including the rash I’ve had and has tested positive as autoimmune yet the endos say not thyroid related . I wish I cud lock them all in a rubber room together
Rubber rooms are too kind to them, just line them all up against and wall and…
The endos say what isn't thyroid-related? The antibodies or the goitre?
Lol oh what isn’t related to thyroid according to them is the neck rash in a v shape in exact area of thyroid ! It came back as autoimmune thru biopsy the dermatologist did 😒
OK, I see. Well, just because it's in the region of the thyroid and is autoimmune, doesn't mean it's related to your thyroid problems. However, it's impossible to prove that it isn't related, and you'll only know if it is related if it goes when you're optimally replaced for thyroid hormone.
Doctors want it all ways. It's related to your thyroid when it suits them - if it means they don't have to do any research to find the cause - but not related to thyroid if it means you're going to ask for a raise in dose! In any case, most of them make it all up as they go along, they don't really know anything about it.
Last question we’ll of the nite ...... are my numbers what is considered severe hypo ? I just don’t believe or trust them anymore
No, not severely hypo. Your TSH is not even 3, you're considered hypo at 3. But, your FT3 is uncomfortably low. And it's low FT3 that causes symptoms.
Severely hypo would be Frees under-range.
Ty gg . Would I benefit from adding t3 or switching to say Armour ? Combo of t4 t 3 ? Ty again
Impossible to answer that question, you can't tell in advance what anyone would benefit from. We're all different and have different needs. Armour doesn't suit everyone, but you'd have to try it to find out if it suited you.
But, if you're asking me if you need T3, I can only repeat what I said above:
"I don't know if you need T3. You would have to bring your TSH down to 1 to really know that. And, to bring it down to 1, you need an increase in dose."
Is your vitamin D result in ng/ml or nmol?
If ng/ml it could do with slight increase to over 40
(If it's nmol then it's very low, as need to be over 80nmol)
Agree with greygoose you are under medicated
TSH should be around one.
Yes nG/ml that has gone up since supplementing it was 19 ! Ty
Your doctor may be another who thinks that when the TSH is somewhere within the range, we're on a sufficient dose but this is not the case. We need it to be 1 or lower with a Free T4 and Free T3 in the upper part of the ranges. The latter two are rarely tested.
Yes they sure are thinking normal
. I asked for those tests and that’s y they did them . Now what ?
Maybe print a copy of the following and tick off your symptoms;
thyroiduk.org.uk/tuk/about_...
Also the following:
thyroiduk.org.uk/tuk/testin...
thyroiduk.org.uk/tuk/about_...
thyroiduk.org.uk/tuk/about_...
You can tell him that the aim, once diagnosed, is sufficient thyroid hormones to bring the TSH to 1 or below and the aim is an FT4 and FT3 to be towards the upper part of the ranges.
p.s. if you're not a member of TUK, you can become one. The more members we have the better. Thyroiduk.org.uk are always working hard and consists of three staff and they are also doing sterling work with regarding T3 being removed from patients who recovered on it.
thyroiduk.org.uk/tuk/member...
The fact is that once we're diagnosed with a high TSH, and it reduces to somewhere in the range, doctors make the assumption we're on the right dose. In fact they seem to be completely unaware that the aim is to have it around 1 or lower but most important is relief of all our clinical symptoms.
Should I b taking t 3 med as well as synthroid increase it’s always a debate
If you are in the UK, they will no longer prescribe T3.
Several Research Teams have found that many feel much better with a combination of T4/T3 but in the UK they've now withdrawn all T3 despite patients recovering and it caused immense stress/worry.
I think you mean your synthroid is 25mcg (not 25mg) this is only half the standard starter dose. Dose should be increased slowly in 25mcg steps until TSH is around one and FT4 towards top of range and FT3 at least half way in range
I know you are not in the UK
But here's info that says TSH should be under 1.5 (or lower) when just on Levothyroxine
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at
tukadmin@thyroiduk.org
New NHS England Liothyronine guidelines November 2018 clearly state on pages 8 & 12 that TSH should be under 1.5 when on just Levothyroxine
sps.nhs.uk/wp-content/uploa...
Your vitamin levels are low BECAUSE you are under medicated
Supplementing vitamins to improve levels will help use thyroid hormones better
Ask for coeliac blood test
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Ideally ask GP for coeliac blood test first
amymyersmd.com/2017/02/3-im...
chriskresser.com/the-gluten...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
drknews.com/changing-your-d...
thyroidpharmacist.com/artic...
Ty for all of that info slowD . The Neuro yest recommended the celiac and lupus test and did them in Office so waiting on them. What’s the story with eye problems and shooting nerve pains . Is that related to the the thyroid ? Hashi ? I’ve never been tested for graves or Sryojens is it spelled wrong. I’m sure ty again .
Test results - please advise
B12 and Vit D results - please advise?
Medichecks results, please advise
Test results please advise :)
Test results please advise
